April 2018 Moms

Randoms- Week of 1/15

24

Re: Randoms- Week of 1/15

  • @JJMNO1616 - glad the shower was good! Sorry your dad and SM are stressing you out. It sounds like you know what you want to have (not) happen, but communicating that is definitely tough!
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  • @JJMNO1616 ugh... that sounds rough. Because you’re right: that’s a terrible time for visitors who you are not 100% comfortable with, but I can also see your stepmom turning it into a huge drama. Any reasonable person should be able to understand why it’s not a good time to visit if they’ve been through it or can even think rationally about it. Hopefully your dad will at least be able to understand where you’re coming from and suggest an alternate time to visit.
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  • Guys I am kinda freaking out. I called the doctor's office to check on my amnio results. The nurse came back on and said that the doctor does have some information for me, but doesn't want to feel rushed talking to me. So will call after 4....
  • @sparklingdiamond I'm so sorry you have to wait that long to get more information. I'm thinking of you. 
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  • Oh @sparklingdiamond, I hope you get a call back soon and that it is good news. I’m sure it’s a very difficult wait, though. Thinking of you!
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  • @sparklingdiamond I'm thinking of you and I hope the doctor calls asap. 

  • @sparklingdiamond omg that made me gasp. I pray it's nothing serious and he/she just wasn't thinking when they responded.

    Please keep us posted if you can.
    Proud mama-llama of 2

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  • @sparklingdiamond I hope it's good news.  Thinking of you.

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  • @sparklingdiamond that nurse has terrible phone bedside manner!! Thinking of you! 
  • @sparklingdiamond - get a pen and paper ready for when you get the call. Praying it’s good news!
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  • I’m sorry, @sparklingdiamond, that is beyond stressful! Sending T&Ps. 
  • @sparklingdiamond
    Waiting is the worst part.  Thinking of you and hoping for good news.  
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  • @sparklingdiamond Stalking you and hoping for a good update  <3<3
  • @sparklingdiamond sending positive vibes your way - hope that just means results are good and the doc wanted to talk through them with you personally and leave time for your questions! 
    Me: 31  DH: 32
    Married: 10/3/15 
    TTC: May 2017
    BFP: 7/20/17
    EDD: 3/29/18
  • It's mosiacism of trisomy 15. So some of the cells have a third copy but some are normal. We are still waiting on the percentage of abnormal vs normal but that still won't tell us anything really. It's a rare condition so not a lot is known and outcomes are hard to predict. Even with the percentage of cells, it won't tell us which organs may be affected because different organs can be affected in different percentages. 

    My MFM suggests we meet with a geneticist who can possibly give us more information but probably not a ton since it's so rare. She also called and spoke with Dr Kays and said that he said he might be more inclined to not do the surgery since the outcome could be affected by this but that we obviously are still welcome to go there. I think his concern is just that this will somehow complicate things in a way we can't predict and then we won't be around family if something goes wrong. 

    I don't really know how to process this or what to do.
  • @sparklingdiamond I had to Google that. I am sorry for your news. If its so rare would there be any doctor's in your area that deals with mosiacism of trisomy 15?
  • @sparklingdiamond lots and lots of prayers for you, Jasmine, and your family. 
  • I’m so sorry to hear this @sparklingdiamond I hope you can get more information and I hope that you get good guidance from your doctors. I’m sending lots of positive thoughts your way. 
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  • @fancybelmont I ask at my appointment today about TDAP. It was a nurse practitioner and she wasn't sure so she looked it up on the CDC and they recommend every 10 years. She also said that pregnant women get it every pregnancy because it is for the baby to help their immune system against it when they are born. 
  • @sparklingdiamond I'm so sorry for the news. I hope a genetic counselor can at least help aid in your next steps. Sending t&p to you and your family. 
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  • @sparklingdiamond I’m so sorry, I’ve been rooting so hard for you to hear some good news and this seems like yet another roadblock to overcome. I’m glad there seems to be room for much hope, and I’ll be sending you all the positive vibes be got in the meantime <3
  • So sorry for the news @sparklingdiamond - really hoping the genetic counselor has more info for you that will hopefully bring some comfort and next steps. You are incredibly strong and we are all rooting for you, H and baby girl. 
    Me: 31  DH: 32
    Married: 10/3/15 
    TTC: May 2017
    BFP: 7/20/17
    EDD: 3/29/18
  • @sparklingdiamond I am so sorry to hear about your news. I hope they are able to connect you with the right people with some helpful information for you. We are all thinking of you and are here for you 
  • Oh gosh @sparklingdiamond I’m so sorry that you didn’t get the best news today and are once again in limbo. I hope the genetic counselor is able to answer some more of your questions then the MFM could. You and Jazmine are both such fighters and we are all here rooting for you so hard.  <3
  • @sparklingdiamond I am so sorry you got this news and for all the uncertainty it is sure to bring. I hope a genetic counselor can bring you more clarity in what the situation is, exactly, and what the best course of action would be for your sweet baby girl. We are all rooting for you and Jasmine; please lean on us in any way you need during this difficult time.
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  • @sparklingdiamond i am so very sorry for the news. Did the doctor say anything about a timeline for the percentages of normal/abnormal cells? Besides generic counseling did he/she have any other insights or advice to share? I know there isn't a lot of information available on mosiacism of trisomy 15 so perhaps not. I do agree w @fancybelmont - from what i did read there are varying degrees so i wouldn't give up all hope. So many prayers and love for you right now!
    Proud mama-llama of 2

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  • Sending you love and strength as you process everything right now @sparklingdiamond. So many hugs momma  <3<3<3
  • @sparklingdiamond - I’m so sorry for the news. You and Jasmine are fighters. Still praying for the best possible outcome.
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  • @sparklingdiamond I know that wasn't the news you were hoping for. You have really shown such strength these past few weeks. I really hope someone, whether it be your MFM or a genetic counselor, can provide you with enough answers to come up with some next steps and a game plan that will give you and your family some peace.
  • @sparklingdiamond I've had you both in my thoughts and prayers and Im so sorry youve have another challenge in yalls path today. I hope the meeting with the geneticist is able to give you more information and clarity. Rooting for you guys so hard.
  • @sparklingdiamond I have no advice but I'm sorry you got this news and I have been thinking of you!
  • @sparklingdiamond I've been wondering when you would get an update from your doctor. I've been thinking about you often.  I am so sorry Praying for your baby girl right now. 


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  • I’m so sorry for the bad news, @sparklingdiamond. I hope the genetic counselor can give you more answers. Still sending prayers to you, baby Jasmine, and family for the best possible outcome. 
  • @sparklingdiamond so sorry it wasn't the news you wanted.  Still thinking of you and sending all the good vibes I can to you and your family. 

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