I'm so sorry. That's very tough. Positive thoughts and prayers your way. My mom (had, she passed due to complications from an ulcer) and my sister have thalassemia. Very stressful.
Turns out I'm a CF carrier so we had to have my husband checked, very tough two week wait.
U guys are so awesome. I'm so appreciative to be apart of M15...
@bdazzld no his family doesn't only carriers of sickle cell trait that they know of.
@cygnet15 as I'm reading your awesome response I don't believe your dabbling is so amateur at all! I read it aloud to my husband and he says see this is what I'm also trying to tell you! Lol so true but still not so easy for me to just wrap my mind around. Finding out so late in the game when I felt we dodged so many bullets really stresses me! But thank you so much!
I'm sending positive T&Ps your way! I also tested positive for being a carrier of a very rare fatal genetic disorder and was terrified at first, so I understand how you feel. Finding out how truly rare it was, plus the fact that my husband doesn't have any of the ancestry that might put one at risk, made me feel much better. I hope you get good results that can put your mind at ease!
Lifting you guys and little Joshua up in prayer! Perhaps check out the preemie board. Those ladies are absolutely amazing! My son was delivered early, had severe IUGR, reflux and brachy cardia...he is a rambunctious and healthy 3 year old who is on track developmentally. You'd never know he stopped growing All together so early on during development. If anything, they are inspiring and supportive. I hope you don't need them!!
Definitely sending thoughts and prayers! We went through something very similar. When they drew my blood they found out I was a carrier of spinal muscular atrophy (a really nasty, and fatal, genetic disease). They had to draw my husband's blood to see if he was a carrier too, but luckily he is not! So now, worst case scenario is that our daughter will be a carrier, but she shouldn't actually have the disease. It's a really scary waiting period but hopefully you get good results!
Thoughts and prayers for your family and baby Joshua ...I can not imagine what you are feeling and going through .. Fingers crossed everything works out well and your husbands blood work comes back ok,... I understand the need for support for things you can't control... I'm currently 24 weeks today and Monday we had our anatomy scan and after the amazing news that we are gonna have the baby girl we've been hoping for I got a call saying they are sending me a hour away to specialist to check out the level of fluid in her Nuchal fold because it's higher than normal ...reasons for this could be possible Down syndrome or heart defects...I'm scared and I don't really have anyone to talk to about it but understand the anxiety of not knowing .... Hopefully by Christmas you and I will both have good news
Thinking of you and your husband! Everyone else has already said it much more eloquently than I could, so just know that you have more good vibes coming your way
@baileysbaby T&P's going to you and your husband as well! I'm hoping that we both get good news and can continue our pregnancy worry free about our little ones... @luckystarz yeah I've done a lot of reading these past couple of days which has been helpful the odds are in our favor but the chances are still high. I've also read that I would have been having major complications during my pregnancy if my son had the most fatal disease associated with me having this blood disorder. I'm praying. I hope this week goes by fast! I need those results!
Thank you to all of you ladies! Your much needed support is truly appreciated and uplifting!
U guys are so awesome. I'm so appreciative to be apart of M15...
@bdazzld no his family doesn't only carriers of sickle cell trait that they know of.
@cygnet15 as I'm reading your awesome response I don't believe your dabbling is so amateur at all! I read it aloud to my husband and he says see this is what I'm also trying to tell you! Lol so true but still not so easy for me to just wrap my mind around. Finding out so late in the game when I felt we dodged so many bullets really stresses me! But thank you so much!
Thalassemia I believe is a mutated form of sickle cell, tear drops versus sickle shaped cells. Fingers crossed for you, and you'll be in my thoughts!
Re: Major T&P's needed ladies... Just finding out about Genetic disorder
Turns out I'm a CF carrier so we had to have my husband checked, very tough two week wait.
Does any of his family have it?
~~~~For SuzyQ and all our loss moms~~~~
Met: 02.2007 / Engaged: 11.21.2009 / Married: 07.09.2010
EDD: 03.02.2015 / Scheduled Delivery Date: 02.25.2015
BFP: 07/14/2014, EDD: 03/04/2015
@bdazzld no his family doesn't only carriers of sickle cell trait that they know of.
@cygnet15 as I'm reading your awesome response I don't believe your dabbling is so amateur at all! I read it aloud to my husband and he says see this is what I'm also trying to tell you! Lol so true but still not so easy for me to just wrap my mind around. Finding out so late in the game when I felt we dodged so many bullets really stresses me! But thank you so much!
TTC #1 May 2014
BFP 7/4/14 ~ EDD 3/17/15
My Chart
Thank you to all of you ladies! Your much needed support is truly appreciated and uplifting!
Hugs hugs hugs !!!
~~~~For SuzyQ and all our loss moms~~~~
Met: 02.2007 / Engaged: 11.21.2009 / Married: 07.09.2010
EDD: 03.02.2015 / Scheduled Delivery Date: 02.25.2015