June 2015 Moms

Update on our Baby

adorebeladorebel member
edited December 2014 in June 2015 Moms
Hi everyone, 

I've been a little scarce on the board this week since our NT scan and ultrasound, where we saw that our baby had an enlarged bladder of 14mm (should be 7mm or less). It's a 1 in 1600 chance that this happens, but 90% of chromosomally male babies with this issue recover from it. We still don't know if the baby is male and chromosomally normal (I had the CVS done today, which is much more painful than they let on!), but since this issue almost always happens in boys and our risks for the trisomies were extremely low, we were holding out hope that we might be in that lucky group. 

Sadly, we returned today (13w5d) to see that the bladder has grown to 20mm. Once it reaches this size, almost no babies recover on their own, and invasive techniques will likely only be available around 18 weeks, probably too late to help our baby. (Earlier intervention is possible in the UK, but not here, and it's debatable whether it helps anyway.) Depending on how the CVS comes back (and whether we can get results next week or it takes longer), we still have a shred of hope that the issue will right itself in the next few weeks, before the bladder expands to damage and constrain the growth of the baby's other major organs, but honestly, we're accepting that we now have to prepare ourselves for the worst. 

The hardest part was seeing the pretty little face of our baby on the ultrasound. He's still moving, kicking, and waving around in there, and his little heart is beating away as strong as ever. Neither of us was ready to make the decision to terminate right away, so we're going to wait it out until there's really no chance the problem will right itself, but we are losing hope that he will make it. I truly had no idea how much you could love a baby when it was still just a tiny promise. My heart feels anew for all the loss moms here, and I know I'll never take a healthy baby for granted again. Each one is a miracle. 

The combination of heartbreak and suspense is something I can't describe. On top of everything, we planned a cross-country move to be living closer to family when the baby came, and it's too late to back out, so we're packing up and leaving the life we've known amidst all of this. Thank you for every thought and prayer you expressed last week. I read that thread several times, and it gave me comfort. I don't know how often I'll be around the board while we wait, since it's hard to participate in the fun right now, but I'll definitely keep you all updated about how this turns out. 

I'm grateful for all of your support and advice. 
Rainbow Baby? {2.1.21}
MC at 8 weeks {EDD 9.2.20}
Rainbow Girl! {2.28.16}Pregnancy Ticker
Baby boy, lost at 16 weeks {EDD 6.10.15}


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Re: Update on our Baby

  • Hugs and prayers for you, your H and baby adorebel.
    DS1 born 3.15.2011
    DS1 edd 6.21.2015
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  • I teared up reading this, I am so, so sorry you're going through this. I'm praying for your baby and family during this difficult time. Hoping it all works out for the best.
  • I am so sorry to hear this. Can only imagine how heartbreaking the situation must be. Thoughts are with you.
  • I am so sorry to hear this. I'm praying that this issue rights itself and your cvs is all good news. Take care of yourself.
  • I can't even begin to say how sorry I am that you and DH are going through this. My prayers will be with the three of you and I will cross my fingers AND toes that something can be done or that it fixes itself. Again - I am so, so sorry. All of the hugs.
  • I am soo so sorry you have to feel this heartache and uncertainty. It's so unfair. I'm hoping and praying for the best and that you and your DH find peace regardless of outcome. I'm thinking of you.

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  • Hugs, thoughts and prayers for you and your family!
  • beckynsean11beckynsean11 member
    edited December 2014
    I can't express how sorry I am that you're going through this. I completely understand waiting until you're 100% certain that this will not resolve & there is nothing that can be done. When I was admitted to the hospital in April, my doctor offered to terminate if we wanted. I asked her if she could look me in the eye & say with absolute certainty that there was zero chance of survival. She couldn't, so I waited.
    I'll be holding out hope for your little one and sending strength to you & YH. Hugs!!

       Me: IR-PCOS, elevated DHEAs, low progesterone, weak ovulation  DH: low volume, low T
    SHG 5/10/13: both tubes blocked; HSG 6/28 = Left tube cleared! Right blocked.
    BFP#1 7/20/13 EDD 3/30/14, m/c 8/19/13, D&E 8/21/13, Chromosomal results = normal, female
    Lap & hysteroscopy scheduled for 10/31, right tube cleared, no endo found! ...Happy Halloween!
    Cycle 14: Clomid (50)+ IUI = BFP! EDD 9/16/14~ Rowan Elizabeth born sleeping at 17w4d on 4/12/14 due to IC.
    ~There is no foot too small that it cannot leave an imprint on this world~
    New RE June 2014. RPL b/w - negative. SIS looking for uterine/cervical abnormalities & Asherman's 6/10/14 - ALL CLEAR!  
    Cycle 16: Natural IUI = CP, Cycle 17: Femara (2.5) + IUI = BFN, Cycle 18 Femara (5) + IUI = BFFN, Cycle 19: Break
    Cycle 20: Clomid (50)+ IUI = BFP EDD 6/20, transvaginal cerclage 12/19, Carson Quinn born sleeping at 16w3d on 1/6/15 due to IC
    Phone consult with Dr. Haney (Univ of Chicago) for transabdominal cercalge scheduled for 2/9/15.
    "We are the music makers, and we are the dreamers of dreams."
    image image imageimage 
  • I'm so sorry you're going through this. I'm thinking of you and your baby. 
    TTC since May 2012
    Me: 32 H: 31
    DX: MFI-Very Low Count, I have Hashimotos.
    IVF prep September 2013 cancelled due to Ovarian Cyst
    IVF #1 October 2013 Antagonistic Protocol with ICSI  ER 10/31/13 (18R 16M 11F- 6 blasts to freeze)
    ET delayed due to OHSS 
    FET scheduled for July 8. Delayed due to a crazy high TSH (it had been under control for YEARS!)
    FET #1 8/5/14 sET BFN 

    All welcome!
  • I am so sorry to read this :( I will keep you in my thoughts and prays and hope that things turn out ok.
    Baby Birthday Ticker Ticker
  • This is heartbreaking. I'm so sorry you are in this state right now. I'm praying for you. I hope that the next few weeks things turn around. I have been in a position where termination was necessary.. Please do not hesitate to PM me if you need to talk. Keep us posted. Hugs.

