Yayyyy to read that it discharge is in site for the girls and hopefully Matthew soon! You guys are seriously my heroes!! It gives me all the feels coming here and checking up on the nicu babes!!
@wildrainbow Oh my goodness, what an exciting update! Matthew is just doing amazing. So proud of him! I think I'll be just as scared once they start talking release of Sydney. After seeing your baby hooked up to so many machines, it's hard to think of them not needing it anymore. @highsteaks Sending so many good vibes your way that Elise passes her carseat test! That's so great that the doctors are working with you so you can get both babies home on the same schedule. I can imagine you're feeling all sorts of nerves, but you will do awesome. Good luck tomorrow night!
AFM- We got to feed Sydney breastmilk today with a bottle! She had 12ccs in the bottle and drank 8. I'm so happy and impressed. The remaining 4 she got via a tube. That was 3 hours ago so we're about to feed her again. She is doing AWESOME today and I'm just ecstatic. They took her off the fentanyl so she's so alert and happy, not in any pain. She's off her cannula too! All in all, just leaps and bounds better today and we couldn't be happier.
@highsteaks We haven't called to check on him yet today. Slowly trying to work up the gumption to get moving. When I called at 4:30 this morning, he was on half a liter still. They are trying to wean him off since just coming off isn't working. We will be up there for his 11 o'clock feed. Hopefully, we can get a better idea of when to expect him home.
@wildrainbow Hopefully he gets off the oxygen soon! Crossing my fingers for you guys.
AFM- more progress today! They turned off the warmer and now she's wrapped in blankets instead. The nurse said we can probably move her to a crib tonight! Yesterday they took her odd the cannula for a while, but her oxygen kept dropping just a tad, so they put it back in with 1 liter. Today she's on half a liter. For feeds, she's now taking 25ccs with a bottle. The nurse said overnight she was taking the whole bottle and didn't need the feeding tube!
Yesterday the NP said she had "a ways to go" before release, so it's reassuring to see some progress every day.
Right now she has an arterial line and we're not allowed to hold her til it's out, hopefully in the next few days.
Just kidding! We did get to hold her today. H got to hold her and give her a bottle. BUT we royally pissed her off by moving her around. She has been extra fussy since then and her BP and HR keep spiking. Whoops. I guess we'll keep her in her bed next time.
So, I had a minor heart attack tonight. The NP from NICU called me and I almost panicked that something was wrong with Matthew. She was calling to go over his echo. He had to have a repeat echo because of a blood vessel that normally disappears after birth is still present and open. They noticed it was still there and that the vessels leaving his heart are small/narrow. She said that it's all normal for some babies born preterm. We just have to follow up with the cardiologist in 6 to 8 weeks. Other than that, he is doing ok. He's back up to 1 liter and around 23% oxygen. I feel like we took a giant leap backward and I'm legit wondering if we will get out of NICU before his due date. I'm so tired. Emotionally, physically, mentally, I am worn out to my marrow. I'm trying not to worry about the echo and future ramifications of his heart. I won't lie, this has not been the best week so far. I'm gonna need a huge step forward to get some positivity back. Right now, I'm feeling a little defeated.
@wildrainbow Oh girl, I am so sorry for the setback. It's so frustrating when you see them making progress and then they go backwards. I'm so hopeful that the heart issue will go away in its own and that you don't have to worry about it one bit. Keep us updated on his progress today. We're here for you through thick and thin no matter what. Give that boy a talking to today and tell him it's time to come home!
@wildrainbow - I'm so sorry for the setback. Did the NP say whether she thought the narrowed vessels and needing to still be on oxygen were related? Praying for you and your sweet boy and I hope he can get back off the oxygen soon and his follow up with cardiology shows everything looks the way it should in 6-8 weeks.
