Today was a LOOOOOONG day. Left house at 8:30, home around 4pm.
The baby does have spina bifida. There are positives and negatives to his particular situation. He has a hole in his spinal column at the base, which is the best spot to have it, the lower the better. Also his hole has been closed over by skin, which is rare. This means his spine is protected from amniotic fluid. Both these things means this is a mild case. Bad news: they suspect nerves are fused to the base of his spine. Right now he is fine, great movement, brain looks good, bones look good etc. But as he grows he may not grow normally. They just don't know.
Because his hole is covered they theorize no spinal fluid escaped which is why he passed the neural tube defect testing (AFP) in the 1st trimester screening process.
I had an amnio done today so they can check the amniotic fluid for a few things. I go next week for a fetal MRI. we also are trying to get in to meet a pediatric neursurgeon. Most babies with SP need surgery with 48 hours of birth to close the hole. Since his closed and protected we may not need surgery until he is a month or two old, which is better. But the big question is what the impact is of this possible nerve issue. The surgeon can tell us these things.
We are drained. I barely slept last night. The amnio hurt so much. I feel a tad more hopeful but also worried what may occur as he grows in-utero.
I need lots of prayers. This is going to be a long rough road. They still think a week 39 c section is fine. Apparently all SP babies are c section due to spine.
I really appreciate your prayers. My baby moves so much, he is moving all the time. I feel like he is telling me to hang in there.
I'm so sorry you're dealing with this, but I'm glad it seems to be a mild case and that you have good doctors and are developing a plan of action. Hopefully that will bring you some peace in the coming weeks. Continued t&ps.
Mr. & Mrs. B, Est. 10.23.2009 m/c: 9/06/12 LTB: 10/23/13
Sending so many thoughts and prayers your way. Huge hugs!!!
Missing Our July Sparkler BFP#1-11/12/12, MMC 1/16/13-baby stopped growing @ 9wks, found out at 13wks, D&E 1/25/13 BFP#2-4/23/13 EDD-01/02/14 baby BOY born 12/31/13 Michael Cameron
Lots and lots of hugs. I'm so sorry you're going through this, but I'm glad to hear that it's a mild case at least. Sending vibes for lots of strength over the coming months.
I'm so sorry you are going through this. Sending you and your LO tons T's&P's.
TTC since August 2011
BFP#1 3/16/12 EDD 11/21/12 Delivered 6/1/12 at 15 weeks 2 days
"If there ever comes a day when we can't be together... Keep me in your heart, I'll stay there forever." ~ Winnie the Pooh
BFP#2 4/14/13 EDD 12/24/13 Please be our rainbow after the storm!
Beta#1 @ 15dpo 274, P4 16.9 Beta#2 @ 18dpo 940!! Doubling time of 40 hours!! u/s @ 6w2d showed a beautiful HB of 120! u/s @ 10w1d HB 174!! Grow, LO Grow!! Found out 7/22 we areTEAM BLUE!! Zaiden Harper was born 12/22/13 at 1:46 am. 9lbs 8oz and 22in
~*~AL Always Welcome~*~
I am thinking of all of you. I can only imagine how terrifying this is.
Mommy to Alden, born May 19, 2007 - best birthday present ever!
natural m/c October 20, 2008 at 8w1d
BFP April 4, 2009! Missed m/c discovered May 1, 2009 D&C May 12,2009
BFP March 3, 2010 Chemical pregnancy
BFP May 25, 2010 Elias Derek born January 26, 2011!
Surprise BFP October 24, 2012 Missed m/c confirmed Nov 26 D&C Nov 30
Surprise BFP February 13, 2013
I'm glad you got some better info. I hope it's a very mild case. Deep breaths, you will get through this just take it one step at a time.
Huge hugs
**Warning: Losses and living child mentioned** BFP#1 1/31/12, EDD 10/6/12 Harrison Gray born sleeping @ 18w6d. You changed our lives little guy. BFP#2 EDD 10/29/13, C/P 2/25/13, Bye little Ish, we barely got to know you. BFP#3 EDD 12/21/13, Baby Boots born 11/23/13Myrainbowbaby!
So many hugs, KK. He most definitely is telling you not to worry and that he is going to be ok! I am glad you have some answers but so sorry you're going through this.
So many thoughts and prayers headed your way! Glad to hear this could be mild and that you are trying to stay positive. Get some rest for you and baby!!
::hugs::
Lots of ((hugs)) and T&Ps coming your way. I'm glad that it seems to be a mild case, but I cannot imagine what you must be going through right now. Keeping you in my thoughts.
::hugs:: I am relieved to hear that it is only a mild case, but I'm sorry that you're going through this.
FWIW I have a cousin who has spinabifida, she has had a shunt in her spine all her life and she is perfectly happy, active, and healthy 17 year old. Her older brother also has it but he had a mild case and so didn't really need the shunt, and he is in his early 30s now.
