June 2016 Moms

UPDATE- Severe heart defect-she did not survive

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Re: UPDATE- Severe heart defect-she did not survive

  • My heart goes out to you and we are all here in whatever way we can help. I'm so sorry you are having to experience something so hard. I agree with PP that it is up to whatever your comfort level is as far as nursery or purchasing items. I refused to plan showers or work on our nursery due to waiting on test results. I know for me personally I just couldn't try to be excited when I was consumed with worry. When my anxiety gets the best of me I tend to go into isolation mode. I have to deal with my own emotions before considering anyone else's if I want to come out of it with my sanity. Keep us updated. I will be thinking of you and LO.
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  • I'm so very sorry you are going through this. Sending positive thoughts and prayers to you and your little girl.



    DS-7
    DD-4

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  • I'm so sorry you're going through this. My friends son was born with tetralogy of fallot which is very scary. Like yours nothing can be done until birth. He was born full term in a hospital with pediatric cardiology specialists and had surgery within an hour of birth. Normally this condition requires many surgeries. He had the one, they did an amazing job and now he's almost three, perfect, big and no more surgeries are needed! Don't loose hope but plan based on what you feel is right an you can handle.
  • I am so sorry for what you are going through. I can not offer you advice, but you are in my thoughts and prayers. 
  • edited February 2016
    I'm so sorry. What heartache. Have you reached out to the High Risk board? I feel like I have seen a lot of heart stories around somewhere, that may lend you a little comfort.

    As for the nursery, like others said, only if it makes you feel good. Maybe you make some small improvements, like buy a picture for the wall--so it's special, but not overwhelming. You could name a star after her in the International Star Registry (I did this) and I got the associated certificate and star map (and a Xmas ornament). Maybe something special like that for your daughter to put on her wall.

    I very much pray for the best for you, your daughter, and your family. It's true that amazing things happen every day.
    *****Losses Mentioned*****BFP MENTIONED*****ALL WELCOME******ALL ABOARD!!

    Me: 42, DH: 46, Married: 11/12
    Losses: MMC#1 11/12 BO, MC#2 11/13 at 8w BO?, MMC#3 8/14 chromo healthy M @12 weeks, stopped growing at 10.
    Negligible AMH, FSH finally went high. Pursued DE.

    DD born at 38w2d on 5-27-16. Finally!!

    Pregnant again with OE. EDD 11/9/17 Girl!




    BabyGaga
  • I'm so sorry you're going though this. Lots of T&P coming your way. 
  • Update added 
  • @Rach2smith I am so sad to see this update and was hoping for a different outcome. I am so very sorry for your loss. You will be in my thoughts and prayers. I hope that you're able to find some peace in this time of grief. The June ladies are all here for you if you need. Hugs to you <3
  • I am so sorry to hear you lost your little girl. Thoughts and prayers to you. That is a beautiful name you chose for her.



    DS-7
    DD-4

    Pregnancy Ticker
  • @Rach2smith

    I am so sorry to read your update.  I cannot imagine how you feel right now, but I will be sending my thoughts and prayers, and will be praying that you can find peace and light as you go through this nightmare.  Sending so many hugs.  
    Married: June 25, 2011
    DS #1: Born September 29, 2013
    Baby #2: Due June 3, 2016

    DST T4L




  • I am so sorry to be reading your update. My thoughts & prayers are with you & your family. 
    Me: 30 || DH: 32
    Married: May 3, 2014 

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  • I'm so sorry to read tour update and for your loss.  Surround yourself with loved ones and support, and know that our thoughts and prayers are with you.
  • I am so very sorry for you and your family.  You are all in my thoughts and prayers.
  • I'm in tears for you and wish I had the right words to take away immeasurable pain.  Wishing you peace as you and your husband honor your baby, the angel who has your heart.
  • I am so heartbroken for you and your family.  My thoughts and prayers are with you!
  • I am so sorry to see this update.  My thoughts and prayers are with you and your family.  I cannot imagine what you must be going through but we are here for you.

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  • I am so very sorry to read this update. You gave your baby girl a beautiful name. I hope you and your family are able to find peace.
  • I am so sorry. I wish you and your husband peace and support.
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  • My heart aches for you, and I'm so very sorry this is the journey you have to walk. I'll be praying for you in the coming days and months.
  • I am so sorry for your loss. Thoughts and prayers for you and your family.
  • @Rach2smith - My heart is breaking for you.  Praying for your comfort during this terribly dark time in your life.  
  • I will be thinking and praying for you. I'm so sorry to read this update. Please take care of yourself. 
  • I am so, so sorry to hear this terrible news. My heart breaks for you and your family. Wishing you strength during this sad time. May Paisley rest in peace.


    Hugs. xo

  • I am so sorry for your loss. I'll be praying for your family during this difficult time. 


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  • My heart aches for your loss, praying for comfort and peace.
  • I'm so sorry.

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  • *lurker from July '16*

    @Rach2smith my heart breaks for you. Sending you creepy internet hugs during this difficult time. 
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  • I am so sorry. I barely even have words for the situation. Other than you are the strongest woman I know. And @cmillar36 you are as well. This time is definetly trying for you and a test of will power. But I will be praying for your peace of mind and understanding. Hugs your way
  • I am so terribly sorry. My prayers are with you and your family. 
  • I am so very sorry for your loss. My prayers go out to you and your family.


     
  • I am truly so sorry for your loss. Please know you are in my thoughts, and I can only hope that you and your H are surrounded by love and support during this difficult time <3
  • I am thinking of you and praying for you and your family.
  • I am so sad for you.
  • Sitting at my desk crying as I am reading this. I am so sorry that this has happened. Sending so many prayers for comfort for you and your SO. The name Paisley is beautiful. 
    April Sig Challenge: Why my kid is crying

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  • @Rach2smith and @cmillar36 my heart is breaking for both of you ladies. I'm so unbelievably sorry that this is happening to both of you! So many hugs, thoughts and prayers to you both right now. <3<3<3 
    DH - 24; Me: 26
    Married 3/7/15
    Expecting Baby #1: 06/06/2016
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  • This is absolutely heartbreaking. I am so so sorry. I have no words. I wish you and your family healing thoughts and a healthy future pregnancy and baby.




  • I'm bawling my eyes out for you right now, this is the thing we're all most afraid of.  I'm so sorry for the pain you and your husband are experiencing.  Paisley was so lucky to have been loved so very much for the short time she was here.  
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  • Rach2smith I can't even begin to understand what you and your family are suffering through. I am so sorry you've had to suffer such loss in your life. I too had a missed miscarriage at 11 weeks and I'm glad that at least you were able to see and hold your beautiful girl. You are already such a good Mother, I know that you have some amazing blessings on the way for you. I hope you know that your June family here is praying for you and the family. 
    Me: 30     DH:32
    Married: 12/16/12
    TTC #1: 06/15  BFP #1:07/13/15
    D&C: 08/28/15
    BFP #2: 09/26/15
    M: 06/03/16
    BFP #2: 02/12/18 
    L : 7/26/18 (SIUGR, micropreemie)






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  • Sending my thoughts, prayers, and love to you all right now. I am so sorry for this devastating loss. She was lucky to have you as her momma for the short time she was able to be with us.
  • So very sorry for your loss... my thoughts and prayers are with you during this difficult time.
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