*TW*
Me:35 DH:35 Dx: PCOS DS1 born 11/2014 DS2 born 11/2018 3 previous losses Rainbow babydue 12/2021 - Team Green
@wildrainbow stay strong momma I'm so sorry for the setback. Hope he has amazing progress soon
BFP 3/21/2020! OMG We're having TWINS! 4/17/2020 -------------------------------- LO arrived 11/9/2018! We have a baby! -------------------------------- Me: 33 | DH: 41 Married: March 2016 TTC #1/IUD out January 2017 PCOS dx January 2018 Medicated cycle 2.5mg Letrozole CD3-7 February 2018 BFP 3/10/2018! -------------------------------
TTGP December Siggy Co-Winner: Favorite Moments from Holiday Movies/TV
Question for you guys. How much time do you spend at the NICU compared to the time you spend at home with your older children? I feel like I'm constantly juggling my time and struggling to not feel guilty about it. When I'm with DD1 I'm always thinking about Sydney and feeling bad I'm not there. When I'm with Sydney I feel bad that I'm not with DD1 who recognizes my absence. We spend most of the daytime at the NICU while DD1 is at school, then go home in the late afternoon/evening. But then I feel guilty for not staying the night with Sydney at the NICU. I do what I can with Sydney while I'm there but I don't know. I just worry she's not going to know who I am since we don't stay all day long. But I don't have the energy to stay there all day. Sorry for the novel. I guess I'm just looking for some reassurance.
hi @offtoneverland! yes the girls were finally discharged together wednesday!
the last hurdle before discharge, the car seat test, was quite the saga for us. truly, this is the truncated version of a very long story:
—elise failed her third (and suppose to be last) shot, but i pleaded for a hail mary by suggesting we remove the head positioning pillow and try one more time. everyone was very very VERY hesitant to allow us (reminding me again and again that even the third attempt was usually more than they allowed), but i convinced the right person. with the blessing of her neonatologist and some rolled blanket finagling from OT, elise and i tried a final FINAL time at just past midnight and hallelujah she passed at 1:30am!!! —simultaneously, emilia was trying her second car seat test attempt during elise’s fourth try, and not surprisingly emilia failed. with her seat, the head positioner could not be removed and the way the no-rethread harness was designed was pushing her head chin to chest (cutting her airway off). there was no way to help that. at 7am i texted my dh an update and convinced him that getting a whole new carseat for emilia might be the key to avoiding a third fail. he went to target at 8am, bought a different carseat to my specifications, then brought it over to the hospital. we had to do another re-training with OT since it was a new seat. during that re-training, emilia had another oxygen desaturation and i knew we were f*ed before the test even started—after we just bought another $$$ carseat. so after OT left, i positioned her as perfectly as i could, gave her a good pep-talk about taking nice deep breaths, and her nurse legit did a prayer over her. during the test, her entire nicu team stopped by, one by one every so often, to check for updates—her doctors, nurse practitioners, other nurses, interns, even the person on duty who cleaned the room. the whole floor was very aware of my girls’ car seat saga and everyone was invested in it lol. not only did she pass the test, but she passed it with better stats than her sister! we were last in line of 5 families to be discharged on wednesday. on top of that, there happened to be a perfect storm of events that slowed down the staff from getting through all the steps required before we could go. we didn’t get released until 5pm. got home right as ToTing was starting. we tried to make the re-introductions of the girls and dd1 as calm as could be given the circumstances. dd1 was enamored with them and we almost didn’t go ToTing because she didn’t want to leave them. but, we convinced her that she should go and took her out for about 40minutes while grandma watched the babies. i’m so glad we made it back in time to do that because it was so so much fun taking dd1 ToTing for the first real time!
the transition home since that night has gone better than expected, but I haven’t gotten any downtime yet. i feel like The Flash when i’m getting stuff done between care times and pumping. so thankful that the nicu staff had established a good routine that’s been manageable at home. they sleep ok and so far take turns fussing. unfortunately dd1 came down with something yesterday so it’s been tough trying to make sure she doesn’t get the babies sick too in her enthusiasm for trying to be with them. i am exhausted! there is so much more to the story that i wish i had the energy to type out for posterity, but i’m way too tired. my apologies for no participating as much lately.
