June 2016 Moms
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Surprise! It's... not a girl after all **One more update with diagnosis**

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Re: Surprise! It's... not a girl after all **One more update with diagnosis**

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    Echoing PP's but I'm sorry the issue has not resolved. Thoughts/prayers/good vibes that everything goes smoothly at your appointment next week.
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    I'm sorry!! Thoughts & prayers for you! 
    Me: 30 || DH: 32
    Married: May 3, 2014 

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    MynaBird said:
    So, update: Saw my midwife today and talked things through a bit. I have a history of depression, and last time I went on a mild antidepressant in the third trimester just in case (which we then upgraded to a stiffer dose once the baby showed up and it became clear I was definitely experiencing PPD). We decided now would be a good time to start me back on an antidepressant since, while the shock is still sinking in, I'm worried about feeling disconnected from this baby. She also had some really good, frank advice from her own experience as a mother: Not every mother-child relationship is love at first sight. Sometimes it takes some time, and if that is the case with this baby, she says I shouldn't feel guilty about it. Of course I will love my son. 

    Unfortunately, the other issue they were checking on in the follow-up u/s has not resolved. Baby still has bilateral dilation of the urinary tract, and I have low amniotic fluid, and the combination of those things is not good. So we are headed to the perinatologist next week. 
    I know it's pointless to tell anyone in your position not to worry, but it sounds like you are in good hands with your medical care professionals and the perinatologist will be very thorough and make sure that your LO is well monitored and taken care of. We'll all be thinking about you and hoping everything turns out well!
    TTC#1 since May 2011

    BFP #1 June 2011 m/c@6wks

    BFP #2 December 2011, EDD 8/21/12, born 7/21/12 at 35w4d

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    BFP #3 October 6, 2015. WHAT???

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    MynaBird - your m/w was so right. try and keep any expectations, "shoulds" etc out of your mindset when the little guy gets here. just focus on the moment and feeling whatever you feel. Thinking this all through beforehand, I think, is going to help tremendously when/if you struggle post partum. We're all here for you to share, vent, etc etc. :)

    And I'm sorry to hear about the complications you're dealing with right now. Do you have any indication of what the dilation combined with low fluid could mean?

    Thinking of you!

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    i can't lie. even after a three year struggle and thinking i would and being told i might not get pregnant again. i struggled with finding out i was having another boy. i also think there is nothing wrong with it. i came around and am so happy now. i did feel a little bit of guilt but what do you expect when you're pregnant and hormonal?! its definitely NOT sunshine and butterflies haha
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    Sorry to hear about your news. I hope they can give more positive answers soon. 
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    crdocrdo member
    It's good that your midwife is again being proactive regarding PPD, and she had excellent advice. You certainly will love your baby boy, whether it happens immediately or after a while. Hoping for good news from your perinatologist.
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    alitriaalitria member
    Hopefully everything goes well at these next appointments and resolves easily.  Good for you and you mw for addressing the PPD now, instead of after you're already suffering.
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    Sorry you're going through this! ❤️
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    stisnd6stisnd6 member
    After seeing this thread, I went in to my ultrasound alone and I was joking with the tech as she got the machine ready. And I said, now watch... I finally have all the little boy clothes I could ever need and watch this LO not be a boy lol Then the tech turned on the ultrasound and the first shot we get is of his testicles haha she was like Nope, that's definitely a boy.
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    I am really sorry to read your update and that you didn't get good news. I will keep you and your little guy in my thoughts and there is no shame in starting your anti depressants now. You need all your health and strength for the next few weeks and beyond. 
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    stisnd6 said:
    After seeing this thread, I went in to my ultrasound alone and I was joking with the tech as she got the machine ready. And I said, now watch... I finally have all the little boy clothes I could ever need and watch this LO not be a boy lol Then the tech turned on the ultrasound and the first shot we get is of his testicles haha she was like Nope, that's definitely a boy.
    I had a similar chat with my ultrasound tech... then my little lady stuck all her goods all up in the wands view lol... same reaction. . Nope definitely a girl lol
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    Any update?
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    alitriaalitria member
    Wishing you the best of luck and a stress relieving appointment.
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    MynaBird said:
    Any update?
    A couple of nonstress tests over the weekend looked good, but ultrasounds showed my amniotic fluid level didn't increase even after they put me on IV fluids... We are headed to the perinatologist this morning, so I'm hoping to know more soon. Thank you, everyone, for the support! I've been Bump-absent for the last few days while I've been distracted by this, but I really appreciate the good thoughts. 
    Do what you need to do. We are here when you need us and are thinking of you and praying for a good outcome for you and little one while you work through the appointments. Hugs!
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    One more update, and unfortunately it's not great news: Our baby has been diagnosed with posterior urethral valves, a condition that (YOU HAVE GOT TO BE KIDDING ME) affects boys exclusively. Basically, there's a flap of tissue obstructing the opening between his bladder and urethra, which is what's causing fluid to back up into his poor swollen bladder, ureter and kidneys. While he falls into the "severe" risk group for kidney damage, the pediatric urologist says he's just barely over the line, which is the good news part of the bad news. I'm still feeling a lot of movement, which means he's probably still mostly OK at this point, and since my fluid levels have been low but not dangerously low, I'm hopeful for as good an outcome as can be hoped for.