    Baby Birthday Ticker Ticker


    IAmPregnant Ticker



  • Oh my. I am soo sorry to hear this! Thoughts and prayers!
  • I am so sorry! Lots of T&P to you and your family. Xo


    Pregnancy Ticker


  • I know it doesn't help, but I'm sharing tears with you as I read this. Please know I'm thinking of you, and wishing for you be surrounded and held up by the love and support of your family and friends.

    So, so many hugs. Please let us know if there is anything we can do.

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  • I'm so sorry. I just can't imagine how you must be feeling. Please know I am thinking of you.
    image

    BabyFruit Ticker
    Married J on 5.21.10
    G born on 9.30.12
  • I am so sorry you are going through this, I can't imagine how heartbreaking it is. Praying that somehow baby recovers and the cvs comes back with good results. Sending lots of love and hugs your way. Try to see it as a good thing that you'll have your family as a support system...


    BabyFetus Ticker

    imageimage
  • Praying hard that you get your miracle and this resolves itself. So sorry you're going through this!

    Pregnancy Ticker



  • I'm so sorry. I Don't even know what to say. My T&P are with you and your family.
  • My heart is breaking for you. I am praying for you and for your LO.
  • SO many positive thoughts your way.  I'm so sorry you are going through this.
  • I'm so sorry. I'll be praying for you guys and your sweet baby in hopes that everything will work out.

    Me (31) Him (31)
    Married: 5/2013
    CP: 9/18/14 (4w:4d)
    BFP: 10/16/14 EDD: 6/21/15

    Lilypie Pregnancy tickers

     
  • So sorry to hear this. Sending thoughts your way!
  • I'm so sorry for what you are going through.
    Coffee Bean Born 6/13/15.
    2nd round exp 8/20/18.
    Meow.
  • Your post brought tears to my eyes. I will be thinking of you and LO and hoping that you get good news.
  • I'm so sorry. Thinking of you and your family in this sad, scary time.
    imageimage  
               J15 January Siggy Challenge: Pinterest Fails
    BabyFetus Ticker
    Married 9.29.12
    TTC #1 8.2014 BFP #1 9.26.14 - Happy anniversary!
    Expecting our little Peanut 6.9.15
  • I am crying for you right now. I hope that your baby defies the odds and it's bladder shrinks soon! Lots of thoughts and prayers headed your way.
    BabyFruit Ticker
  • Very sorry to hear this. I am really hoping for better news for you. Your heart must be breaking, ours are breaking for you. Please let us know what we can do. We are here for you.
    Lilypie - (bDmZ)Lilypie - (SUYh)
    image imageimage

  • I cried when I read your post, I am so sorry this is happening to you. My heart hurts for you and DH and sweet baby. Thoughts and prayers for you.
  • So sorry to hear about this... How difficult for you two. Prayed for you two just now, for peace, comfort, and for a miracle to heal your precious baby.
    Pregnancy Ticker
  • I can't even imagine what you're going through. My thoughts and prayers are with you. 
    BFP#1: 9/21/13  EDD: 5/31/14 m/mc @ 7w6d on 10/27/13
    BFP#2: 10/4/14  EDD: 6/7/15  DD born 6/4/15💕
    BFP#3: 12/24/19 EDD: 9/6/20
  • This is heartbreaking, and I am so, so sorry... Please let us know if/when we can help.
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    BabyFetus Ticker

    June 2015 January Signature Challenge: Pinterest Fails
    image
  • I'm so sorry that you are going through this. I will pay for you and your baby.
    FET to TTC #2: 9/29/14 Beta on 10/8/14 = BFP!
    DS #1 Born 1/3/11 after IVF #1
    4 failed IUIs, including 1 CP
    PCOS
    TTC since 2008

    Pregnancy Ticker Baby Birthday Ticker Ticker BabyName Ticker

  • I'm so sorry to hear that you're going through this. I hope that the problem corrects itself and that your baby is healthy. Keeping you and your baby in my thoughts and prayers.
  • I'm so sorry for what you are going through. I will pray for you and your little one.
  • I'm am so sorry. I can't imagine what you are going through. Your family will be in my prayers.
  • The user and all related content has been deleted.
  • My heart just broke for you. I'm sending t&p your way and praying you get some good results from the CVS!




    BabyFruit Ticker
  • I am so very very sorry you're going through this. You will continue to be in my thoughts and prayers.
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    Baby Birthday Ticker Ticker BabyFruit Ticker
  • I'm sending you all the love and strength in the world, I can't imagine what you're going through! I'm
    Keeping you and your family in my thoughts xoxox
  • I am so sorry. You are in my prayers
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