@offtoneverland sounds like our nicu schedules were the same. i’d go in the morning right after preschool drop off, and i’d try to be home for dinner and bedtime. sometimes i’d make it and sometimes i had late nights. it’s probably different for us because my girls were in nicu for being preemie and small, but i didn’t worry about trying to establish a bond with them—don’t get me wrong, i went there to care for them, but i always thought that the less i unnecessarily fuss with them the better off they were because they needed the rest to grow. honestly, between the two of them and the strict care time schedule, they probably only saw me while awake maybe one or 1.5 hours each a day.
@highsteaks Hooray for being home! I'm sure things are hectic getting used to having twins, but I hope you get into the swing of things quickly. That's incredible that the staff at your hospital was so supportive of you during the car seat tests and helped you guys get home to be a family together. I'm so happy for you!
Thanks for responding about your NICU schedule. It helps out have some perspective from someone who's been in the same place, because I'm constantly worrying that I'm doing something wrong. It's hard to balance. You're right, I try not to fuss with Sydney too much because she's been messed with and poked so much that sometimes it makes her grouchy. We got to hold her a lot yesterday though which was wonderful, and she did great!
@highsteaks YAY for the girls being home! What fantastic news
BFP 3/21/2020! OMG We're having TWINS! 4/17/2020 -------------------------------- LO arrived 11/9/2018! We have a baby! -------------------------------- Me: 33 | DH: 41 Married: March 2016 TTC #1/IUD out January 2017 PCOS dx January 2018 Medicated cycle 2.5mg Letrozole CD3-7 February 2018 BFP 3/10/2018! -------------------------------
TTGP December Siggy Co-Winner: Favorite Moments from Holiday Movies/TV
So, I've been a ball of nerves the last few days. Matthew has been off oxygen since 6pm Thursday night. He's getting circumcised today!! If all continues to go well, we may get to room in tomorrow night. Guys, my baby is this close to coming home. After 19 days, there is a light at the end of the tunnel, finally.
Y'all, we are home! We had our room in last night, and I'm exhausted, but it went well. Right now, he's sleeping in the RNP, and I'm so happy. Ds1 was so excited about him being home. He came right up and gave him a hug and a kiss. It was precious!
@wildrainbow Sydney is doing pretty well. She's been off the cannula for about 48 hours now and has been doing good. Hooray! Now she just needs to learn to eat better. We met with the occupational therapist today to help assess her eating. The OT moved her to the very very slow flow nipple for now because she's having trouble coordinating all the movements needed to drink and swallow. She did really well on the new nipple! We also learned yesterday that Sydney has hydronephrosis--it turns out that both her kidneys developed abnormally in utero. The place where the urine collects in the kidney is larger than it should be, and the ureter which passes urine to the bladder is too large, so urine kind of reverses from the bladder back into the kidney. But it really isn't a huge concern, she should be totally fine but may get frequent infections. If that's the case, she may need another surgery later in life. But we're waiting to hear from the urologists to see what they think. So really interesting to learn that she had two separate issues--the hematoma and the abnormal kidneys. This girl is barely 2 weeks old and already a handful! But anyways, we should be going home as soon as she learns to eat reliably. Sorry for the novel.
@offtoneverland emilia has hydronephrosis too. the neonatologist mentioned it before discharge and said that her good kidney looks enlarged, but gave a cursory diagnosis. we have an appointment with the pediatric nephrologist on friday to figure out next steps for everything. she’s been on amoxicillin since just after birth to support her good kidney. i’m sad your Sydney is going through kidney problems too.