    The hard thing is that there's no way to know exactly what his needs will be until after he's born, and boys with this condition fall along a huge spectrum -- all the way from minor intervention and monitoring to being born with acute renal failure. What we do know is that right after he's born, the urologist will have to clear his bladder, hopefully through a catheter but possibly through more invasive means, and a day or two after he's born he'll have to have surgery to attempt to fix the valve that's blocking his bladder. We've been told to expect him to spend at least a week in the NICU, maybe more, depending on how things go, and to anticipate spending a lot of time with specialists especially in the first year of his life. Ideally they won't have to deliver him early, but it's kind of a balancing act -- they want his lungs to develop as long as possible, but they will have to take him out if they decide it's more dangerous to leave him in.

    I am heartened by the fact that of the stories I've read on the internet from other PUVs parents, it seems like he may be better off than some other babies with this condition. There are stories out there from mothers who had NO amniotic fluid, whose babies' lungs didn't develop and they were advised to terminate midway through the pregnancy. Since that didn't happen to us, and since I do have some fluid, I'm hoping for the best.

    Thank you all again for all the support! I don't imagine there will be too much more to update on until he's born... I hope not for another 4+ weeks!
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    Thanks for the update. So sorry to hear that it's not 100% good news :( keeping you guys in our thoughts!

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     @MynaBird all the best to your little boy. Hoping he doesn't require invasive treatment and that his NICU stay will be short and uneventful. I'll be keeping you guys in my thoughts! 
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    Thank you for updating. Praying that you'll receive the best possible outcome.
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    DSTtots4lyfeDSTtots4lyfe member
    edited May 2016
    Thank you for updating @mynabird. I'm so sorry it's not good news. Thoughts and prayers for your little guy to stay comfortable and keep cooking as long as possible and to need minimal interventions after birth. I can't imagine the upheaval these last few weeks have been for you. We are here as you need us!
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    So sorry! Praying he will have it less severe than expected and be a string boy with a quick nicu stay. 
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    kwife15kwife15 member
    Thank you for the update! Praying that he is as healthy as can be and your delivery uneventful.
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    Hoping for the best outcome for your little boy. 
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    Hoping for the best for your little boy, and that you don't have to deliver early.  I know it's scary to face the prospect of surgery and a NICU stay right away, and overwhelming to hear that you'll be seeing specialists for his first year, but in the long run, your little boy will not remember any of this, and hopefully you'll be able to put this period behind you quickly. I'm glad, too, that you've found a community that can help you adjust to this diagnosis.

    I hope that your son has a short stay in the NICU.  My son stayed in the NICU for the first week following his delivery, and while it was hard for me and DH, the nurses there are (mostly) incredible, and the resources they have available for parents are great.  They helped us get really comfortable with the more minor things (bathing, diaper changing around the bellybutton, etc) before going home, and the lactation specialists on hand helped us get a good start on working on his latch. 
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    I'm so sorry to hear the less than great news.  Hopefully your little guy can hang in there until his lungs are good and ready and his issue can be easily corrected once he's out. 
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    So sorry to hear your difficult news. Thoughts and prayers to you and your little guy.
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    You little guy will be in my thoughts!
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    I will continue to keep you & your family in my thoughts. Praying for the best possible outcome. I'm so sorry you're going through all of this!
    Me: 30 || DH: 32
    Married: May 3, 2014 

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    Thanks for the update! I'm so sorry you're going through this. I'm sending lots of thoughts your way for they best possible outcome!! 
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    I was wondering about you yesterday. I'm so sorry to hear this news. I really hope that everything goes smoothly and that his health isn't greatly affected. Hugs!  
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    meggymemeggyme member
    I'm so sorry that you're getting this news, especially this late in the game. But I hope you have the best outcome you can get.
    DD1: June '16 DD2: March ‘19 :::: Married since 2011 :::: USN Wife ::::
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    crdocrdo member
    Hoping for the best possible result for your little boy.
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    Hoping for the best results for your little boy. Sending love and strength your way. 


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    I'm sorry to hear this & hope the best for you and your son!! Prayerfully it will be a short NICU visit and his issues aren't significant. All the best to you & hope he stays put for a while!

    TTM - EDD 4/23 - Team Green <3 
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    Thank you for updating. Will keep you and baby in my thoughts that it will turn out on the better side of the scale for him. 
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    Thanks for the update. Hoping for the best possible outcome for baby boy.
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    lm45678lm45678 member
    Thanks for keeping us updated... Thinking of you!
    Me (31) & DH (32)
    Married 9/27/2014
    DD Born 6/23/16
    Baby #2 Due 3/7/20
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    I'm sorry to hear the news @MynaBird. Like everyone I'm hoping for the least amount of intervention required. Fx for the best possible outcome and that he gets to stay put until he's ready enough to come out. 
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    BoonhildeBoonhilde member
    edited May 2016
    Wishing you all the best!
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