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Potential vision problems - congenital cataract

blessdtxasblessdtxas member
in Special Needs
Hello! I'm new here. Just looking to get this off my chest and gain support if anyone has been through the same/similar situation:

I think my son has a unilateral anterior polar cataract im his left eye. I originally noticed a tiny white dot in the middle of his pupil when he was 2 weeks old. My pediatrician saw him at his 1 month well visit yesterday and I brought it to his attention (I called when I noticed it but they didnt think it warranted a sick visit). He couldnt see the dot at first, but upon closer inspection noticed it. He didn't seem overly concerned but referred us to a pediatric ophthalmologist for a specialists opinion.

Other than the dot, his vision seems to be ok (red reflexes are apparent and he tracks with both eyes) & he is healthy and thriving.

I'm just nervous of what the diagnosis will be. There is so little info available on it, & the outcomes seem to vary greatly from no vision impairment, surgery, patching, to blindness.

We go to the specialist in 2 weeks.

Sorry for the long post - just wondering if anyone has been through this? TIA



DS1: 12/17/2014
DS2: born sleeping at 26 weeks on 8/8/2016 due to chromosomal deletion
Pregnant with baby 3 -  EDD 9/14/2017

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Re: Potential vision problems - congenital cataract

  • bumpuser511563bumpuser511563 member
    I just want to welcome you to our board! I have no advice.
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  • Assembly_ReqdAssembly_Reqd member
    Welcome! Nste has nystagmus, an underdeveloped macula which finished development by about 12 months and a slight lazy eye that was corrected with patching. I don't have any advice about cateracts. Don't borrow trouble and google. Google is never kind. Good luck at the specialist and keep us posted.
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  • blessdtxasblessdtxas member
    Thank you both!

    DS1: 12/17/2014
    DS2: born sleeping at 26 weeks on 8/8/2016 due to chromosomal deletion
    Pregnant with baby 3 -  EDD 9/14/2017

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  • blessdtxasblessdtxas member
    Just wanted to follow up in case someone searches the board with a similar problem: the ophthalmologist said he has an anterior polar cataract but it is visually insignificant and shouldn't cause problems with his vision in the future. He said the iris forms as a sheet in the womb and "melts away" to make way for the pupil. He said it is just part of the iris that didn't go away.

    DS1: 12/17/2014
    DS2: born sleeping at 26 weeks on 8/8/2016 due to chromosomal deletion
    Pregnant with baby 3 -  EDD 9/14/2017

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