@highsteaks Sydney is on antibiotics too for the time being. Sorry to hear about Emilia's hydronephrosis as well. It's good that she seems to be doing well regardless though and it gives me hope that we will see a discharge in our future soon! I was researching hydronephrosis and it actually seems to be pretty common, so that helps me realize we're not in this alone. Good luck at the appointment on Friday! Let me know how it goes.
@offtoneverland when i spoke to the nephrologist over the phone a few months ago, he said that he only sees reflux so severe or persistant that it needs major surgical intervention in maybe only 5% of his patients. hope that gives you some reassurance like it does me.
@highsteaks Out of curiosity, did they diagnose Emilia's hydronephrosis during the anatomy scan? The weird thing about all of this is that none of Sydney's issues were seen during the anatomy scan! I know they're not perfect and her issues may have developed later, but it's still fairly frustrating.
@offtoneverland the hydronephrosis was only seen at a renal ultrasound two-ish weeks after emilia’s birth. she had an ultrasound right after birth as well and nobody mentioned hydronephrosis (that i can recall) at that time.
it’s my understanding that hydronephrosis is a symptom/result of her multicystic dysplastic kidney— her (right, i think) kidney is full of cysts that formed during the first half of my pregnancy, and is completely useless. they discovered the multicystic dysplastic kidney at the anatomy scan. the other kidney looked as normal as they could tell at the scan and all other prenatal ultrasounds that looked at it. the nephrologist (during our phone convo) said that the healthy kidney will naturally enlarge over time to compensate for the bad kidney not doing its job. what he will look out for periodically is reflux, that back-up of urine in the good kidney which (like you know) can also cause enlargement and potentially infection. so, the kidney enlargement in emilia’s case could be either the good kidney doing what it should be doing (compensatory), or hydronephrosis as the neonatologist thinks. hopefully we’ll find out for sure on friday.
sorry that’s more info than you asked for, but just wanted to clarify any differences between emilia’s case and Sydney’s case so you can make sense of it all.
@highsteaks Thank you for all the information! Our girls are a lot alike! Not in the exact same ways, but they both have one functioning kidney. A friend of mine has a daughter with one functioning kidney as well because she has cysts in her other kidney like Emilia does. Hopefully Emilia does not actually have hydronephrosis, but if she does, at least it does not sound like a huge deal. I would of course prefer that our girls had normal kidneys, but I'm thankful it's not a major life changing problem.
Question for you and @wildrainbow about eating...Did any of your babies have problems learning to eat? Sydney has been getting breastmilk for like 1.5 weeks now via bottle and she's still having trouble. She's just tired a lot, so sometimes she'll drink some of her bottle and other times she won't drink any. She has never drank the whole bottle. We did bf yesterday for the first time for about 10 minutes. They feed her every 3 hours around the clock in the NICU. I asked the NP this morning if we could do a different schedule if she's too sleepy and not hungry, but they said no. They said if she's not hungry, we'll just put the milk through her tube. But I'm feeling so frustrated today. The only thing keeping us here is her eating. So if we keep just putting it down her nose we're never going to get out of here. What did you guys do to get your kids to eat? I just want to be done at the NICU and I don't understand why they have to feed her every 3 hours if she's not hungry. I want to go home
Re: The NICU Thread
@highsteaks Sending so many good vibes your way that Elise passes her carseat test! That's so great that the doctors are working with you so you can get both babies home on the same schedule. I can imagine you're feeling all sorts of nerves, but you will do awesome. Good luck tomorrow night!
AFM- We got to feed Sydney breastmilk today with a bottle! She had 12ccs in the bottle and drank 8. I'm so happy and impressed. The remaining 4 she got via a tube. That was 3 hours ago so we're about to feed her again.
She is doing AWESOME today and I'm just ecstatic. They took her off the fentanyl so she's so alert and happy, not in any pain. She's off her cannula too! All in all, just leaps and bounds better today and we couldn't be happier.
DD1: 8/2014
TTC #2: 6/2017
BFP 8/3/2017 | CP 8/4
BFP 10/16/2017 | CP 10/21
BFP 12/18/2017 | CP 12/28
BFP 2/15/2018 | EDD: November 2nd | It's a girl!
