TTCAL Week of 1/8

ccvslp · January 2018

The blows keep on coming. My labs are in. Progesterone was 10. Nurse said that was fine. That seems low to me?

And more concerning... I'm compound heterozygous MTHFR. I have the "c" copy and the "a" copy both. The nurse said being heterozygous "wasn't bad and it was good news, YAY" ------ UM...... anything I've found about being COMPOUND heterozygous is not good... like the most impactful variance... like you'll probably need blood thinners and maybe a hematologist in general for stroke and heart disease risk. My OB's office is clearly not on the up and up here. I'm feeling devastated by this. PCOS AND a thin lining AND compound het MTHFR. I feel like maybe I'm not meant to carry children. I don't know how those things layered over each other are something we can overcome and I just don't want to keep going through this.

I feel awful coming in here and immediately being a mess. I'm just feeling really hopeless right now.

dpjennifer · January 2018

ccvslp Sorry you've gotten a lot of unfavorable results. It's a lot all at one time. I guess just try not to feel too hopeless. At least you have some answers. Now that you know what the problem is, you can get some specialists who will work with you and talk to you about your options. Don't give up hope yet. Knowing what the problem is should allow you to get some actual concrete information about your chances and options!

Mack2342 · January 2018

@ccvslp sorry the blows keep coming. I hope that RE appts can shed some light on things for you and come up with a game plan that you feel comfortable with.

vlagrl29 · January 2018

@ccvslp - sorry for all of this. I had a Prog level of 9 the month after our loss. I was told it was fine. I had it retested in Sept and it was 14. To me I feel like all the stress I was putting myself under and then the loss combined wasn't helping my hormones. I know it's hard not to stress, but I feel you will feel better after you see an RE. If you do take clomid or femara that alone will increase your prog after ovulation. What I've been told.

zamoraspin · January 2018

@ccvslp I have read and heard so many conflicting things about MTHFR tbh I don't totally know what to believe. Someone who had the same variation as you asked about it just the other week. I told her what I know, but I also will say my RE is not concerned about my being homozygous for the A series mutation. I am on baby aspirin but my RE asked me to go on that before we had even done testing, I think she just recommends that for all of her RPL patients. I listen to a podcast (Matt & Doree's Eggcellent Adventure) and they had a question from a listener on MTHFR, and then an answer from another listener this week who had consulted with a hematologist who said, basically "we used to think MTHFR mutations caused lots of problems, that has been debunked."

I will emphasize, I simply don't know whether it is a problem. The most common suggestion, and the suggestion of my RE, is to take extra B vitamin supplements (see my post in the other thread). Obviously you should consult with your drs and see what they think. I will also reiterate that many many people have some variation of these mutations and are/have had successful pregnancies.

ccvslp · January 2018

Thanks guys. I am already taking a prenatal with high doses of B vitamins in the appropriate forms (hellooooo neon yellow pee) and methylated folate. I had been taking a baby aspirin a day also but am thinking I will hold off until the RE on the 23rd at least... I'm wondering if my homocysteine levels should be checked to see if I'm at higher risk of heart disease and stroke and all of that fun stuff. I just feel overwhelmed completely. Too many hurdles. This RE is supposed to be a Harvard professor/top doctor so we will see what he take on things is. I'm honestly really worried about my own health in general besides pregnancy. I need to figure out how to squash some of my anxiety in the meantime.

vlagrl29 · January 2018

@ccvslp yeah I think the best thing is to work on your own health while meeting with your doctor. It helps you feel somewhat in control. We took a summer mental break from it and when I got back into it in sept I started reading the egg book and taking supplements, etc. now I'm totally convinced nothing needs to be fixed with us. So some of the supplements I feel I don't need anymore I will stop taking once we run out. For me personally I'm over thinking about all this stuff. I just want to be happy.

just work on baby steps at this point. Don't get overwhelmed. And I use the app insight timer for guided meditations and I have an essential oil diffuser. Baths are great too with some bath salts and essential oil drops.

coco2787 · January 2018

@ccvslp I'm sorry you're not getting the results you hoped for. I know you're feeling overwhelmed, but try not to get too stressed about it until you talk to the RE. They will be able to explain things to you in much greater detail and help you understand what all of your results mean. The fact that you got pregnant once is a good sign, especially since blighted ovums are usually chromosomal defects, and not a result of something that might be wrong with your body.

pumpkinpancake · January 2018

@ccvslp ugh im sorry you’re dealing with tough results on top of everything. I’m sure the RE will have a lot more knowledge and insight into that, so hopefully your appts will give you some peace of mind. I don’t know much about MTHFR, but I know just from my own experience seeing my OB and then seeing a RE, the RE made me feel so much better in that they are really knowledgeable and focusing on how to do everything to help get you pregnant, and look out for the right things that could be having a negative impact on success. Hugs to you!

ccvslp · January 2018

Thank you ladies for being so great as I bust in here brand new and already having meltdowns.

