I'm 23 weeks. I found out yesterday my baby girl will be born with cleft lip (they weren't sure about palate yet and may not know til birth) and hypoplastic left heart syndrome (a serious heart condition that requires surgery or transplant for any chance of survival). This is only the tip of the iceberg- they're also concerned about her growth and believe all her problems may be caused by a chromosomal abnormality. So I'm getting an amniocentesis ASAP to look at the genetics. We have a heart scan next fri.
I guess my main questions at this point (besides how am I going to get through this) are:
1) anyone else with these issues?
2) did it turn out not to be a chromosomal thing?
3) if it was chromosomes, which numbers were affected?
4) what was/is the outcome/prognosis for your baby currently?