DD2: 10/2018
AFM- more progress today! They turned off the warmer and now she's wrapped in blankets instead. The nurse said we can probably move her to a crib tonight! Yesterday they took her odd the cannula for a while, but her oxygen kept dropping just a tad, so they put it back in with 1 liter. Today she's on half a liter. For feeds, she's now taking 25ccs with a bottle. The nurse said overnight she was taking the whole bottle and didn't need the feeding tube!
Yesterday the NP said she had "a ways to go" before release, so it's reassuring to see some progress every day.
Right now she has an arterial line and we're not allowed to hold her til it's out, hopefully in the next few days.
DD1: 8/2014
TTC #2: 6/2017
BFP 8/3/2017 | CP 8/4
BFP 10/16/2017 | CP 10/21
BFP 12/18/2017 | CP 12/28
BFP 2/15/2018 | EDD: November 2nd | It's a girl!
DD2: 10/2018
DD1: 8/2014
TTC #2: 6/2017
BFP 8/3/2017 | CP 8/4
BFP 10/16/2017 | CP 10/21
BFP 12/18/2017 | CP 12/28
BFP 2/15/2018 | EDD: November 2nd | It's a girl!
DD2: 10/2018
Keep us updated on his progress today. We're here for you through thick and thin no matter what. Give that boy a talking to today and tell him it's time to come home!
DD1: 8/2014
TTC #2: 6/2017
BFP 8/3/2017 | CP 8/4
BFP 10/16/2017 | CP 10/21
BFP 12/18/2017 | CP 12/28
BFP 2/15/2018 | EDD: November 2nd | It's a girl!
DD2: 10/2018
Dx: PCOS
DS1 born 11/2014
DS2 born 11/2018
3 previous losses
Rainbow baby due 12/2021 - Team Green
--------------------------------
LO arrived 11/9/2018! We have a baby!
--------------------------------
Me: 33 | DH: 41
Married: March 2016
TTC #1/IUD out January 2017
PCOS dx January 2018
Medicated cycle 2.5mg Letrozole CD3-7 February 2018
BFP 3/10/2018!
-------------------------------
Try to get some rest and keep your head up, you've got this.
● IUI #2: BFP - early M/C
● IUI #3: BFN
● IUI #4: BFN
● IVF/FET #1 (2 transferred): BFP! TWINS!
● FET #2 (1 transferred): BFP! BOY #3!
● Natural #1: BFP - M/C @ 8 weeks
● Natural #2: BFP - M/C @ 5w5d
@wildrainbow How are things? How is Matthew?
Question for you guys. How much time do you spend at the NICU compared to the time you spend at home with your older children? I feel like I'm constantly juggling my time and struggling to not feel guilty about it. When I'm with DD1 I'm always thinking about Sydney and feeling bad I'm not there. When I'm with Sydney I feel bad that I'm not with DD1 who recognizes my absence.
We spend most of the daytime at the NICU while DD1 is at school, then go home in the late afternoon/evening. But then I feel guilty for not staying the night with Sydney at the NICU.
I do what I can with Sydney while I'm there but I don't know. I just worry she's not going to know who I am since we don't stay all day long. But I don't have the energy to stay there all day.
Sorry for the novel. I guess I'm just looking for some reassurance.
DD1: 8/2014
TTC #2: 6/2017
BFP 8/3/2017 | CP 8/4
BFP 10/16/2017 | CP 10/21
BFP 12/18/2017 | CP 12/28
BFP 2/15/2018 | EDD: November 2nd | It's a girl!
