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May 2015 Moms
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Opting out of genetic screening...

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Re: Opting out of genetic screening...

  • katietopazkatietopaz member
    hannahandjoeyyy said:
    My husband and I are, too. We believe God will give us a healthy baby but even if something were to be wrong, there's a reason we were chosen to have our baby regardless. Nothing could make us love him/her any less. Why worry ourselves? :)
    You've GOT to be kidding me. Read the post above yours. Read the rest of the thread. This is ridiculous.

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  • katietopazkatietopaz member
    Starbuck128 said:
    hannahandjoeyyy said:
    My husband and I are, too. We believe God will give us a healthy baby but even if something were to be wrong, there's a reason we were chosen to have our baby regardless. Nothing could make us love him/her any less. Why worry ourselves? :)
    You've GOT to be kidding me. Read the post above yours. Read the rest of the thread. This is ridiculous.
    You do realize she isn't going to read anything, right? None of them are. Just add them all to a post it note.
    Of course, unfortunately. And it would have graduated from a post-it to a full blown Excel spreadsheet by this point.

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  • TabHTabH member
    We have decided to go thru with the genetic screening process AGAIN because baby#2 is just as important as baby#1. And I'm not going to play the "oh I'm young, healthy and with no history of genetic defects in my family" card. I'm going to play the "I am an educated mother and would love to be even more educated about my child's potential future should a defect be found" card. This bullshit of "the results wouldn't change how I feel about my baby" is ignorant. When we went thru with the testing the first time I was admittedly very nervous and slightly stressed. But this time around, knowing what it's like to have a newborn at home and how stressful that can be in it's own right was even MORE motivation for us to find out everything we could about this baby. Personally, I just do not have time to be ignorant.
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  • CTcoffeequeenCTcoffeequeen member
    <3
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  • MrsPDXMrsPDX member
    I think it really makes a difference if you are higher risk versus low risk. I'm young and have no medical history pointing to why something would go wrong. If I was older or had any indication something could be wrong maybe it would change my mind.

    I also think part of it is trusting your instinct and trusting God (if your religious), and knowing that even if something is wrong, things will work out, one way or another.
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  • amysaavedraamysaavedra member
    My doc didn't really make it seem like a choice. She just sent me to a place, they did a quick ultrasound and some blood work. My doc did some additional blood work. Everything's perfect and the one genetic test told us we are having a boy!!! Crazy early, I know. My doc is young and newer to the field so I think she likes to be very thorough. In hindsight it was all sorta annoying haha but I do like that we know with 99% accuracy that we are having a little boy :)
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  • CharmedseedCharmedseed member
    This thread reminds me of the "You're a Good Mom" meme that came up a few years ago, addressing all the conflicting strategies and concepts that come along with parenthood. You're breastfeeding? Awesome! Bottle feeding? Also awesome! This really seems like it falls into the same category. We're all loving our little peanuts the best way we know how!
    Ben Louis, born March 20, 2015 @ 11:50PM. Delivered by c-section at 32 weeks and 6 days due to mother's pre-eclampsia. Doing brilliantly in NICU!

    Handstamped, custom jewelry from Charmedseed... grown just for you!
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  • stephanieseestephaniesee member
    SaltyH2O said:

    I am continually amazed at people that see pregnancy as "no big thing" and just waltz into it without a care in the world. I am grateful and thrilled to have my son and to have the chance to give him a sibling this spring....but this junk isn't for the faint of heart!!!

    Yes to this. Yes x483834737375. I desperately wish I could be those people.
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  • stephanieseestephaniesee member
    Pintobean39 said:

    This ignorance in this thread makes me worry about the future generation. It's like some of these women are so freaking clueless.

    Must be nice in their little bubble.
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  • stephanieseestephaniesee member
    Is it stressful? Absolutely. But (to repeat many other responses) the stress will be now and not when you have a newborn on you hands. It wasn't really a question when my dr presented it, it was more like this is what we're drawing blood/doing an ultrasound for.

    No one on this board doesn't love their child, for goodness sake that's why everyone is on here! The "I love my child regardless" comments are passive aggressive and I know people IRL just like you. I roll my eyes at them too.
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  • skupski83skupski83 member
    I opted out. To me, it wasn't going to change the outcome. And while I may have had more time to prepare in case the results ended up poorly, I would have been so stressed after finding out the results. I guess, selfishly, I figure ignorance is bliss...
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  • skupski83skupski83 member
    :( I dunno if it was meant to negate anyone else's love for their child bc she said she would love her baby regardless. Sometimes forum postings can be interpreted differently bc tone and inflection isn't picked up. I'm sorry you are upset, of course you love your child.
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  • DivinesMumDivinesMum member
    It's best to know how the baby is developing which is why I am in favor of the non-invasive test. It's best to be prepared and research treatments for a child who may need them.! Think about it like this, it's only blood.
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  • Lezzie82Lezzie82 member
    I will probably do this but I am waiting until I can't put it off any longer. I'm reallllllly freaked out to do another one. I know it's smart, but my doc is letting me wait until my HG dies down and do far (KOW) all my scans have looked good.