@vlagrl29 I will look up that app! I’ve been wanting to get into meditation more... I’m literally dedicating a spare room when we get to move back into our house to a zen space for me. I’ve read a lot about how huge stress can be especially in lean/adrenal PCOS (which is how things are looking pending a few more labs... I did a test yesterday for my naturopath where I had to spit in a vial and stick cotton underneath my tongue four times during the day to measure adrena stress via saliva. I paid 150 and DH brought my spit to UPS today because my life is ridiculous. Lol.) No bath tub in the rental which is KILLING me... I will SO be living part time in Epsom salt baths at the first opportunity!!

vlagrl29 · January 2018

sometimes it best to find the source of your stress and try to get rid of it @ccvslp - the last few months I've been doing really well and happy with the present moment. Now that medicated cycles are an option I find myself thinking about it more and that's what I was trying to avoid. I'm afraid it will just stress me out which I don't want. I don't want my life revolving around this. I want to focus on the things in life I got going for me and focus on that. This was my fear when going to an RE that my mind would be full of this stuff and I dont want the emotional roller coaster again and DH said he couldn't handle me if I got to be a hot mess for the next few months. Like he wouldn't want to live in our house lol. I know the stress I had did me no good last year and went thru a lot of soul searching and refocusing and got to a very happy spot and here we are now.

Focus on the things you love and makes goals - it will help. I started focusing more on my music career and I got more students now I'm hoping to get more gigs. We have a DD so our family would have little dates and enjoyed the summer months very much. Dh and I have an occasional date and it's very nice. I love yoga so I also focus on that - I practice 3-4x a week. I love living a healthy lifestyle. Don't revolve your life around this entire TTC process and thinking something may be horribly wrong with you because it's not! You are fertile you just aren't pregnant yet. For months I swore something was wrong with me but there wasn't - I was putting negative thoughts in my mind about being too old, old eggs, etc. Come to find out my eggs aren't old. I've done a lot of research about supplements and started taking those - now I'm going to stop the ones I don't think I need because I have great confidence in my body now.

ccvslp · January 2018

Can I ask you guys with lots of experience with the boards a question? With the PCOS, compound heterozygous MTHFR, and thin lining I would love advice/support from folks with diagnosed issues as well, but I don’t know where I “fit.”

This is sort of a problem I’m having in general in life in this situation....

I don’t know that TTTGP would be okay because I got pregnant pretty quickly, but it wasn’t viable. Same thing goes for infertility... I have diagnosed fertility problems after the fact following the loss that likely may have contributed, but the fact still remains that I got pregnant in far less than a year. It’s a really weird place to be in - there are definitely things that need to be addressed as we move forward and I’d love advice and support but I’m pretty confused. Maybe that’s a sign I don’t go anywhere yet and should just go take a giant chill pill?

thank you yet again!

coco2787 · January 2018

@ccvslp I would check out the Trying to Get Pregnant board. There are threads for TTCAL and IF (which I know you don’t feel necessarily applies to you but there are ladies there with PCOS who can answer a lot of your questions). There’s tons of knowledge on that board and also daily threads where you can ask random questions if you feel like your question doesn’t fit anywhere else. It’s also a bit more active than most of the other boards. I would make sure to intro first (there’s a thread for introductions).

offtoneverland · January 2018

@ccvslp I agree with @coco2787. The TTGP board is a great place to be with tons of smart people who can help answer your questions. It's definitely okay to be there even though you've gotten pregnant in the past. I contribute on TTGP daily and no one on the board has been non-accepting of me (or anyone else with a history of loss) since I obviously *can* get pregnant, but it just hasn't been viable. I'm certain that the ladies there will be happy to have you and answer some of your questions.

40momma · January 2018

@ccvslp I think you should go where ever you feel most comfortable. In TTCAL we have all suffered a loss, some have struggled for years to get pregnant only to suffer a loss after, and others (like myself and a few others) have no problem getting pregnant, but holding on to them has been difficult. The reason I love this board is that they understand the rollercoaster of loss that nobody ever truly gets unless you've been there yourself

ccvslp · January 2018

All good advice. I will likely continue to bounce around this board and check in on TTGP, too.

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