DD2: 10/2018
hi @offtoneverland! yes the girls were finally discharged together wednesday!
the last hurdle before discharge, the car seat test, was quite the saga for us. truly, this is the truncated version of a very long story:
—simultaneously, emilia was trying her second car seat test attempt during elise’s fourth try, and not surprisingly emilia failed. with her seat, the head positioner could not be removed and the way the no-rethread harness was designed was pushing her head chin to chest (cutting her airway off). there was no way to help that. at 7am i texted my dh an update and convinced him that getting a whole new carseat for emilia might be the key to avoiding a third fail. he went to target at 8am, bought a different carseat to my specifications, then brought it over to the hospital. we had to do another re-training with OT since it was a new seat. during that re-training, emilia had another oxygen desaturation and i knew we were f*ed before the test even started—after we just bought another $$$ carseat. so after OT left, i positioned her as perfectly as i could, gave her a good pep-talk about taking nice deep breaths, and her nurse legit did a prayer over her. during the test, her entire nicu team stopped by, one by one every so often, to check for updates—her doctors, nurse practitioners, other nurses, interns, even the person on duty who cleaned the room. the whole floor was very aware of my girls’ car seat saga and everyone was invested in it lol. not only did she pass the test, but she passed it with better stats than her sister!
we were last in line of 5 families to be discharged on wednesday. on top of that, there happened to be a perfect storm of events that slowed down the staff from getting through all the steps required before we could go. we didn’t get released until 5pm. got home right as ToTing was starting. we tried to make the re-introductions of the girls and dd1 as calm as could be given the circumstances. dd1 was enamored with them and we almost didn’t go ToTing because she didn’t want to leave them. but, we convinced her that she should go and took her out for about 40minutes while grandma watched the babies. i’m so glad we made it back in time to do that because it was so so much fun taking dd1 ToTing for the first real time!
the transition home since that night has gone better than expected, but I haven’t gotten any downtime yet. i feel like The Flash when i’m getting stuff done between care times and pumping. so thankful that the nicu staff had established a good routine that’s been manageable at home. they sleep ok and so far take turns fussing. unfortunately dd1 came down with something yesterday so it’s been tough trying to make sure she doesn’t get the babies sick too in her enthusiasm for trying to be with them. i am exhausted! there is so much more to the story that i wish i had the energy to type out for posterity, but i’m way too tired. my apologies for no participating as much lately.
Thanks for responding about your NICU schedule. It helps out have some perspective from someone who's been in the same place, because I'm constantly worrying that I'm doing something wrong. It's hard to balance. You're right, I try not to fuss with Sydney too much because she's been messed with and poked so much that sometimes it makes her grouchy. We got to hold her a lot yesterday though which was wonderful, and she did great!
DD1: 8/2014
TTC #2: 6/2017
BFP 8/3/2017 | CP 8/4
BFP 10/16/2017 | CP 10/21
BFP 12/18/2017 | CP 12/28
BFP 2/15/2018 | EDD: November 2nd | It's a girl!
DD2: 10/2018
DD1: 8/2014
TTC #2: 6/2017
BFP 8/3/2017 | CP 8/4
BFP 10/16/2017 | CP 10/21
BFP 12/18/2017 | CP 12/28
BFP 2/15/2018 | EDD: November 2nd | It's a girl!
DD2: 10/2018
--------------------------------
LO arrived 11/9/2018! We have a baby!
--------------------------------
Me: 33 | DH: 41
Married: March 2016
TTC #1/IUD out January 2017
PCOS dx January 2018
Medicated cycle 2.5mg Letrozole CD3-7 February 2018
BFP 3/10/2018!
-------------------------------
DD1: 8/2014
TTC #2: 6/2017
BFP 8/3/2017 | CP 8/4
BFP 10/16/2017 | CP 10/21
BFP 12/18/2017 | CP 12/28
BFP 2/15/2018 | EDD: November 2nd | It's a girl!
