July 2016 Moms
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Tongue Tied

Hi. I have a 2 week old boy who we just found out was tongue and lip tied. He had the procedure to release the tie yesterday. I nursed him immediately following the procedure but since then he has not been able to latch. I am getting frustrated but trying to stay calm. I've been pumping and feeding him with a bottle but afraid to have him confused now drinking from a bottle. 
does anyone have any suggestions or knowledge about re-teaching him how to latch? I have a lactation consultant scheduled but she can't come for a few days. 

Re: Tongue Tied

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    Maybe give him a little bit of gripe water or his vitamin d drops right before you try to latch him? Just to get him calmed down. Also, try a different nursing position. If you are doing cross-cradle then try a football hold instead for example. Just a suggestion.
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    DD was tongue tied and the ENT who did her clip gave us some exercises to do for suck retraining.  The way it was explained, babies practice sucking in utero which strengthens their tongue and cheek muscles.  If they had tethered oral tissue, they don't practice correctly and strengthen the wrong muscles so it can take some time for them to totally relearn how to suck.  Some of the exercises included:
    -having her extend her tongue to lick milk off a finger or nipple (don't do this if they're very hungry, it will result in an angry baby)
    -running a finger along her lower gums to get the tip of her tongue to extend to the corners of her mouth 
    -having her suck on a finger to strengthen her mouth

    I'm sure the LC can give you more exercises to help retrain your son too.  We're 1.5 weeks post clip and she's just starting to get the hang of a proper latch so do your best to be patient.  
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    This is my son. We had tongue tied corrected at 10 days. He would latch but not take much milk so I still had to pump.
    We met with a lactation consultant and she showed me a pain free latch method - which sometimes works, sometimes doesn't - but by doing this we confirmed he wasn't taking milk. She said because he has been dealing with tongue tie for so long (in utero) that he hasn't learned how to properly use the tongue to suck in enough milk. And then, sadly, she said what we knew: it will take some time. We are at two weeks post-tongue tie and he just now seems to be getting more milk (he slurps and burps - all good signs!) but I am still pumping and supplementing with expressed breast milk. 
    The lactation consultant referred me to a cranial therapist and we've gone twice. I don't know if it's helped but what I can tell you is that through the lactation consultant and osteopathic physician, we have invested enough that I feel compelled to see it through at least the next few weeks.
    What I have done is given myself a goal of 6 weeks to assess the situation. By then, sleep habits are forming better and I will be able to see how realistic it will be for me to keep up pumping and nursing or if we need to consider formula (I have a 21 month old so my time is split). 
    Just doing the standard middle-of-night Google research I have learned the change in nursing is NOT instantaneous after having a tongue tie fixed. I've read as much as 6 weeks, but mostly 2-3 weeks. A friend of mine also said that she pumped for three months, then all of a sudden her daughter was latching and eating. So like everything with parenthood, seems to be a crapshoot, 
    I would absolutely use your lactation consultant to refer all experts/tips that can help. Also, try the latching overnight when they are not as alert or hungry - you may find he resists less. But most importantly, give yourself a break when you need it. Good luck! 
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    Did your pediatricians clip the ties or did they refer you? 

    Long stort short - Our daughter was initially formula fed with some episodes of painful and frustrating breastfeeding in the hospital. Frustrated baby and painful latch meant she primarily received and still receives expressed milk. At our first appt, the ped said, "Did you know she has a tongue tie?". Umm...no. That would explain it. We have asked several times now about the tongue tie. They will not have it cut (refer us to a dentist?) unless she stops gaining weight. She is gaining because I have basically given up on bf. I only pump. I looked into the other issues - possible dental and speech problems. Why wouldn't we take care of this now instead of later? I also suspect she may have a lip tie as well...

    I am not sure how to pursue this.
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    I'm concerned about tongue/lip tie. LO is gaining great, but at 7 weeks I still get excruciating pain when I BF. He doesn't seem to open his mouth wide enough to get slit of breast tissue. One of my neighbors said he has a lip tie. Going to ask my pedi about it when we see her in a few weeks
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    Lizbeth86Lizbeth86 member
    edited August 2016
    Did your pediatricians clip the ties or did they refer you? 

