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mcurban
member
***The mcurbans are heading to Houston!***
mcurban
member
One of Jon's colleagues has a contact who knows one of the Administrative Directors at MD Anderson. They want to see us ASAP (before Jon starts his treatment here). Seriously, they are on.the.ball. down there. Jon emailed this guy on Friday and by lunch time today the fellow had called Jon's cell, called Jon's work and emailed him back.
Turns out, Jon is kind of a genetic freak. So, they are interested in him. I'm interested in him, too, but his freaky genes aren't a part of that.
This discussion has been closed.
Re: ***The mcurbans are heading to Houston!***
That's so great. A good friend of mine is a reasearcher for MD Anderson and she always tells me if I ever have a family member who needs help to send them down there first.
They have such a good reputation and such great recovery rates.
GL!
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good luck! keep us updated.
*hugs*
Oh my goodness....GOOD LUCK!!! MD Anderson is fantastic!!
Prayers and hugs!!
Don't lie. You like the freaky part.
That is awesome news!! I hope they have equally freakishly awesome treatments.
Kennedy Clover 7.14.08, Atalie Ryan 1.25.10
Jacob David (01/07), Matthew Isaac (12/08) & Kasey Elise (9/10)
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The O'Baby Blog
Hee! That totally cracks me up!
Anyway, best of luck at MD Anderson! I always felt so safe living in Houston with their great medical facilities -- glad that you're getting the opportunity to be seen there.
AND if you need any info about stuff in Houston to do while J is being tested, give a shout and I (and some others on the board too I'm sure who are also native Houstonians) would be glad to help. I would definitely recommend taking Jack to the zoo -- very close to MD Anderson etc.
6-yr-old Elena and 4-yr-old Julia.
My Blog! All about my girls and quilting
BFP 12.20.2010 :: missed m/c 1/2011 around 8 weeks
BFP @ 9dpo 5.24.2011 :: missed m/c 6/2011 around 7 weeks
positive for ANAs (1:40) with a speckled pattern
MTHFR c677t mutation (heterozygous)
*folic acid, baby asprin, Prometrium, acupuncture, Lovenox*
BFP @ 9dpo 2.1.2012 || HCG = 8 : Progesterone = 19.2
2nd HCG @ 11dpo = 40 || 3rd HCG @ 21dpo = over 5000!
Stick, little one, stick! EDD October 15, 2012
CONGRATS! That is the place to be for treatment! I too am a genetic/medical nut. DH has a congenital heart defect (and has had 5 open heart surgeries) and two weeks ago on GMA they did a story about valve replacement through a catherter and not open heart surgery. I contacted the university and trial that is doing it to make sure they include adult patients that have a congenital defect in their study. I got an email the other day that b/c of my email, they are going to now include adults that were born w/ a heart defect in this medical breakthrough experiment!
GL at MD Anderson! We'll keep you in our thoughts.
I hope they take good care of Jon. My MIL's good friend would go there weekly for his pancreatic cancer and they were great at helping him so I'm sure with Jon's "connections" he'll be well taken care of.
**good luck dust**
(read it. you know you want to.)
anderson . september 2008
vivian . february 2010
mabel . august 2012
*101 Blog*foodie blog*scrapbooking blog*
Meredith, 6-1-06 and Alex, 11-5-09
AWESOME! I have had at least 5 family members and a best friend get treatment there! They are all happy healthy and in remission now!!!
Ditto on the H-town recs, I am familiar with the area and... you can find great hotel deals in the medical center on hotwire.com.
Lots of prayers for you guys!
That is wonderful! They should be able to work out a great treatment plan, which can most likely be carried out here in Austin.
Have a safe trip!