DD2: 10/2018
Dx: PCOS
DS1 born 11/2014
DS2 born 11/2018
3 previous losses
Rainbow baby due 12/2021 - Team Green
DD1: 8/2014
TTC #2: 6/2017
BFP 8/3/2017 | CP 8/4
BFP 10/16/2017 | CP 10/21
BFP 12/18/2017 | CP 12/28
BFP 2/15/2018 | EDD: November 2nd | It's a girl!
DD2: 10/2018
We also learned yesterday that Sydney has hydronephrosis--it turns out that both her kidneys developed abnormally in utero. The place where the urine collects in the kidney is larger than it should be, and the ureter which passes urine to the bladder is too large, so urine kind of reverses from the bladder back into the kidney. But it really isn't a huge concern, she should be totally fine but may get frequent infections. If that's the case, she may need another surgery later in life. But we're waiting to hear from the urologists to see what they think.
So really interesting to learn that she had two separate issues--the hematoma and the abnormal kidneys. This girl is barely 2 weeks old and already a handful!
But anyways, we should be going home as soon as she learns to eat reliably.
Sorry for the novel.
DD1: 8/2014
TTC #2: 6/2017
BFP 8/3/2017 | CP 8/4
BFP 10/16/2017 | CP 10/21
BFP 12/18/2017 | CP 12/28
BFP 2/15/2018 | EDD: November 2nd | It's a girl!
DD2: 10/2018
Good luck at the appointment on Friday! Let me know how it goes.
DD1: 8/2014
TTC #2: 6/2017
BFP 8/3/2017 | CP 8/4
BFP 10/16/2017 | CP 10/21
BFP 12/18/2017 | CP 12/28
BFP 2/15/2018 | EDD: November 2nd | It's a girl!
DD2: 10/2018
DD1: 8/2014
TTC #2: 6/2017
BFP 8/3/2017 | CP 8/4
BFP 10/16/2017 | CP 10/21
BFP 12/18/2017 | CP 12/28
BFP 2/15/2018 | EDD: November 2nd | It's a girl!
DD2: 10/2018
it’s my understanding that hydronephrosis is a symptom/result of her multicystic dysplastic kidney— her (right, i think) kidney is full of cysts that formed during the first half of my pregnancy, and is completely useless. they discovered the multicystic dysplastic kidney at the anatomy scan. the other kidney looked as normal as they could tell at the scan and all other prenatal ultrasounds that looked at it. the nephrologist (during our phone convo) said that the healthy kidney will naturally enlarge over time to compensate for the bad kidney not doing its job. what he will look out for periodically is reflux, that back-up of urine in the good kidney which (like you know) can also cause enlargement and potentially infection. so, the kidney enlargement in emilia’s case could be either the good kidney doing what it should be doing (compensatory), or hydronephrosis as the neonatologist thinks. hopefully we’ll find out for sure on friday.
sorry that’s more info than you asked for, but just wanted to clarify any differences between emilia’s case and Sydney’s case so you can make sense of it all.
Question for you and @wildrainbow about eating...Did any of your babies have problems learning to eat? Sydney has been getting breastmilk for like 1.5 weeks now via bottle and she's still having trouble. She's just tired a lot, so sometimes she'll drink some of her bottle and other times she won't drink any. She has never drank the whole bottle. We did bf yesterday for the first time for about 10 minutes.
They feed her every 3 hours around the clock in the NICU. I asked the NP this morning if we could do a different schedule if she's too sleepy and not hungry, but they said no. They said if she's not hungry, we'll just put the milk through her tube. But I'm feeling so frustrated today. The only thing keeping us here is her eating. So if we keep just putting it down her nose we're never going to get out of here. What did you guys do to get your kids to eat? I just want to be done at the NICU and I don't understand why they have to feed her every 3 hours if she's not hungry. I want to go home
DD1: 8/2014
TTC #2: 6/2017
BFP 8/3/2017 | CP 8/4
BFP 10/16/2017 | CP 10/21
BFP 12/18/2017 | CP 12/28
BFP 2/15/2018 | EDD: November 2nd | It's a girl!
DD2: 10/2018