Last week I met my geneticist for the first time, we talked about family history and touched base on my heart condition we believe to be due to Marfans Syndrome. It effects connective tissue in the body, and my Aortic Root Heart Valve (which a main artery pumping blood into your body). He went on the tell me I have a 50/50 chance of surviving thorough labor and delivery, the added blood volume during pregnancy can strain my heart valve and make issue. At labor it can make the heart valve rip complete and cause death if not caugh in time. He also suggested Abortion, because of the high risk pregnancy risking my life. I'm currently 22 I have known about this heart issue since 16 and have been extremely careful about having safe sex. The only thing that can fix my (Aortic Root Heart Valve) in emergency heart surgery after I give birth to my baby. This pregnancy is the most amazing blessing to my boyfriend and I even if by surprise, I hope everything will work out! On the 18th of November we will find out the sex of our child we're so excited! Got to keep postive and faith even in the hardest days we have to push thorough together, if anyone is going through something similar contact me I would love some one to talk with!
Re: 50/50 Chance of surviving labor
DS2 due 12/12/18
DD1 - BFP 7/23/15 (EDD 3/31/16). "We believe in you rainbow" DOB 4/2/16
DD2 - BFP 2/9/18 (EDD 10/19/18). "Grow baby grow!" DOB 10/24/18
BFP 11/16/20 (EDD 7/31/21). "Round 3 FIGHT!"
I'm no Dr, but it seems like this is a conversation that I would push to have immediately. I'm sure they say "we'll talk about it later" because they think you may change your mind about having the baby because of the risks but since you seem confident in your decision I would request that the termination conversation be ended and the preparation for as healthy and controlled a labor as possible conversation begin,
Good luck! I'll be thinking of you,
*Kate*
February 2016
I will be praying for you and your boyfriend and your sweet baby.