NT/NIPT Discussion Thread

chichiphin · February 2019

A thread for everyone to discuss results, testing options, ask questions etc

ETA: Possible trigger warnings ahead

chichiphin · February 2019

Found out at my 12 week appt that my insurance won’t cover NIPT, so I now have to decide if the 300 dollars is worth the testing. I have my NT scan on Wednesday, so perhaps those results will help me make the decision. I certainly don’t feel the need to test for gender at this point, but it’s more about the trisomy testing...

kgg2241 · February 2019

I am going through the same dilemma. $300 isn't going to break the bank, but I think I'm leaning toward not doing it and just doing the NT. Although I don't remember my Dr. even giving me the option of the NT, so I need to call and figure out what is happening.

blitzybee · February 2019

Insurance companies are such pain in the butts! I’m looking into the whole thing, as we will likely meet our deductible with the birth, so it may make sense to just pay towards it now. I have to make sure my mind has that right, tho! Either way we will do the tests because of our loss history, but I totally agree that they aren’t completely necessary and people could take it or leave it!

zuuls_mom · February 2019

I’m likely having the Progenity blood draw done on Tues after my next appt. I’ve never done an NT scan before with my other pregnancies, but my next appt is with my new OB so we’ll see what she recommends. I’ll definitely be paying out the ass for the birth ($4K out of pocket max) so it’s all going toward that anyway.

lillywonderland · February 2019

TBH, I have no clue how much it's gonna cost but I will be meeting my deductible and OOP this year for sure so it’s not gonna be a huge deal for us if we pay now or later, LOL.

I have only lived in CA for it, so I don’t know how other states do it. CA has a 1st tri screening (1 vial of blood), then the NT US, then the 2nd tri screening (also known as quad screen - 1 vial of blood). Does other states do this also? Or do you just have the panorama test?

We were given the option to do the panorama test, but declined because we don’t really care about finding baby’s sex early and we thought the CA tests covered our bases well.

chichiphin · February 2019

@lillywonderland my state doesn’t require insurance to cover ish... so I’m doing whatever my national insurance company covers

lillywonderland · February 2019

@chichiphin Does it not cover it at all??? Like, will it go at least towards your deductible if you pay 100%?

chichiphin · February 2019

@lillywonderland I have to call and see if they’d allow it towards my deductable, but because of my RE appts in the beginning of the year, I’ve almost met it for the whole year. It could help tho push me over the edge

rms924 · February 2019

@chichiphin insurance is beyond annoying. If you think it’s worth it for you, I think you can call the company directly and negotiate a price. I found out accidentally when I got a bill from Natera for 8k last time and called (after losing my mind). They basically asked me how much I could pay and said that they want to make this test accessible etc. they had great customer service. They put it through insurance and all was well but it taught me that it’s alwsys worth a call (again, if you want to do it).

I did the panorama (from Natera) which is what I did last time as well. I gave the sample at 9+4 and got a fetal fraction of 15.2% (I think that’s the cell free fetal dna percentage). Low risk and we are having a girl. I am 36 and dh 41 - we aren’t old by any stretch of the imagination but we like to do the genetic testing to have all the info we can. We will be doing the NT scan in 2 weeks.

chichiphin · February 2019

@rms924 if I were 35 or older, it would be paid for! it’s so frustrating how much disparity there is between insurance coverage in the states. I plan on calling them and asking a few more questions before writing it off. Tbh I get so stubborn with things like this I almost go 100% the other way, meaning now I don’t even want to find out the gender! I’m so exhausted from all the run around! hahaha

rms924 · February 2019

chichiphin said:

@rms924 if I were 35 or older, it would be paid for! it’s so frustrating how much disparity there is between insurance coverage in the states. I plan on calling them and asking a few more questions before writing it off. Tbh I get so stubborn with things like this I almost go 100% the other way, meaning now I don’t even want to find out the gender! I’m so exhausted from all the run around! hahaha

@chichiphin I totally get you (I’m like that too!). Age is def the primary consideration for us. The gender- we find out regardless in 10 w. Personally, from my research **TW loss mom TW**, the anatomy scan gives a ton of info about the health of the fetus. So I am still anxious waiting on the AS. Between the NT and AS (I think) you get a good amount of reassurance. This was a level one, ok, I can breathe and wait until Mar 7.

I think insurance in general is ridiculous. The whole thing is a farce. The recent acog recommendations actually state that the tri 1 genetic testing should be up to mom and provider discretion. As usual, insurance companies haven’t (or won’t) catch up.

lillywonderland · February 2019

@chichiphin How much is your OOP max? Honestly, if it’s only a few k more you’ll prolly hit it this year so maybe take that into account. Just the fee from my OB alone for his part in the delivery (and prenatal care) is exceeding my deductible, and we know from experience that the L&D stay at the hospital is going to put us way over (with DS it was like $8k at my hospital). The NT US is great, but that in combination with the NIPT gives you a more accurate picture. KWIM? Of course, it’s totally up to you...i just want you to know that there’s a chance you might max out this year so the NIPT might be “free”.

monkeysmom80 · February 2019

I am doing the Maternity Genome, it's more extensive then the Maternit21 and recommended by my Dr if I choose not to do an amino which is his #1 recommendation for me. I'm 38 and Dh is 50 is we have increase for a lot of issues. I have to reach my deductible first before it's covered by the lab has a special pricing so people don't have to pay thousands of dollars.

nda_roxybabe · February 2019

I think last time it costs me under $100. I'd like to do it again this time if just for seeing the baby. I'll ask about it at my 10w appointment today and schedule.

nomangos23 · February 2019

@chichiphin @kgg2241 From experience - it's worth the $300 if you're able. Honestly though, the US scan told us more than the blood work.

