Babies: 3 - 6 Months

Sleep apnea?mouth open/snoring/recessed jaw- anxious mom!!

First, pardon my nipple lol he just unlatched from feeding. But wanted to show pic of jaw. I have video of the noises while sleeping but I dont know how to upload it. 
 
So some back story... my son is 12 weeks and I've struggled with breast feeding from day one. Hes always had a shallow latch and I've gotten his tounge tie revised ... I've seen consultants ... his pediatrician.. I've tried block feeding because of an oversupply and or harsh letdown. Still shallow latch. He will now be 3 months on August 5th. 
Also since birth my son has been sleeping with his mouth open. He has snored and his breathing has been loud. I've even witnessed his what seemed like to me him gasp for air which would wake him up. His jaw is pretty recessed.. I know its normal to be slightly for newborns but his seems pretty far back. I've brought this up to his ped multiple times (not the jaw but the mouth open and breahting/snoring).. at his 1 week appt.. I've gone in just for it.. at his 2 month one and again yesterday. At first she told me to use saline cause it could be mucus... I have been doing that and also using nose Frida... she just keeps blowing me off.
I brought up seeing a sleep specialist to test his breathing while sleeping and she was like "well I can refer you but they wont do anything"
So now I'm thinking this referral will have nothing on it and I'll probably be last on the list 😔. Also thinking after doing more research that I should probably see a ear nose throat doctor which you think she would've known and suggested. 
I think his jaw is too recessed and its causing all the wakings (hes waking on average 7 or more times a night) and breathing issues. I've read that often when the jaw is too recessed it can be mistaken for tongue tie and babies can have difficulty latching... then there is the jaw being too far back it caused the troubles breathing from constructing the airways. 

Anyone deal with this before??? I'm so anxious and worried about it and feel like his doctor just thinks I'm a nut job.

Re: Sleep apnea?mouth open/snoring/recessed jaw- anxious mom!!

  • My baby’s jaw looks exactly like this and I’m having similar problems. Did it ever resolve?? What did you end up doing??
  • Same! I would love to know the outcome!
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  • Please see an ENT, small Jaws could also be Treachercollins or something else. I have a small Jaw and it’s important to get it looked at, feeding and sleeping issues are major. Sounds like your doctor needs a little more respect for her patients, esp saying they won’t do anything. If it’s super serious they will.
  • Have you seen an ENT? Request one from your doctor if your doctor doesn’t know.
  • Hi there, so my son's jaw looked exactly like that. We had an extremely difficult time breastfeeding and I was in so much pain. He would suckle for 3/5mins and slip off and fall asleep from exhaustion :( saw lactation consultants and Dr's and only when I went to a talk by a breastfeeding professor and she had a look at his jaw did I hear the word "regressed jaw" for the first time. He made noises and slept with his mouth open (he still does) but as he grew older it became less and less. He is now 4y/o and has a tiny overbite but absolutely nothing compared to when he was small. At 2 years old I could stick my thumb in between the gap between his upper and lower jaw. It grew out with time and the symptoms got less and less. Have an ENT maybe check it out if your gut tells you something is very wrong but in our case it resolved by itself over time. Best of luck and enjoy your baby! 
  • I hate to say it but my kids pediatrician did not take a lot of my concerns seriously when it came to my kids breathing and sleep.

    We finally saw an ENT and they diagnosed her with laryngomalacia and obstructive sleep apnea. She had corrective surgery about a month ago. It was tough but she is fine and I’m so glad we did it. Obviously this will be different in each case but I echo another posters advice to see an ENT.
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