I go for my consultation at the maternal fetal clinic tomorrow. I'm terrified. What it they tell me there is nothing they can do?
It's out of your hands right now. It's in the hands of God and your doctor. I hope you are able to find peace while you wait for answers. Please keep us posted and know that we are thinking of you and you will find love and support here no matter what happens. ❤️
I am so sorry to hear your going through it... but to give you some hope. My brothers first born had some bladder and kidney problems. Not a hundred percent sure what they were because I was still in school then and not overly fussed with those things (SORRY) but I do know that they monitored him closely through out the pregnancy, things got hairy sometimes but they managed to keep it under control till birth. He did have to lose a kidney but he is now a very healthy 8 year old boy who is very active and keeps everyone on their toes!
We found out it's a boy. Other then that not very good news. His bladder has gotten bigger. It's now so large it is displacing his internal organs. After a horrible talk with some scary statistics (100% mortality rate without treatment and 95% mortality rate with treatment) we have decided against a termination. We will instead wait 2 weeks to have another scan to see his condition as well as some testing (like an amnio) to see if he is eligible for treatment. To be eligible it has to be confirmed that he is a 'he', he has to have no other genetic abnormality and his kidneys have to still be functioning. If he fails any of these the next step will be a termination because he can't survive without being treated. If he passes then he may be eligible to get experimental treatment that involves puting a small camera into his bladder and lazering the urethra open. However in Australia it has never been completed successfully, only in America. So it's a wait and see game still.
Oh gosh mama. How scary! It's going to be a long few weeks! But I hope that things change for the better. I believe in miracles. So I'll be praying you get one! Even if that's a successful treatment! Big hugs. I can't imagine how you feel. I wish there was more I could say. Thinking about you and praying for you guys!
Praying for you and your baby I really hope you get some positive news we are all here for you to vent to xxx I know it's hard but please try not to stress rest and look after yourself big cyber hug!
Sending lots of love your way. I hope they are able to do everything they can for your little boy. My best friends little brother had a bladder problem and needed surgery in utero. I was 5 so I don't know the complete details but he is a very healthy awesome 23 year old now. Keep us posted.
Re: Fetal Abnormality- I'm devastated- Update
Little boy due July 31st 2016
Little boy due July 31st 2016
Little boy due July 31st 2016