MsBeachNJ · February 2019

We did the progenity test, and will have the scan at 12 weeks. For the progenity, we have Aetna insurance. My doctor told me that they are notorious for not covering it and people have gotten astronomical bills (even though I am over 35, I guess Progenity tests for more genetic abnormalities than other tests do so they don't feel it is necessary?) so what they told me to do was to have my blood draw taken at my OB's office & they would send it to a lab that partners with Progenity and I likely wouldn't get any type of bill at all as Progenity wants the test to be accessible to all. I've gotten my results back, but I haven't seen any type of bill yet, so I'll update if I do receive one!

chichiphin · February 2019

I've decided to suck it up and pay the 299. I was assured that the maternT21 "questionnaire" you fill out to get the discount would NOT be tied to my results. I will be double-checking that though.

satuttle1014 · February 2019

My insurance never covers the NIPT test. I’m considering going to a boutique that does the blood test near me for $150, better than $300-$400. Deciding if I want to do it or not. This is my last one so I don’t want to wait until the anatomy scan.

justhereforthemusic · February 2019

I had my blood drawn for the Innatal test yesterday at 10w2d. They promised me that I will get a heart-attack inducing EOB from insurance but that they will work with me so I can pay a reasonable amount. This science is so amazing - def wasn’t around when I was pregnant with DS 10+ years ago!

chichiphin · February 2019

Figure I better update on here. Possible **TW** ahead.

Our NT scan showed a cystic hygroma at 7mm from the neck to the top of the skull, essentially fluid under the skin. We immediately met with a MFM in perinatal who explained our outcomes are not in our favor. Essentially 50% likelihood of a major chromosomal issue, 47-49% likelihood of another “abnormality”, and 1-3% likelihood of a normal outcome. The likelihood of miscarriage regardless of Dx is also very high. They took bloodwork for materniT21 yesterday morning and we have a genetic counseling appt on Monday and a repeat U/S on the 13th. We are in shock and aren’t sure what the future holds, except that we have to make some massive, heart wrenching decisions in the near future.

MsBeachNJ · February 2019

@chichiphin I am so sorry to hear this, you must be so stressed! You will be in my prayers

eller-2 · February 2019

@chichiphin, I am so sorry you are going through this. I have not been through exactly what you are going through, but (in our first pregnancy a few years ago) I received totally unexpected NIPT results - never even considered that I'd be that small fraction of a percent - that were later confirmed through a CVS, so I know some of the emotions you and your husband are probably feeling. I'm so sorry; it's so hard to have your life (and expectations) rocked in this way (and especially while you wait for certainty and imagine all the unknowns). So many hugs. I will be thinking of you while you wait for more information.

RedBreast35 · February 2019

@chichiphin Oh no, I'm so sorry you're facing this. Sending you love and strength for the next few weeks

nomangos23 · February 2019

@chichiphin more big big hugs

lillywonderland · February 2019

@chichiphin Sending you some more love and strength for the tough days ahead. I wish we lived closer so I could give you the biggest hug IRL. Remember that whatever decision you and YH make together, it is the right one for your family. Don’t let anyone make you believe otherwise. Love you so much, friend. ❤️

septoctkids · March 2019

@chichiphin Sending prayers your way. We are here for you. ❤️

galentine · March 2019

Lurking from October.

@chichiphin, I'm so very sorry for this heartbreaking news. Thinking of you ❤❤❤

blitzybee · March 2019

@chichiphin I’m so sorry for what you are going through. Sending more love your way.

janat1717 · March 2019

@chichipin Praying for your whole family

zuuls_mom · March 2019

@chichiphin my stomach dropped when I saw your post. I am so sorry. I am thinking of you and saying prayers. Sending so much love your way.

kels0091 · March 2019

Lurking

@chichiphin
I am so sorry for you and your husband. Sending all the love and thoughts to you both. ❤️

kbrown2385 · March 2019

Lurking

@chichiphin I’m so sorry you are having to deal with this. Sending all the strength and love to you and your husband ❤️

b_1029 · March 2019

@chichiphin I’m so sorry you and YH are going through this. Sending lots of prayers and love your way ❤️

emeraldduchess · March 2019

*Lurking*
@chichiphin I am so sorry for what you and your H are going through. Sending you love, and hugs. You will be in my thoughts. 💜

chichiphin · March 2019

I appreciate all of your words so much ❤️❤️❤️

brookert615 · March 2019

*lurking*

@chichiphin So sorry you and YH are going through this. Sending all the love, strength, and prayers your way! ❤️❤️❤️

marebear15 · March 2019

*lurking*
@chichiphin - My heart dropped when I read your post. I'm so so sorry that you and YH are going through this. My prayers are with you.

inthewoods23 · March 2019

*lurking*

@chichiphin so sorry for this heartbreaking news. Lots of internet hugs to you and YH!

lcking82 · March 2019

*lurking* @chichiphin: so many thoughts for you right now. Hoping for answers, wisdom, and peace.

misshelen86 · March 2019

*lurking @chichiphin Sorry to hear this news. My thoughts are with you and YH. Sending you so much strength to get through these next difficult days

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