I really hope you get some rest tonight.
PAL Sep challenge George Takei
Started dating in 5/9/05, Married 6/25/11
Started TTC Feb 2013, BFP #1 3/4/13 EDD 11/10/13. MMC 4/9/13 D&C 4/22/13.
BFP #2 7/17/13, EDD 3/29/14 ended in a CP on 7/22/13.
BFP#3 8/19/13 EDD 5/3/14 Nerdling was born 4/29/14, welcome little one!
Sending lots of T's and P's your way for strength. I'm glad to hear the it is a mild case for you guys, I'm sure that doesn't make it much easier though. Sending good vibes as your little boy grows!
Huge hugs! What a lot to take in in one day! I am glad to hear that it's a mild case, but I'm so sorry you and YH are going through this. It sounds like you have a strong boy in there who is fighting this with you, and know we are all here to support you through this. HUGS!!!
TTC #1 since 6/08. Cycle #6 - BFP 12/22/08, EDD 9/3/09, DD 8/14/09 at 37w1d
I'm so sorry you're having to deal with this kind of stress, but it's good to hear that he has less severe case than a lot of others.... please keep us updated, and I know you have a lot of PGAL cheerleaders for you and your little guy
I wish I could offer more than hugs and prayers. So glad to hear that his is a mild case and the doctors are sounding optimistic based on your post, but I know that there is nothing worse than hearing something is wrong with your baby. Hang in there and enjoy the constant reassuring kicks from your sweet baby. Sending tons of prayers to you, baby boy, and your family.
TTC Since Summer 2011
BFP #1 11/5/11 EDD 7/22/12 MC 11/14/11
PGAL/PAL Always Welcome
So glad there is at least some hope of everything working out. I will pray for you that everythings going to be mild and best case scenario. BIG HUGS
My hubby and I have been together since 2008. Married 5 years in Dec. DX with PCOS and
annovulatory hypothalamus. TTC for baby #2 for 10 months BFP on May 29th 2015
I'm so sorry you are going thru this. I'm glad to hear it's a mild case. Hope baby boy continues to wiggle around in there and erases your worries. Praying for you, DH and LO. Lots of {{{hugs}}}
We can't wait to meet you, our baby surfer GIRL!!!
I am so sorry you guys are going through this. Your whole family will be in my thoughts and prayers over the coming weeks. I hope they get you in with the surgeon ASAP so you can get more answers. And I think you're right about him telling you to hang on. He's a fighter just like you. Lots of hugs.
Me: 31 * DH: 33 * TTC since Sept 2012
Hx of Pulmonary Embolisms, Right Sided Heart Failure and Nephrotic Syndrome 2001
Began working with RE Dec 2012February 2013: Clomid 100mg + Ovidrel BFP # 1: 2/26/13 * EDD 11/9/13 * MMC at 7w5d -- 3/27/13 * D&C 3/28/13May 2013: Clomid 100mg + Ovidrel + PIO + Lovenox BFP # 2: 6/6/13 * EDD 2/18/14 * MMC at 11w1d -- 7/31/13 * D&C 8/1/13RPL Testing & Karotyping was normal for both of usEmbryo testing was inconclusiveBenched July 2013- January 2014 due to Lupus FlareWTF appt 2/12/14IVF is OUT and Clomid + Ovidrel + Endometrium is in... AGAINBFP # 3: 2/28/14 * EDD: 11/12/14 * CP 3/1/14TTC on our own until April 2014*A persons a person no matter how small*
I'm so sorry, I can't imagine how you must be feeling right now. Please stay strong and try to take comfort in those around you. I hope everything goes as smooth as possible for your baby boy. ((hugs))
TTC since June 2011 BFP #1 11/18/11 - m/c 12/24/11 blighted ovum - EDD 08/01/12 BFP #2 08/04/12 - m/c 08/29/12 no answers - EDD 04/17/13 BFP #3 10/01/12 - m/c 10/30/12 uniparental disomy - EDD 06/04/13 BFP #4 04/12/13 - EDD 12/22/13 It's a GIRL! compound heterozygous MTHFR - All AL Welcome
I am so sorry that you have to go through this. I want to reach out and give you the biggest {HUG} right now! You and your family with be in our thoughts and prayers!
Re: Update on Baby Boy
BFP#3: 2/9/13 EDD 10/18/17. Team Green for Round 2!
Big {{hugs}}
I'm so sorry you're dealing with this, but I'm glad it seems to be a mild case and that you have good doctors and are developing a plan of action. Hopefully that will bring you some peace in the coming weeks. Continued t&ps.
m/c: 9/06/12
LTB: 10/23/13
"there is no foot so small that it cannot leave an imprint on this world"
BFP #2 2.27.13 EDD 11.8.13 Grow, baby, grow!
