I'm so so sorry you are going through this. Hoping for the best possible outcome for your baby girl!
-------------------------------------------------------------------------------------------------------------
Married April 9, 2011
TTC since October 2011
Me 34, DH 40
IUI #5 w/ Tamoxifen+Ovidrel+Acupuncture Oct 24, 2014-->BFP!!! EDD July 17, 2015. Panorama=low risk...and it's a GIRL! DD born July 10, 2015 -------------------------------------------------------- Trying for baby #2! IUI #1 w/ Tamoxifen+Ovidrel+Acupuncture July 10, 2017-->BFP!!! EDD Apr 2, 2018. Panorama=low risk...and another GIRL!
I was feeling completely hopeless yesterday. I have been doing a lot of research online and there is one potential thing that can be done pre-natally that has been shown to help with lung growth. I am currently researching that. Only a few hospitals do it though. The closest one to me is Houston.
@irenejean I forgot to respond, but that would be great if you could put is in touch! Are you sure she also is dealing with CDH and not CHD? People keep getting those mixed up!
@sparklingdiamond I am so, so sorry. You and your baby girl are in my prayers. I recently read an article about a micro preemie born at 22 weeks (possibly the earliest preemie ever to survive) who is now a thriving pre-schooler. I know you're dealing with a different situation, but it's just a reminder that babies are resilient and miracles do happen.
You guys! I am so excited. I heard about Dr. Kays who is apparently THE CDH doctor to see. Spends 80% of his time on CDH patients. His survival rates far surpass the country average. Most hospitals get 30-50% survival with severe cases. His is almost 90%! We are in TX and he is in FL. As long as the amnio comes back okay we are going to consult with him hopefully in December! He even personally called me last night to introduce himself and see if I had any questions. And to tell me there is hope and to not give up.
That is great news, @sparklingdiamond! A 90% survival rate sounds so very hopeful. I know you still have to wait for the amnio and results but this sounds like great progress. Good work, Momma!
Warning
No formatter is installed for the format bbhtml
@sparklingdiamond I am just seeing this now and so sorry for what you're going through. I'm glad to see you have a hopeful prospect with the Dr. in FL. Sending many thoughts and prayers for a good amnio.
@sparklingdiamond That’s the doc that treated my friend’s baby! She actually stayed in a Ronald McDonald house near the hospital in Florida for the end of her pregnancy. I did reach out to her and let her know a fellow April mama was going through the same thing she did and she said she’d love the chance to talk to you if you are up to it!
Me (33). DH (37). DD (2.2012). MCs x4. After 4 years & 7 months, due 4.2018!
Sorry to hear about your daughters diagnosis. My son is almost 6 and was born with CDH. We found out at 36 weeks so we had very little time to process and get a game plan. He had a severe case but he’s a stubborn boy and fought hard! Dr. Kays is definitely the leader in CDH repairs. I watched an amazing presentation he did a few months ago. If you have the ability, I would strongly encourage you to deliver with him! If we had known he existed at the time, we would have!
Re: CDH
Married April 9, 2011
TTC since October 2011
Me 34, DH 40
IUI #5 w/ Tamoxifen+Ovidrel+Acupuncture Oct 24, 2014-->BFP!!! EDD July 17, 2015. Panorama=low risk...and it's a GIRL!
DD born July 10, 2015
--------------------------------------------------------
Trying for baby #2!
IUI #1 w/ Tamoxifen+Ovidrel+Acupuncture July 10, 2017-->BFP!!! EDD Apr 2, 2018. Panorama=low risk...and another GIRL!
DS: EDD, December 19th, 2014. Born, December 19th, 2014!
DD: EDD, July 18th, 2016. Born, July 19th, 2016!
Baby #3: EDD, April 16th, 2016
EBF, BLW, BW, CD, Waterbirth, Calm Birth, Homebirth, FC, GI Awareness, Informed Choice
DD 5y
DS 3y Generation Intact
Step DD 5y
Step DD 3y
https://siouxcityjournal.com/lifestyles/health-med-fit/sioux-city-baby-has-life-saving-procedure-before-birth/article_dd910651-3124-5066-a4ee-8f1a08165bfc.html?linkId=44389841
Me (33). DH (37). DD (2.2012). MCs x4. After 4 years & 7 months, due 4.2018!
DS: EDD, December 19th, 2014. Born, December 19th, 2014!
DD: EDD, July 18th, 2016. Born, July 19th, 2016!
Baby #3: EDD, April 16th, 2016
Me (33). DH (37). DD (2.2012). MCs x4. After 4 years & 7 months, due 4.2018!
<a href="http://www.thebump.com/?utm_source=ticker&utm_medium=HTML&utm_campaign=tickers" title="Parenting Tips"><img src="http://global.thebump.com/tickers/tt1d99dc" alt=" Pregnancy Ticker" border="0" /></a>