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June 2016 Moms
starkeyclan
member
Roller coaster of a day! New Update 2-9
starkeyclan
member
2-9-16 Update:
**We had a follow-up ultrasound today and got great news! They confirmed Parvo virus (hand/foot/mouth of fifths disease) so I must have gotten it somewhere and it went to baby. This at least gave us a reason why baby had gotten so sick and therefore a way to treat it! The rate of blood flow to the brain showed that baby is not anemic and there has been a dramatic improvement in the amount of fluid around baby's body! There is still a good amount in the abdomen, but they expect that to improve as the next few weeks goes on. We'll check in with them weekly with an ultrasound to track the improvement of the fluid and to ensure baby doesn't go anemic again (in which case they'd do another fetal transfusion). But, baby should continue to improve and get completely rid of the virus and therefore be rid of any illness! It is so nice to be able to breathe again!
________________________________________________________________________________________________________________________________
So for those that saw my story last week, here is a bit of an update!
We started our appointment by meeting with a genetic counselor who explained that our baby was in a very dangerous state of health. We then went into an ultrasound whew they confirmed that there wa ms way too much fluid in multiple parts of the baby and the doctor called it Non-Immune Hydrops which is incurable and leaves baby with very little chance of survival. We spent the next hour working through the very real possibility of losing our baby at any point and time.
We we did decide to do the amniocentesis in case that could provide information on things we could try to save babies life. While they were prepping for that, they noticed an increased amount of blood flow to the babies brain. Another doctor was called in and he explained that this is often connected to the baby being anemic which would have been caused by baby trying to unsuccessfully fight off a virus that I must have picked up somewhere. (I work with kids and thei runny noses all day so not a surprise there) He then explained that in order to attempt to save baby he needed to check the blood in the umbilical cord to verify that baby is anemic and if so they could give baby a blood transfusion.
So, we had him check the blood, baby was visibly anemic so they gave baby a blood transfusion. At the end the doctor was very optimistic in that baby's chance of survival had just gone from pretty much 0 to "pretty good".
We we have another appointment on Tuesday to see if baby's anemia has improved and if then the fluid around the body had decreased (as severe anemia can cause extra fluid to build up). Still scary and still a chance that this doesn't completely solve the problem but much better prognosis than the one we were given this morning.
Thank you to everyone for your kind words, thoughts and prayers! Please know I think of all of you often!
**We had a follow-up ultrasound today and got great news! They confirmed Parvo virus (hand/foot/mouth of fifths disease) so I must have gotten it somewhere and it went to baby. This at least gave us a reason why baby had gotten so sick and therefore a way to treat it! The rate of blood flow to the brain showed that baby is not anemic and there has been a dramatic improvement in the amount of fluid around baby's body! There is still a good amount in the abdomen, but they expect that to improve as the next few weeks goes on. We'll check in with them weekly with an ultrasound to track the improvement of the fluid and to ensure baby doesn't go anemic again (in which case they'd do another fetal transfusion). But, baby should continue to improve and get completely rid of the virus and therefore be rid of any illness! It is so nice to be able to breathe again!
________________________________________________________________________________________________________________________________
So for those that saw my story last week, here is a bit of an update!
We started our appointment by meeting with a genetic counselor who explained that our baby was in a very dangerous state of health. We then went into an ultrasound whew they confirmed that there wa ms way too much fluid in multiple parts of the baby and the doctor called it Non-Immune Hydrops which is incurable and leaves baby with very little chance of survival. We spent the next hour working through the very real possibility of losing our baby at any point and time.
We we did decide to do the amniocentesis in case that could provide information on things we could try to save babies life. While they were prepping for that, they noticed an increased amount of blood flow to the babies brain. Another doctor was called in and he explained that this is often connected to the baby being anemic which would have been caused by baby trying to unsuccessfully fight off a virus that I must have picked up somewhere. (I work with kids and thei runny noses all day so not a surprise there) He then explained that in order to attempt to save baby he needed to check the blood in the umbilical cord to verify that baby is anemic and if so they could give baby a blood transfusion.
So, we had him check the blood, baby was visibly anemic so they gave baby a blood transfusion. At the end the doctor was very optimistic in that baby's chance of survival had just gone from pretty much 0 to "pretty good".
We we have another appointment on Tuesday to see if baby's anemia has improved and if then the fluid around the body had decreased (as severe anemia can cause extra fluid to build up). Still scary and still a chance that this doesn't completely solve the problem but much better prognosis than the one we were given this morning.
Thank you to everyone for your kind words, thoughts and prayers! Please know I think of all of you often!
Re: Roller coaster of a day! New Update 2-9
SaveSave
Praying hard for you. Let us know how the amnio results turn out!!
EDD: 06/25/2006 M/C: 11/03/2005
EDD: 04/08/2012 M/C: 09/03/2011
EDD: 12/27/2012 Born Sleeping: 07/19/2012
EDD: 12/07/2013 M/C 05/30/2013 & 05/31/2013
EDD: 07/01/2016 Born sleeping: 03/02/2016
Triplets due 6/29/16 also from an IUI!
Mrs. H
Crohn's Dx: August 2008
Endometriosis Dx: May 2010
Married: 05/19/2012
TTC #1: June 2013
BFP: December 2013
DS: Born 08/29/2014
TTC #2: July 2015
BFP #2: September 25, 2015
DST T4L
you and your fam in my thoughts!!
@parsonsperson - It's pretty ridiculous. They first tested baby's blood through the umbilical cord, so they were able to use an ultrasound to get a needle into a vein of the umbilical cord. The first sample came out looking like "pink koolaid" as my H described it confirming that baby is/was anemic. Once they confirmed the anemia, they used the same needle to pump blood into baby. My H said that by the third sample, baby's blood looked normal...Pure craziness what they can do these days, but so thankful they can! It definitely had it's risks but without it baby wouldn't have survived much longer, so we're hoping all works out!
@VikingGirl12 - I was trying to get that to be my siggy! But failed...great minds think alike
*edited for an incomplete sentence...pregnancy brain...