    My first pregnancy they did my 20 week scan and decided my baby had some signs pointing to maybe having Trisomy 18. We found out on a Thursday and had to wait a whole week to see a specialist. During that time all I did was google and freak myself out completely. I couldn't hardly eat or sleep. Then I somehow found strength and calmed down and started trying to prepare myself for the possible battle. Then they came back and said everything was fine!! I was lucky.
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  • crbartlamcrbartlam member
    When my dr asked me the first time when I was 6 weeks, I told her it wouldn't be necessary. I originally thought it would be the invasive testing. At my 12 week they told me about a blood test called harmony. It would let us know the risk of down syndrome, but would also tell us the Sex of the baby! I was getting blood drawn anyway that day. (My hubby now knows, but I'm waiting until our gender reveal party which will be in a few weeks, after our next ultrasound, just to be sure).
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  • bdbrandt2bdbrandt2 member
    I honestly had no idea what genetic testing actually tested for..I feel like I should have done more research when they asked. But at the time I knew my family has a history of CF but I also know that the gene has to come from both parents for the baby to present CF and not just be a carrier. So I didn't see a need to get tested for DS since I'm 25 and I didn't want to get tested for CF because I knew I would stress myself out which isn't good for the baby...BUT we will be demanding the baby be tested for CF, I know the early signs to look for because my younger cousin has it, and I will still read up on it beforehand because PPs are correct-it's better to be informed so you can take care of your needy little newborn.

    So, no to genetic testing. Yes to anatomy scan and yes to early research.
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  • Pintobean39Pintobean39 member
    bdbrandt2 said:

    I honestly had no idea what genetic testing actually tested for..I feel like I should have done more research when they asked. But at the time I knew my family has a history of CF but I also know that the gene has to come from both parents for the baby to present CF and not just be a carrier. So I didn't see a need to get tested for DS since I'm 25 and I didn't want to get tested for CF because I knew I would stress myself out which isn't good for the baby...BUT we will be demanding the baby be tested for CF, I know the early signs to look for because my younger cousin has it, and I will still read up on it beforehand because PPs are correct-it's better to be informed so you can take care of your needy little newborn.

    So, no to genetic testing. Yes to anatomy scan and yes to early research.


    So you would rather make your baby get a blood test and be check CF than get a blood test yourself now to even know if this is something you would have to worry about?
    Fucking bump!!!!
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  • stephanieseestephaniesee member
    lupineaura said:

    As I've said previously, there are valid reasons to opt out of genetic screening, but this is weird to me:


    "I didn't want to do genetic testing because we'll love the baby regardless, but then we realized we could find out the sex, so we're doing it! Yay!"



    HA!!! Which is exactly what I posted.
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  • skupski83skupski83 member
    @SoyBoy‌, sorry my response bothers u. U have a right to ur opinion, just as I have the right to mine. None of us know what's going on in each other's lives or what beliefs we all have that would sway our decision making. If someone opts to do the screening because they want to be prepared, more power to them. If I choose to wait and see, that's my right to do so. Either way, I hope everyone has a positive experience and healthy, happy results. Best of luck ladies!
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  • bdbrandt2bdbrandt2 member
    @Pintobean39‌ from what I understand they would test my baby anyway-knowing that it runs it my family. I don't know at this point in my pregnancy if my insurance would even cover the testing.

    If you know you're having a boy are you not going to have him circumcised because they have to cut his penis? I mean that's kind of what that sounds like to me. I won't be able to change the fact that my baby has CF, if indeed he or she does, and there's no cure for it. I know the warning signs, I have a great support system who has gone through this and can help me advocate. But like I said as far as I know they'll test my LO anyway because there are over 3000 strains if Cystic Fybrosis and there's no way of knowing beforehand which strains they carry. But I will ask my doctor if it's not too late to be tested :)
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  • bdbrandt2bdbrandt2 member
    @Starbuck128‌ what I inferred from her saying that I'll let them do blood work on my baby is that it would be painful, but it's very common to circumcise boys not only because of religious reasons but because of aesthetics and also to prevent infections...obviously that hurts the baby but people do it anyway. My thought was pain is pain, right?
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  • bdbrandt2bdbrandt2 member
    Also, stupid question but I've been wondering for a while, how do you embolden a certain sentence in a quote?? Can you do it on mobile?
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  • sabriel1sabriel1 member
    We did not do the testing. I am in Canada and the Panorama (and tests like it) are not readily available here and many doctors don't even know about them where I'm at. Personal research showed it would be at least $800 OOP. They also don't offer the NT scan and only offer the blood work screening to give you a chance of a chromosomal abnormality. Because there is no scan or anything the likelihood of a "false positive" was what turned me off from doing that test. I figured that the test would likely just freak me out and still not be able to tell me much that I wouldn't be able to see at my 20 week anatomy scan.

