ready to give up

mackenzie07 · January 2016

Well we had our second meeting with the RE yesterday. When we seen him the first time he did blood work and had me start a prenatal like most doctors do, fab, and metformin 1000mg twice per day. After he gave me provera to induce AF. Since then he has had me on a low dose birth control pill to control my cycle until we got to see him yesterday. He told is that DH's semen analysis came back perfect. Which was a huge relief. But that he wanted me to do injectable's. Problem being he didn't tell me what ones so I could not find out from insurance what they cover. After talking with him we decided to try another round of clomid days 3-7. This time we will do 100 mg of Clomid and then a ultrasound day 12 to make sure its working. Dr Shamma our RE didn't seem to thrilled for us to want to try it again. I did two rounds with my OB-GYN, one which i ovulated and another to which I didn't. I just feel let down since he was really wanting us to do the injections and then possibly IVF in case i overstimulated. DH had neck surgery so we are still catching up on bills from that back in October, plus we are trying to fix our credit and do not have the best credit to get financing for a IVF procedure if we even wanted to. Hoping that the clomid works and that the metformin helps to regulate my cycle. DH and I just don't know what to do. We both want a family but we don't want to go into a huge debt hole that will be really hard to get out of.

The other part is the RE dr Shamma said that since I have insulin resistance do to my PCOS I should loose about 10 percent of my body weight. UGH. I have been really trying to watch what we eat and get rid of a lot of junk food. I would need to loose 18 pounds. To me that's a lot. And its makes me so sad becuase people get pregnant who are overweight every day. And to me it makes me mad/sad all sorts of emotions. How come everybody around me can have kids but its so hard for us.

Just looking for some support.

2015dee · January 2016

@mackenzie07 - so sorry to hear about your disappointment. I know how difficult PCOS can be at times. It is GOOD news that your DH's tests came back good. Do you know for sure that you have coverage for infertility treatments? If you do, I'm sure your doctor could select the ones that are covered by your plan. I am not sure about any of that, as I have no coverage for infertility treatment.

This might give you a little hope. I have PCOS, but I am not overweight and I don't have insulin resistance either. Within 4 months of starting metformin, I started ovulating some on my own (without meds). Women that are insulin resistant tend to have a better response to metformin. Some people are against using metformin, but it has helped me a lot. And yes, losing 10% of your body weight would really help your symptoms. It is possible that you might start ovulating on your own with weight loss and metformin. IMO, if you have only done 2 cycles of clomid, it is worth giving it another shot or two before moving onto other treatments, if that's what you're more comfortable with.

wendyp28 · January 2016

@mackenzie07 I wish you the best on this cycle. I to has PCOS and feel the frustration of watching everyone around me easily make babies. I did 2 rounds of Lotrazole which is like clomid and just received a BFN after my first attempt at injectables. My RE was super conservative with my meds so I wouldn't overstimulate which frustrated me because I'm willing to convert so because of such a low dose I only produced two which is what I produced with Letrazole. So hopefully next they will actually medicated me appropriately. Losing weight is hard but know that I'm out here rooting for you. Sounds like we have some things in common so I'll keep you on my radar. Gl and fx.

smdrodgers · January 2016

Don't give up! My new mantra for the year is to control the things I can, and let go of what I can't. Focus on your DH's awesome SA results. If you are already working on eating healthier, that's a great step in the right direction! I definitely agree with @2015dee if you know what is covered by your insurance, I'm sure your doc would be be willing to look at what is covered and see if it will help.

It is definitely hard to see others get pregnant and they appear to be in the same situation as we might be, but I remember reading on here one day, try to imagine they are someone who also went through a struggle to get where they are today. All of our times will come, hopefully soon!

Keep your chin up!!

MelD17011 · January 2016

@mackenzie07 The one thing I learned thru this process is to be patient and expect bumps in the road (they are inevitable). I know how frustrating it can be, but hang in there! We are lucky enough to have insurance coverage, but it takes a lot of work on your part to get it all lined up (I thought I could rely on my docs and the insurance company – but boy, was I wrong). So if you think you have coverage, just stay on top of it. Good luck!

tvh1982 · January 2016

Keep going strong lov and don't give up.
Only stop when it doesn't feel like your giving up, but are ready to let go.

The following quote/text I posted when I was at my worse, and a dear friend texted me telling me she needed to hear those words that day too. Maybe the will be inspiring to you too:

Dear God, if today I lose my hope, please remind me, that your plans are better than my dreams.

LizzieJ13 · January 2016

Hi @mackenzie07, sorry to hear about your struggles. I also have PCOS and have done 2 unsuccessful rounds of Letrozole. (Well, unsuccessful in that I didn't conceive - I likely did ovulate both times.) I'm also trying to lose weight and taking a break from meds (except Metformin) right now to try and get that in line before going back to Letrozole. Anyway, my husband and I are about to start a "Whole 30" challenge - I've read it's supposed to be helpful with PCOS.

It is so frustrating to see others get pregnant without help (that we know of). I have 3 close friends all due this spring and my sisters had babies this fall and it hurts a lot. I'm not sure there's any way around that. As cheesy as it sounds, I try to count my blessings and remind myself how lucky I am to have my husband, family, friends, employment.... etc. Some days (like today, actually!) it's harder than others but we all know how you feel.

mackenzie07 · January 2016

Thanks ladies! I tried to see if my RE's office could tell me what is covered and whats not but im not having such good luck. I don't even know where to start besides calling and saying he mentioned these drugs and was wondering what is covered. I know my insurance will cover half of a iui. I am not sure how many they cover though.I did google common injectables they give for ivf and thought about just calling my insurance tomorrow and seeing what they would cover myself.

I was just bummed he didnt seem happy to try another round of clomid. This time it will be taken with my metformin so hopefully I get a good result. My tubes were open in 2010 and thats good. But DH is all ok so I cant fathom spending almost $300.00 my cost for a iui when hes in good shape.

smdrodgers · January 2016

@mackenzie07, you should definitely call your insurance company and see what's covered. You are your own best advocate, and they are normally quite helpful. If you know what he likes to, or would likely prescribe, go from there with the insurance company.

mackenzie07 · January 2016

Well i called insurance and for menopour pr gonal-f its 20% that i have to Pay up to $200. But then a iui on top but if dh is healthy i cant see why i would spend the money for it

2015dee · January 2016

Why not just try injectables without the IUI?

salt+light · January 2016

So sorry to hear about your struggles! It's such a blessing that your medication is partially covered; that's great news! I have been on Gonal-F before and the generic (same exact medication) is Follistim. If you still have to pay 20%, at least your out-of-pocket might be lower; I would ask your insurance company about the cost difference. It sounds like an injectible with timed intercourse may indeed work for you if you don't have MFI, if your doctor thinks that's a good idea (but injectibles are often monitored via ultrasounds and bloodwork, so you'd have to see what those costs would be). You could also look into some clinical trials, in which case your out-of-pocket costs would be completely (or mostly) covered. Don't give up hope!

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