May 2013 Moms
hbrockman01
member
Options
**UPDATE** lengthy freak out - DD mystery illness
hbrockman01
member
Tell me my freak out is going to be OK!!
Two weeks ago my DD started running a fever at school, little did I know that was just the start of our problems. When I took her into the doctor she was 102.3 and they said “oh just viral, she should be better to return to school on Thursday”. After that her fever would go up getting to around 104.5 then coming back down. This went on for several days but when it kept peaking at 104 they requested we bring her back in to check for UTI. Once there they checked for UTI and ear infection both came back clean and clear. They sent us on our way with “if she’s not better by Sunday, bring her back in for lab work on Monday”. Well by the time we had gotten to Saturday not only were we still rocking a fluctuating temperature but not we have rash like marks on our thighs – I decided enough is enough and to Children’s we went.
Once we were in the ER they thought there was a problem so we had the following done – Chest X-Rays, CT Scan w/contrast, blood work, another UTI check. They determined that the rash was getting worse and spreading (now all over her legs and arms) and her feet were peeling. They decided to put in an IV and admit her. Once we were in our room, the doctor proceeded to tell us they were looking at the possibility of Kawasaki Disease which effects the heart. They said, there is treatment but its aggressive and lengthy and she could develop heart complications as a result later in life. We were there for 3 excruciating days where they did more scans and blood work, 2 echos. Everything came back normal and they still said serious viral illness. Finally, they decided to discharge us and we were to follow up with our pediatrician on Wednesday.
We followed up with pediatrician and he order one more round of blood work to test her infection levels (wanting to make sure they are coming down). Well we went and they actually went up. Doctor called me back on Friday to say that we would need to retest in 2wks (28th or 29th) and that he would print the order and I could come pick it up when it was convenient for me.
Which brings me to today and my panic attack. I called the doctor’s office to ask when I could pick it up (hopingtoday so it’s one less thing to worry about) and I briefly mention that my daughter’s gums bled last night when I brushed her teeth. The nurse took my information and said she would ask about it and call me back. Well, I just got my phone call and they want her in office TODAY! Nottomorrow or even next week, TODAY! She wouldn’t tell me why the urgency just that was the request and to get her in as soon as I could.
I don’t know what is going on with her, she is eating and drinking and playing like she should. She hasn’t had a fever since last Sunday (which is why they didn’t proceed with Kawasaki treatment plus her echos were good) and the rash has faded. Yes, her feet are still sort of peeling but they only look bad after her bath.
I just don’t know what is going on and it freaks me out. I want nothing more than for her to be happy and HEALTHY!!
Tell me would you be panic stricken to receive a call such as this or am going over the top with worry?
Lastly, I don’t like to ask but if you don’t mind please keep her in your thoughts. She doesn’t deserve this, whatever this is!
**update**
They are checking her blood again. Poor baby got poked 2x yesterday. They are looking for her SED rate to have gone down. They are also checking her blood clotting. They said the bleeding gums could just be the brush and tender gums but until I take her to the dentist and get the blood work results back they ate saying for sure.
They did briefly mention something about hemophilia which I guess is another thing they are testing for.
Doctor should be calling me this morning so I should know more then.
Thank you all again for the well wishes.
Two weeks ago my DD started running a fever at school, little did I know that was just the start of our problems. When I took her into the doctor she was 102.3 and they said “oh just viral, she should be better to return to school on Thursday”. After that her fever would go up getting to around 104.5 then coming back down. This went on for several days but when it kept peaking at 104 they requested we bring her back in to check for UTI. Once there they checked for UTI and ear infection both came back clean and clear. They sent us on our way with “if she’s not better by Sunday, bring her back in for lab work on Monday”. Well by the time we had gotten to Saturday not only were we still rocking a fluctuating temperature but not we have rash like marks on our thighs – I decided enough is enough and to Children’s we went.
Once we were in the ER they thought there was a problem so we had the following done – Chest X-Rays, CT Scan w/contrast, blood work, another UTI check. They determined that the rash was getting worse and spreading (now all over her legs and arms) and her feet were peeling. They decided to put in an IV and admit her. Once we were in our room, the doctor proceeded to tell us they were looking at the possibility of Kawasaki Disease which effects the heart. They said, there is treatment but its aggressive and lengthy and she could develop heart complications as a result later in life. We were there for 3 excruciating days where they did more scans and blood work, 2 echos. Everything came back normal and they still said serious viral illness. Finally, they decided to discharge us and we were to follow up with our pediatrician on Wednesday.
We followed up with pediatrician and he order one more round of blood work to test her infection levels (wanting to make sure they are coming down). Well we went and they actually went up. Doctor called me back on Friday to say that we would need to retest in 2wks (28th or 29th) and that he would print the order and I could come pick it up when it was convenient for me.
Which brings me to today and my panic attack. I called the doctor’s office to ask when I could pick it up (hopingtoday so it’s one less thing to worry about) and I briefly mention that my daughter’s gums bled last night when I brushed her teeth. The nurse took my information and said she would ask about it and call me back. Well, I just got my phone call and they want her in office TODAY! Nottomorrow or even next week, TODAY! She wouldn’t tell me why the urgency just that was the request and to get her in as soon as I could.
I don’t know what is going on with her, she is eating and drinking and playing like she should. She hasn’t had a fever since last Sunday (which is why they didn’t proceed with Kawasaki treatment plus her echos were good) and the rash has faded. Yes, her feet are still sort of peeling but they only look bad after her bath.
I just don’t know what is going on and it freaks me out. I want nothing more than for her to be happy and HEALTHY!!
Tell me would you be panic stricken to receive a call such as this or am going over the top with worry?
Lastly, I don’t like to ask but if you don’t mind please keep her in your thoughts. She doesn’t deserve this, whatever this is!
**update**
They are checking her blood again. Poor baby got poked 2x yesterday. They are looking for her SED rate to have gone down. They are also checking her blood clotting. They said the bleeding gums could just be the brush and tender gums but until I take her to the dentist and get the blood work results back they ate saying for sure.
They did briefly mention something about hemophilia which I guess is another thing they are testing for.
Doctor should be calling me this morning so I should know more then.
Thank you all again for the well wishes.
This discussion has been closed.
Re: **UPDATE** lengthy freak out - DD mystery illness
Thank you all... I will keep you updated!
TTC#1 for 19 months with PCOS and MFI IUI#3 + injectables = BFP!!!! Beta#1-134(13dpiui) Beta #2-392(15dpiui)
#1 born December 2011
TTC#2 - Beta #1 -51@10dpo Beta#2 -1353 @16dpo
#2 born May 2013
TTC # 3 June 2014 BFP 12-1-14
#3 born August 2015
#4!!!!!!! due June 2017
I'll be praying for you guys.
O14 January Signature Challenge: Snow Fails