My husband and I are expecting our second and we recently found out she has Hypoplastic left heart syndrome (HLHS). We were just wondering if there were any other chd moms in the area with any advice. Thanks!
Nora Marie born Monday, March 5, 2012 at 5:25pm weighing 7lbs. 2 oz. and 20.5 inches
I'm not a heart mom, but I was a heart baby! Where are you delivering? I know many heart mamas in Dallas who's LO had surgeries at Med City Dallas. Mine was at children's Dallas and it was really good. But I've seen a close knit group with the mamas at Med City with the ladies I know. Hope that helps some
Check out Amazing Little Hearts. I believe that they are families who did their surgeries at Med City. I'm not sure if it's only open to Med City patients/families or not.
Re: Any Heart Moms from the DFW area?
BFP#2 9/28/12 EDD 6/5/13 J.B. born 6/6/13