Hello! I'm a genetic counselor in the U.S. and work with the various prenatal genetic testing options all the time. While the type of test matters in terms of detection rate and accuracy, what really matters is knowing what you think you might use the information for, e.g. planning purposes, possible termination, not to be surprised later in the pregnancy or at delivery, general preparedness, etc. Knowing the type of test and knowing how you want to use the information can help you decide if you want to do it. I would also recommend finding a prenatal genetic counselor to help walk you through all of this, too, if possible.
Don't want to steal the thread but could you answer a question please? If you test negative for cf in a first pregnancy, do you need to be retested in subsequent pregnancies? Tia
I already know that. Thank you though. That's why I'm already prepared by delivering in the number one hospital that is prepared for all types of births. I'm already aware that I will be having a c section and will be seeing a high risk doc for all my appts after 20 weeks. The tests won't prepare me for anything other than giving me something else to worry about on top of everything else I will be worried about after 32 weeks since that's when we lost our daughter. Yeah the testing could help us know something vital but the testing could also be wrong. It's not 100% right. My friend was told to abort her son based on that testing and he's now a great 3 year old. We all have our own beliefs and mine won't change.
I was not explaining to you why you should have testing, I don't care either way. I was giving you reasons why others would choose the testing that have nothing to do with abortion. It's great your hospital is a larger one, not everyone is going to a larger hospital. It isn't necessarily the type of birth but also having specific speciasts who may need to be immediately available.
Of course the testing is not diagnostic unless you have an amnio. (They do consider cvs and amnio diagnostic) It is awful her doctors told her to abort, especially if she only screened positive? I would not go to a doctor with that record.
My main point was it seemed odd to say you choose not to have prenatal testing because you love your baby no matter.
I am not trying to change your beliefs. I don't care what others choose to do.
Edit Edit I am sorry for your loss. I have also had a late loss. It was incredibly difficult to go through and added so much stress and anxiety to my next pregnancy. With my youngest I screened positive for 2 serious issues and went for further testing. It was an incredibly difficult decision to make and a tough spot to be in. To hear someone say they decline testing I had because they love their baby no matter what implies I did not.
At my 1st appointment yesterday, my doctor recommended the cell free dna blood test even though I am not yet 35. We will be doing the test even though insurance probably won't cover it. For me, information is valuable either way. It will either give me peace of mind or arm me with knowledge to prepare. It's definitely nerve-wracking though.
Hello! I'm a genetic counselor in the U.S. and work with the various prenatal genetic testing options all the time. While the type of test matters in terms of detection rate and accuracy, what really matters is knowing what you think you might use the information for, e.g. planning purposes, possible termination, not to be surprised later in the pregnancy or at delivery, general preparedness, etc. Knowing the type of test and knowing how you want to use the information can help you decide if you want to do it. I would also recommend finding a prenatal genetic counselor to help walk you through all of this, too, if possible.
Don't want to steal the thread but could you answer a question please? If you test negative for cf in a first pregnancy, do you need to be retested in subsequent pregnancies? Tia
My midwife said they only test you once. So if you were tested in your first pregnancy, insurance wouldn't cover it the second time. So I am assuming it just tests if you are a carrier or not, which would not change.
Hello! I'm a genetic counselor in the U.S. and work with the various prenatal genetic testing options all the time. While the type of test matters in terms of detection rate and accuracy, what really matters is knowing what you think you might use the information for, e.g. planning purposes, possible termination, not to be surprised later in the pregnancy or at delivery, general preparedness, etc. Knowing the type of test and knowing how you want to use the information can help you decide if you want to do it. I would also recommend finding a prenatal genetic counselor to help walk you through all of this, too, if possible.
Don't want to steal the thread but could you answer a question please? If you test negative for cf in a first pregnancy, do you need to be retested in subsequent pregnancies? Tia
My midwife said they only test you once. So if you were tested in your first pregnancy, insurance wouldn't cover it the second time. So I am assuming it just tests if you are a carrier or not, which would not change.
Exactly. If yit tested negative for cf than you are not a carrier. You either are or your aren't and it will not change pregnancy to pregnancy
My first two children I had no extra testing. My third I had a cvs at 12 weeKS. With this one I had isp testing at 11 weeks and I had a scare , only to have it turn on what they saw wasnt there today , I did do my cvs today for this one.
Re: Genetic pre-screening....thoughts?
Of course the testing is not diagnostic unless you have an amnio. (They do consider cvs and amnio diagnostic) It is awful her doctors told her to abort, especially if she only screened positive? I would not go to a doctor with that record.
My main point was it seemed odd to say you choose not to have prenatal testing because you love your baby no matter.
I am not trying to change your beliefs. I don't care what others choose to do.
Edit
Edit I am sorry for your loss. I have also had a late loss. It was incredibly difficult to go through and added so much stress and anxiety to my next pregnancy. With my youngest I screened positive for 2 serious issues and went for further testing. It was an incredibly difficult decision to make and a tough spot to be in. To hear someone say they decline testing I had because they love their baby no matter what implies I did not.