Any of you have to use similac neosure with your babies? We have to pump and fortify with it and Matt is having a HORRIBLE time with it. Almost 100% sure he is having a milk allergy or to something in the neosure. He broke out in red welts/hives on stomach and face. They go away between feedings and then come right back with next feeding. We tried not fortifying his milk and saw improvement until I goofed and gave him about 10ml of straight formula (thinking it was just fortified bm). Horrible rash, violent stomach pains, arching back, turned red, spitting up to the point it was coming out his nose. Needless to say I got ZERO sleep last night. He has reflux, but wondering if this is the cause of that. I miss my happy content boy from NICU. He grunts and groans as though in pain most of the day/night. We give little remedies gas drops with each feeding with not much help either. That was our pediatrician a recommendation for the reflux. Now we have the rash to call about tomorrow. He seems pretty set on havin boys stay on the neosure. Well Matt suffers, Drew seems to be fine, except for random constipation today.
Any similar experiences/advice? Did they switch kids off neosure? If so to what?
10 medicated IUI's (3 with injectables).
IUI #1 (medicated) Jan. 2013-BFP!!!!- Beta's didn't double, MTX shot for possible ectopic.
8 IUI's between April 13-April 14 = BFN
IUI #10 and final before IVF, injectables May 2014- BFP!!!! TWINS!!!!
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8 weeks to the ER with vaginal bleeding while on vacations! Diagnosed SubChorionic Hemorrhage. Babies are both great.
9 week ultrasound showed both babies are still great.
My daughter was in the nicu and a month after she left was having the same thing you are experiencing we ended up at the gastro within two weeks because I told the pedi where to get off. It sounds like a def allergy. I would insist on trying a different formula first without milk then without soy and corn. Alimentum ready to feed is excellent for food allergies. There is no reason for your son or you to suffer.
Natural cycle Dec 2010 BFP M/C 6 1/2 Weeks, D&E Jan 2011 1 Clomid/Ovidrel BFN May 2011 Natural cycle Aug 2011 BFP M/C 4 Weeks 1 IUI Sept 2011 BFP M/c 7 weeks Provera Dec 2011 BFP M/C 3 Weeks
DQ ALPHA HLA MATCH, High NK Cells Diagnosed Dec 2011 IVF March 2012 BFP m/c 4weeks 5 days (IL, Prednisone) IVF#2w/DS July 2012 MEGA FAILURE BFN (IL, Dexamethasone) Diagnosed No real HLA Match, DQ Beta Triad, High TNF, Low NK Cells Oct 2012 Natural Cycle m/c 4wks (Lovenox, Prednisone) Went to Beer Center- high tnf, low lad, implantation failure
Nov/Dec 2012 LIT Treatment
Dec 12 Humira Jan 2013 BFP Humira,LIT,Prednisone, Lovenox, IVIG, Baby Aspirin Miracle Born August 2013 Premature
We use it and have no problems... My twins are three weeks old now. It sounds like an allergy and I would all your pedi for sure!
***siggy/ticker warning***
Me:36 DH:38 TTC#1 since 4/2012 Me DX: Hashimotos,Hypothyroid, DOR, MTHFR, DH: normal
IUI #1-#4 BFNs and a few cancelled cycles in the mix. - poor responder ***Suprise BFP on 6/13/13. Natural MC @6wks 3days IVF#1 and 2- Cancelled due to no response on max stimms FET 5/20- BFP 1st Beta- 641 2nd beta- 2166 Sono- TWINS!!!! Two Boys! Born January 2015 @36 weeks. Healthy and no NICU! So blessed!
We used it when we came home but I didn't like the fact that corn syrup solids are the first ingredient listed! So I asked the pedi if we could switch to organic formula and mix it to the right caloric concentration and she was fine with us doing that.
My boy also has terrible reflux. Although he never had the hives, he had everything else. The pedi finally put him on Zantac and that helped his discomfort almost immediately. He still has so much spit up that I can't believe he has even eaten anything (but he is gaining weight so I know he is) but his discomfort is gone. We went thru 5 different formulas because he was so gassy. He is now on enfamil a.r. His gas is almost non existent now.
Edit to say we also tried different formulas and weighed them down with a teaspoon of karo syrup. Didn't help. Our baby girl is on enfamil gentle ease and has no issues.
TTC for 1.5 years with a crappy RE. 12 cycles with clomid (11 too many)
Mine are also on neosure. The only side effects they have is they are very stinky. Their poop and farts smell. My EBF older DS never smelled like this.
The hives would worry me. I would def talk to your pedi.
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My preemie son had terrible reflux on it as well and arched a lot early on. He was put on omeprazole for the reflux. He didn't have any welts or rashes or anything else though. Sounds like your son definitely has an allergy!
Re: Neosure intolerance
My daughter was in the nicu and a month after she left was having the same thing you are experiencing we ended up at the gastro within two weeks because I told the pedi where to get off. It sounds like a def allergy. I would insist on trying a different formula first without milk then without soy and corn. Alimentum ready to feed is excellent for food allergies. There is no reason for your son or you to suffer.
Anovulatory cycles, increased Synthroid Diagnosed Sep 2010
1 Clomid/Ovidrel BFN May 2011
Natural cycle Aug 2011 BFP M/C 4 Weeks
1 IUI Sept 2011 BFP M/c 7 weeks
Provera Dec 2011 BFP M/C 3 Weeks
IVF March 2012 BFP m/c 4weeks 5 days (IL, Prednisone)
IVF#2w/DS July 2012 MEGA FAILURE BFN (IL, Dexamethasone)
Diagnosed No real HLA Match, DQ Beta Triad, High TNF, Low NK Cells
Oct 2012 Natural Cycle m/c 4wks (Lovenox, Prednisone)
Went to Beer Center- high tnf, low lad, implantation failure
Jan 2013 BFP
Humira,LIT,Prednisone, Lovenox, IVIG, Baby Aspirin
Miracle Born August 2013 Premature
Yours doesn't have to be a sad story
Me:36 DH:38 TTC#1 since 4/2012
Me DX: Hashimotos,Hypothyroid, DOR, MTHFR, DH: normal
IUI #1-#4 BFNs and a few cancelled cycles in the mix.
- poor responder
***Suprise BFP on 6/13/13. Natural MC @6wks 3days
IVF#1 and 2- Cancelled due to no response on max stimms
FET 5/20- BFP
1st Beta- 641
2nd beta- 2166
Sono- TWINS!!!!
Two Boys! Born January 2015 @36 weeks. Healthy and no NICU! So blessed!
Edit to say we also tried different formulas and weighed them down with a teaspoon of karo syrup. Didn't help. Our baby girl is on enfamil gentle ease and has no issues.
The hives would worry me. I would def talk to your pedi.
"Just keep swimming, just keep swimming..."