March 2015 Moms

two vessel cord. (sad story)

My little girl Aspen Rayne was diagnosed with a two vessel cord at our 20 week ultrasound. It was not news we haven't heard before as our previous daughter was diagnosed with the same. So I knew that from week 32 on was going to be weekly NSTs.

She started out doing great with the first few NST we had done. Then she started to fail them, so we ended up having to start weekly BPPs. A few BPP went great (besides low fluids) and a few she failed. She just did not want to move as much as she should of in there. So when she failed I got to spend roughly 6 to 8 hours in L&D for more monitoring. Eventually she passed and I got to go home.

Finally the day had come for her to be born. On the day of 3/6/2015 I went into labor. It was a rough labor. They kept having to chase her to keep her on the monitor and her heart rate kept dipping with each contraction. After all that she entered into this world at 3:32 pm screaming her lungs off and with the cord wrapped around only her foot (thank God). She weighed 8 lbs 8 ozs and was 20 inches long. We got to lay skin to skin to a long time just cuddling and being as happy as can be. I am in love!

They started to test her blood sugar because she was big for her gestational age. It was low. So before every feeding they we pricking her little heal to test her sugar levels. They always came back low. They let me keep her with me in my room that first night. Just making sure that she ate every 3 hours and testing her sugars. They noticed she had labored breathing.

After a few hours her breathing never slowed so they took her to the NICU and hooked her up to IV fluids to help with the blood sugars and to watch her breathing. That's when they noticed that the oxygen level in her blood was low. So they did an echo of her heart. (I am an emotional wreck by this point). They spent hours looking at her heart and I spent hours pacing my room with no answers. They finally let me go in and see her and she stops breathing...

They had to incubate her. My world is crashing in front of me and there is not a thing I can do.

They ended up using life flight and flying her to Kansas City Children's Mercy Hospital. (Only an hour from where I live).

It is now around 1:20 am on 3/8/2015 when I finally arrive at the hospital. She is stabilized! After a long night her dad and I get about 4 hours of rest. When we go see her we get the news... they had done another echo of her heart and they are talking about things that I can't comprehend and things I don't want to hear. She needs heart surgery.

Turns out there are vessels in the heart that are attached to the wrong area and are dumping blood in the wrong area and mixing oxygenated blood with non oxygenated blood and her artery is narrowed.

Please pray for my angel.
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Re: two vessel cord. (sad story)

  • Oh hun.. Every parent's living hell. Definitely sending prayers your way. Hang in there..
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  • So sorry to hear this! My thoughts are with you and your family at this difficult time. Please be sure to keep us updated and know we are here if you need additional support.
  • Lots of prayers for you and your little one!
  • Sending lots of love and T&P's for Mommy, Daddy and Baby Aspen Rayne
  • Oh I am so sorry for what you're going through - fingers crossed for your whole family
  • Oh my gosh. I am sorry for you and your family. Hoping for the very best for your little girl.
  • ju123ju123 member
    Lots of prayers on your way and positive thinking! It's a hard time for sure, but take comfort in how advanced medicine is and that doctors will do their very best....
  • Im so sorry for what your having to.go through...lots of thoughts and prayers going your babys way!!!
  • Thoughts and prayers with y and your family! Stay strong for your little girl!
  • Definitely praying!!!
  • I'm so sorry. My heart goes out to you. Praying for you and your little fighter !
  • Praying for your little girl... And you, too! What a roller coaster of events.
  • Prayers for your little girl, family, and wisdom to all docs involved in her care. I can't comprehend all that you all are going through. Hang in there.
  • Lots of prayers to your family and Aspen! Extra prayers for the doctors working on her to guide them to helping you understand this journey to getting her healthy!
  • I am so sorry. Sending love and prayers your way.
  • T&P for you and Aspen! I'm so sorry to hear of the long road you've already been on and this diagnoses. I hope she can get all the help she needs and I'm happy that the doctors are working in such urgency to get her better!
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  • Sending lots of thoughts and prayers to you and your family!
  • Thinking of you - hope your little girl has a smooth surgery! She is a great size so that helps a lot!
  • Praying for you and your angel!
  • My baby has a 2 vessel cord as well and I am a nervous wreck, especially these last 2 weeks. I am so sorry you are dealing with this outcome. Please know that you and your baby are in my prayers! That God will have His healing hand on your baby and give you comfort through this time.
  • I will pray for your sweet baby. Please keep us updated.
  • Sending positive thoughts your way.....

  • Praying for you and your sweet girl
  • Im so sorry to hear this! :( my friends little guy was due tomorrow came day after valentines he just came home from open heart surgery we have tough little cookies I'll be praying for your love bug
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  • I'm so sorry, thinking of you and your family!
  • Sounds like CHD- have they said anything such as Transposition of the Great Arteries (TGA)? Please please message me- there is a fantastic private Facebook page for heart moms. They can give you advice, a listening ear, success stories and guidance. I would love to help you out in any way I can! Sending thoughts, prayers, hope and love to you and little Aspen.
  • I'm so sorry! Sending thoughts and prayers to your sweet baby Aspen. I'm a heart mom as well (my DD2 had open heart at 9 days old). It sounds like Aspen has a different defect than my Lainey but if you need to talk or ask questions feel free to PM me.

    It's terrifying when you're going through it but just take it hour by hour and don't forget to take care of yourself too momma (eat, rest, drink fluids). It's easy to forget that you just gave birth when your baby is sick.
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  • Thank you everyone for your support and prayers. It means so much to me. Today little Aspen is still stabilized and doing most of her breathing on her own. Tomorrow we should know more about when they are going to do surgery and more about what they have to do to fix her heart. I will keep you updated.
  • So sorry! I can't imagine what your going through. T&P with you and your family.
  • I can't imagine what you and H must be feeling. Your family is in my T&P.
    ________________
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    TTC #1: Jun 2014. BFP #1: Jul 18, 2014. DD born Mar 2015.
    TTC #2: Aug 2015. BFP: #2: Nov 9, 2015. EDD: Jul, 21 2015.
    Vow Renewal: July 1, 2017.
  • Our prayers are with you, Aspen and your family!  If you don't mind me asking, they didn't see anything on the sonogram of the heart?  I have a two vessel cord as well and due in about 2.5 weeks, my doctor doesn't seem worried and is treating me just about the same as a normal pregnancy (other than an extra sonogram and a non-stress test that I requested).  I had two detailed sonograms, I'm curious if you had the same and yours was missed? 
  • They didn't catch this on the sonograms. They did non stress tests weekly and she did fail a few of those. So they started doing the BPP where they access the baby through the ultrasound. And there was no sign of anything wrong with the heart.
  • My oldest daughter also had a two vessel cord and was monitored as well but she was born completely healthy.
  • Prayers up for your family.
  • Was the narrowing of her artery a coarctation? My dd2 had a severe coarctation that wasn't seen on the 20 week u/s either. The cardiologist told us that he wasn't surprised b/c those are very hard to see at an anatomy scan.
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  • I'm so very sorry you're going through this right now. Praying for you and your sweet little girl.
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  • Lots of prayers !!! So sorry to hear this, put your faith in the Lord he will get you through this.
  • Praying for your daughter and family ❤️
  • Praying for your sweet little one.  Stay strong and know that God is in control at all times...
  • Prayers!  I'm so sorry :( 
    PPD/PPA Mom...it has been super hard, but I'm making it! Slow steps...
    Mom to Carter (6), and Calianne (1).  
    Proud VBAC, natural birth, breastfeeding, cloth diapering momma!


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