Pregnant after a Loss
74dragonfly
member
Update on Baby Boy
74dragonfly
member
Today was a LOOOOOONG day. Left house at 8:30, home around 4pm.
The baby does have spina bifida. There are positives and negatives to his particular situation. He has a hole in his spinal column at the base, which is the best spot to have it, the lower the better. Also his hole has been closed over by skin, which is rare. This means his spine is protected from amniotic fluid. Both these things means this is a mild case. Bad news: they suspect nerves are fused to the base of his spine. Right now he is fine, great movement, brain looks good, bones look good etc. But as he grows he may not grow normally. They just don't know.
Because his hole is covered they theorize no spinal fluid escaped which is why he passed the neural tube defect testing (AFP) in the 1st trimester screening process.
I had an amnio done today so they can check the amniotic fluid for a few things. I go next week for a fetal MRI. we also are trying to get in to meet a pediatric neursurgeon. Most babies with SP need surgery with 48 hours of birth to close the hole. Since his closed and protected we may not need surgery until he is a month or two old, which is better. But the big question is what the impact is of this possible nerve issue. The surgeon can tell us these things.
We are drained. I barely slept last night. The amnio hurt so much. I feel a tad more hopeful but also worried what may occur as he grows in-utero.
I need lots of prayers. This is going to be a long rough road. They still think a week 39 c section is fine. Apparently all SP babies are c section due to spine.
I really appreciate your prayers. My baby moves so much, he is moving all the time. I feel like he is telling me to hang in there.
Thanks you for thinking of us!
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Re: Update on Baby Boy
BFP#3: 2/9/13 EDD 10/18/17. Team Green for Round 2!
Big {{hugs}}
I'm so sorry you're dealing with this, but I'm glad it seems to be a mild case and that you have good doctors and are developing a plan of action. Hopefully that will bring you some peace in the coming weeks. Continued t&ps.
m/c: 9/06/12
LTB: 10/23/13
"there is no foot so small that it cannot leave an imprint on this world"
BFP #2 2.27.13 EDD 11.8.13 Grow, baby, grow!
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Missing Our July Sparkler
BFP#1-11/12/12, MMC 1/16/13-baby stopped growing @ 9wks, found out at 13wks, D&E 1/25/13
BFP#2-4/23/13 EDD-01/02/14 baby BOY born 12/31/13 Michael Cameron
Huge (((hugs)))
I'm so sorry you are going through this. Sending you and your LO tons T's&P's.
TTC since August 2011
BFP#1 3/16/12 EDD 11/21/12 Delivered 6/1/12 at 15 weeks 2 days
"If there ever comes a day when we can't be together... Keep me in your heart, I'll stay there forever." ~ Winnie the Pooh
BFP#2 4/14/13 EDD 12/24/13 Please be our rainbow after the storm!
Beta#1 @ 15dpo 274, P4 16.9 Beta#2 @ 18dpo 940!! Doubling time of 40 hours!! u/s @ 6w2d showed a beautiful HB of 120! u/s @ 10w1d HB 174!! Grow, LO Grow!! Found out 7/22 we are TEAM BLUE!!
Zaiden Harper was born 12/22/13 at 1:46 am. 9lbs 8oz and 22in
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BFP #3 -mm/c @ 7wks, discovered at 9wks, D&C 9/28
BFP #4 5/29 EDD 2/9 - please be our rainbow
TTC #2 Since October 2011
RE testing results: DH- normal ME- DX:PCOS and One copy of MTHFR gene
IUI#1 Sept/Oct 2012-Follistim, Ovidrel, Metformin, Baby Asprin, Lovenox, Crinone, and Neevo Beta 10/24=BFN
No 2nd IUI but instead TI with Metformin, Baby Asprin, Neevo and Prometrium
BFP #4 5/4/13-EDD 1/19/14- grow little one, grow!
Beta #1@15DPO HCG-95, progesterone-25 Beta #4@24DPO HCG-2498, progesterone-30, 1st U/S 6mm,133BPM 2nd U/S 1.6cm, 167 BPM
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I'm glad you got some better info. I hope it's a very mild case. Deep breaths, you will get through this just take it one step at a time.
Huge hugs
BFP#1 1/31/12, EDD 10/6/12 Harrison Gray born sleeping @ 18w6d. You changed our lives little guy.
BFP#2 EDD 10/29/13, C/P 2/25/13, Bye little Ish, we barely got to know you.
BFP#3 EDD 12/21/13, Baby Boots born 11/23/13 My rainbow baby!
January PAL Siggy Challenge: Good Advice
January 13, 2012- m/c 1
September 12, 2012- m/c 2
MTHFR (2 copies C677T, +ANA)
Gluten free, dairy free, acupuncture
1/13/13- BFP #3-
1/14- 32 Progesterone 20
1/16- 100 Progesterone 23
1/22- 2054!! Progesterone 18.7 (On supplements since 1/16)
PLEASE be our sticky rainbow baby.. You have no idea how much you are loved already!!
You gotta keep your head up. You can let your hair down. Only rainbows after rain, the sun will always come again!
::hugs::
Thinking if you and your sweet boy.
BFP #1 4/10/12 D&C 6/5/12@ 12.5wks EDD 12/17/12
BFP #2 9/10/12 CP 9/19/12@ 5.5wks EDD 5/21/13
BFP# 3 12/3/12...Lukas James born 8/15/13
BFP# 4 8/4/14 EDD 4/13/15
FWIW I have a cousin who has spinabifida, she has had a shunt in her spine all her life and she is perfectly happy, active, and healthy 17 year old. Her older brother also has it but he had a mild case and so didn't really need the shunt, and he is in his early 30s now.
I really hope you get some rest tonight.
BFP #1 9/1999. DD Born 6/7/2000
BFP #2 10/2011. EDD 7/11/12. MMC discovered 11/2/11. D&C 11/4/11.
DX PCOS 10/2012.
BFP#3 1/11/13. DS Born 9/17/2013
BFP#4 9/30/17. Grow baby grow!
~Everyone Welcome~
TTC Since Summer 2011
BFP #1 11/5/11 EDD 7/22/12 MC 11/14/11
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(((Hugs)))
I'll continue to keep you in my prayers. I hope you're able to get some rest, and that the surgeon can offer more answers/options.
We can't wait to meet you, our baby surfer GIRL!!!
My Ovulation Chart
BFP #1 11/18/11 - m/c 12/24/11 blighted ovum - EDD 08/01/12
BFP #2 08/04/12 - m/c 08/29/12 no answers - EDD 04/17/13
BFP #3 10/01/12 - m/c 10/30/12 uniparental disomy - EDD 06/04/13
BFP #4 04/12/13 - EDD 12/22/13 It's a GIRL!
compound heterozygous MTHFR - All AL Welcome