    If the more accurate testing/non-invasive testing was available to me then yes, I would get it.

     DD born Oct 2011 - DS#1 born Jan 2014 - DS#2 born Apr 2015 - DS#3 born Sept 2016 - LO#5 due Feb 7, 2018

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  • sabriel1sabriel1 member

    bdbrandt2 said:
    @Pintobean39‌ from what I understand they would test my baby anyway-knowing that it runs it my family. I don't know at this point in my pregnancy if my insurance would even cover the testing. If you know you're having a boy are you not going to have him circumcised because they have to cut his penis? I mean that's kind of what that sounds like to me. I won't be able to change the fact that my baby has CF, if indeed he or she does, and there's no cure for it. I know the warning signs, I have a great support system who has gone through this and can help me advocate. But like I said as far as I know they'll test my LO anyway because there are over 3000 strains if Cystic Fybrosis and there's no way of knowing beforehand which strains they carry. But I will ask my doctor if it's not too late to be tested :)
    Oh goodness, let's not go there in this thread too. Not like circumcision was anything to do with this particular thing anyways as the pain of the baby getting blood work is not the issue she is talking about.

    The MMM thread and this one have too many controversial issues for me to be able to get it up for circumcision today too.

     DD born Oct 2011 - DS#1 born Jan 2014 - DS#2 born Apr 2015 - DS#3 born Sept 2016 - LO#5 due Feb 7, 2018

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  • Pintobean39Pintobean39 member
    bdbrandt2 said:

    @Pintobean39‌ from what I understand they would test my baby anyway-knowing that it runs it my family. I don't know at this point in my pregnancy if my insurance would even cover the testing.

    If you know you're having a boy are you not going to have him circumcised because they have to cut his penis? I mean that's kind of what that sounds like to me. I won't be able to change the fact that my baby has CF, if indeed he or she does, and there's no cure for it. I know the warning signs, I have a great support system who has gone through this and can help me advocate. But like I said as far as I know they'll test my LO anyway because there are over 3000 strains if Cystic Fybrosis and there's no way of knowing beforehand which strains they carry. But I will ask my doctor if it's not too late to be tested :)

    Circumcision and CF test in now way shape or for are anywhere related. The CF test is just a blood test with a needle in your arm. My husband also has a history of CF in his family which is why I was tested. I'm not a carrier therefore our child won't have it according to the Dr. My understanding you both have to be carriers.
    Fucking bump!!!!
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  • brittenyscharfbrittenyscharf member
    I opted out with my first pregnancy. Although, the doctor I had never really offered he just said the different tests and told me that if I wanted them done to let him know. My son is healthy. However after having two miscarriages I am opting to do them just to be safe. Don't fell pressured, you don't want to? Then don't, your choice.
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  • shoff2shoff2 member
    I work for families and individuals with developmental disorders. I don't think anything can really prepare you for it. Even knowing before baby is born personally wouldn't make a difference for me. I respect everyone's opinions on it though. Praying for all the moms out there! If you find out your child will have a disorder look into all the services that are available where you live. There's so many out there that families don't know about.
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  • ajpcvajpcv member

    I decided not to get any of the screens, not even the NT, because I'm not high risk. Most of the tests come with some risk to the baby, so my thought is why? I will love my baby regardless, but if I were in any way high risk I would get the screens for sure. The fact is, I'm not. They aren't meant for everyone, neither my husband nor I fall into any of the categories that would recommend a screening, so I didn't get them. My midwife didn't even bring it up, and when I told her I wasn't interested she echoed my thoughts exactly. The anatomy screen is recommended for everyone though, and I will be getting it.

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  • ajpcvajpcv member

    Uhhhh, kind of my point. Sure for most results it wouldn't change the outcome (aka 'loving the baby regardless') but if I were high risk I'd get the screens. I'm just not high risk, so didn't get the screens. Guess I should have used different wording.  

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  • ajpcvajpcv member
    I'm really sorry, I didn't mean to imply anything by what I posted, it seemed to just come out wrong. I was trying to say that the choice to pursue screenings is irrelevant to how the family feels about their unborn child. It's an individual choice people make based on their own health history and recommendations from their care giver. The choice may even differ from pregnancy to pregnancy. I'm really sorry again, I truly didn't mean what it sounded like earlier.
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