My Ovulation Chart
~ all ALers welcome ~
Missing Our July Sparkler
BFP#1-11/12/12, MMC 1/16/13-baby stopped growing @ 9wks, found out at 13wks, D&E 1/25/13
BFP#2-4/23/13 EDD-01/02/14 baby BOY born 12/31/13 Michael Cameron
Huge (((hugs)))
I'm so sorry you are going through this. Sending you and your LO tons T's&P's.
TTC since August 2011
BFP#1 3/16/12 EDD 11/21/12 Delivered 6/1/12 at 15 weeks 2 days
"If there ever comes a day when we can't be together... Keep me in your heart, I'll stay there forever." ~ Winnie the Pooh
BFP#2 4/14/13 EDD 12/24/13 Please be our rainbow after the storm!
Beta#1 @ 15dpo 274, P4 16.9 Beta#2 @ 18dpo 940!! Doubling time of 40 hours!! u/s @ 6w2d showed a beautiful HB of 120! u/s @ 10w1d HB 174!! Grow, LO Grow!! Found out 7/22 we are TEAM BLUE!!
Zaiden Harper was born 12/22/13 at 1:46 am. 9lbs 8oz and 22in
~*~AL Always Welcome~*~
BFP #3 -mm/c @ 7wks, discovered at 9wks, D&C 9/28
BFP #4 5/29 EDD 2/9 - please be our rainbow
TTC #2 Since October 2011
RE testing results: DH- normal ME- DX:PCOS and One copy of MTHFR gene
IUI#1 Sept/Oct 2012-Follistim, Ovidrel, Metformin, Baby Asprin, Lovenox, Crinone, and Neevo Beta 10/24=BFN
No 2nd IUI but instead TI with Metformin, Baby Asprin, Neevo and Prometrium
BFP #4 5/4/13-EDD 1/19/14- grow little one, grow!
Beta #1@15DPO HCG-95, progesterone-25 Beta #4@24DPO HCG-2498, progesterone-30, 1st U/S 6mm,133BPM 2nd U/S 1.6cm, 167 BPM
Chart
~*~*~*~Everyone Welcome~*~*~*~
I'm glad you got some better info. I hope it's a very mild case. Deep breaths, you will get through this just take it one step at a time.
Huge hugs
BFP#1 1/31/12, EDD 10/6/12 Harrison Gray born sleeping @ 18w6d. You changed our lives little guy.
BFP#2 EDD 10/29/13, C/P 2/25/13, Bye little Ish, we barely got to know you.
BFP#3 EDD 12/21/13, Baby Boots born 11/23/13 My rainbow baby!
January PAL Siggy Challenge: Good Advice
January 13, 2012- m/c 1
September 12, 2012- m/c 2
MTHFR (2 copies C677T, +ANA)
Gluten free, dairy free, acupuncture
1/13/13- BFP #3-
1/14- 32 Progesterone 20
1/16- 100 Progesterone 23
1/22- 2054!! Progesterone 18.7 (On supplements since 1/16)
PLEASE be our sticky rainbow baby.. You have no idea how much you are loved already!!
You gotta keep your head up. You can let your hair down. Only rainbows after rain, the sun will always come again!
::hugs::
Thinking if you and your sweet boy.
BFP #1 4/10/12 D&C 6/5/12@ 12.5wks EDD 12/17/12
BFP #2 9/10/12 CP 9/19/12@ 5.5wks EDD 5/21/13
BFP# 3 12/3/12...Lukas James born 8/15/13
BFP# 4 8/4/14 EDD 4/13/15
FWIW I have a cousin who has spinabifida, she has had a shunt in her spine all her life and she is perfectly happy, active, and healthy 17 year old. Her older brother also has it but he had a mild case and so didn't really need the shunt, and he is in his early 30s now.
I really hope you get some rest tonight.
BFP #1 9/1999. DD Born 6/7/2000
BFP #2 10/2011. EDD 7/11/12. MMC discovered 11/2/11. D&C 11/4/11.
DX PCOS 10/2012.
BFP#3 1/11/13. DS Born 9/17/2013
BFP#4 9/30/17. Grow baby grow!
~Everyone Welcome~
TTC Since Summer 2011
BFP #1 11/5/11 EDD 7/22/12 MC 11/14/11
PGAL/PAL Always Welcome
(((Hugs)))
I'll continue to keep you in my prayers. I hope you're able to get some rest, and that the surgeon can offer more answers/options.
We can't wait to meet you, our baby surfer GIRL!!!
My Ovulation Chart
BFP #1 11/18/11 - m/c 12/24/11 blighted ovum - EDD 08/01/12
BFP #2 08/04/12 - m/c 08/29/12 no answers - EDD 04/17/13
BFP #3 10/01/12 - m/c 10/30/12 uniparental disomy - EDD 06/04/13
BFP #4 04/12/13 - EDD 12/22/13 It's a GIRL!
compound heterozygous MTHFR - All AL Welcome