    Long stort short - Our daughter was initially formula fed with some episodes of painful and frustrating breastfeeding in the hospital. Frustrated baby and painful latch meant she primarily received and still receives expressed milk. At our first appt, the ped said, "Did you know she has a tongue tie?". Umm...no. That would explain it. We have asked several times now about the tongue tie. They will not have it cut (refer us to a dentist?) unless she stops gaining weight. She is gaining because I have basically given up on bf. I only pump. I looked into the other issues - possible dental and speech problems. Why wouldn't we take care of this now instead of later? I also suspect she may have a lip tie as well...

    I am not sure how to pursue this.
    Hi there I'm lurking from June 2016 group. Do you have or know of a lactation consultant or maybe la leche league nearby? My LC referred me to a specialist dr to clip LO's tongue and upper lip. It took 2 seconds.
    My LC said dentists use a laser which is a different procedure. Recovery is a little worse because they're a little burned but not bad. In some cases the laser is needed bc the tongue tie is more severe and clipping is not enough.

    I think an LC or someone at la leche who has seen a lot of this may be able to give you a recommendation.

    Edited to add: you may want to call an LC even if you don't want to have an appt with them. The LC's I've spoken to are very passionate about getting information out there and may give you this info in a simple phone convo.
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    My LO was tongue tied. Breast feeding was painful but we managed and he was gaining fine so technically it wasn't a huge concern.   we did get it clipped finally at 3 weeks (the doc in town who does it was on holidays before that.) such a difference! Nursing is going so much better no more pain for me. 

    One thing that was suggested to me and that helped a bit before the tongue tie was clipped was trying different nursing positions. My LO did best when I laid down/ leaned back in a reclining position and he basically laid on top of me so he was basically on his tummy. This helped a bit with the nipple pain because he wasn't always sucking in the same spot on me. 

    Also so a huge help was letting my nipple air dry after the feeding. 
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    As an adult who has a tongue tie and speaks and obviously eats just fine and as a baby there was no need to cut mine. My son has one, he's fed from a bottle, do we need to cut his? Maybe if he has a lisp because he is gaining weight at almost 2 months perfectly fine.

    DH 30 Me 29
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    I've been told that not every baby that has a TT/LT is symptomatic... So you treat it based on symptoms (poor BF, etc..) not necessarily just the fact that it exists.

    We got both a tongue and lip tie release on our LO a week and a half ago, at 5.5 weeks old.  I had issues BF from day one.  We saw a LC and it helped a LOT -- LO started gaining weight like a champ.  My nipples weren't bloody anymore and it didn't feel like he was about to gnaw them off at every feeding - but week later they were still sore 24/7. And it was still a less than optimal latch. We debated whether to get it done... but decided there was little risk.. compared to the potential gain... my niece at 8 years old just got hers done due to dental issues... and it wasn't pleasant.

    It was done via laser.  The procedure was extremely fast (he went from our arms back to our arms in less than 5 minutes.. no joke).  However the recovery has been another story.  The first two days were definitely painful for him.  It was rough.  But it got better.  

    A week and a half later... WHEN he latches it's sooooooo much better.  It actually feels pleasant for the first time.. as opposed to just bearable. But key word is WHEN.... sometimes he just flat out has a hard time latching and it will take him like 5/10 minutes to get on :(:(:(  That part is AWFUL... He wails and cries because he's hungry but can't latch :(  Eventually he gets it.. and gets it way better than he did before... but it still sucks 

    We are doing craniosacral therapy which is supposed to help.. hopefully the rest of this latch issue will get cleared up soon from that :( 

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    Saw LC today. Yay no real TT!! He is able to extend his tongue, he apparently just don't like to and I have to be more patient when latching him. He's gaining well and she helped me tweak my latch and positioning to get him on deeper. No pain and so happy! 
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    I just found out pediatricians aren't required to do any education regarding lactation/breastfeeding.  It may help to reach out to specialists.  My ped found a slight tongue tie but since my son is gaining weight wasn't worried about it.  A few weeks later, latching not is still uncomfortable and I found out from a chiropractor that my son also has a lip tie.  We are going in for a consultation to get one or both revised if needed.
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    My son had his lip/tongue tie fixed today with laser. Although it's heartbreaking for the parents to see him in pain, I can already see a difference with his latch. We had weight gain issue so I hope it's gonna fix those.
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    Great news @danjoly We have our appt tomorrow for lip/tongue tie assessment.
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