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April 2015 Moms
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Spina bifida scare update

balcerekcbalcerekc member
in April 2015 Moms
We had our appt yesterday and it was confirmed that our little one does in fact have spina bifida. We aren't sure of te severity of the defect yet but know it's low on the spine which is a positive. We are pursuing a surgical team out of Philadelphia who specializes in the surgery and care of babies with spina bifida and all thoughts a prayers are greatly appreciated as we go through this process.
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Re: Spina bifida scare update

  • jk3610jk3610 member
    Keeping you in my thoughts! Hopefully the specialists will have some good information for you. Hugs.
    Together since 5.16.05 (16 & 19yo)
    Married since 3.6.10 (21 & 24yo)
    Baby Olivia coming 4.14.15 <3 (26 & 29yo)

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  • KellyA724KellyA724 member
    Thoughts and prayers are being sent your way. 

    TTC #1 since 4/2012
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    ET on 7/26 of one perfect blast
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  • redneckmomma25redneckmomma25 member
    Glad you are being so proactive. Hope you can get some great doctors and some positive reassurance! You are in my thoughts!

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  • lindsayanne14lindsayanne14 member
    Thinking of you and your family.

    BFP #1 4/10/12 D&C 6/5/12@ 12.5wks EDD 12/17/12
    BFP #2 9/10/12 CP 9/19/12@ 5.5wks EDD 5/21/13
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  • picklesxpicklesx member
    Sending lots of positive thoughts your way.
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  • sagehens47sagehens47 member
    Sending warm thoughts and big prayers your way...
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  • knitfastdiewarmknitfastdiewarm member
    Sending lots of good thoughts your way. Please keep us updated.
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  • sam800sam800 member
    T&P. wish you and the baby the best.
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  • lovemadduxlovemaddux member
    My thoughts are with you. Best wishes
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  • cf101009cf101009 member
    I'll be thinking about you and your family! I'm a pediatric PT and I've worked with children with spina bifida who have done great. It's wonderful that your already seeking interventions.
    Married 10/10/2009
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  • Mel&John2013Mel&John2013 member
    Sending thoughts and prayers your way. Philadelphia has some of the top pediatric programs in the country, they are top notch. I hope they can give you hope and guidance.
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  • redheaded14redheaded14 member
    Sending you lots of t&p's. Glad you are seeking treatment so soon!
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  • pepperjack76pepperjack76 member
    Sending thoughts and prayers your way. I hope these Dr.'s help you to get the best possible outcome!
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  • BluEyedGirl26BluEyedGirl26 member
    Sending you lots of thoughts and prayers!

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    TTC #1 since January 2013

    BFP #1: April 5, 2013; EDD December 11, 2013; Missed M/C May 15, 2013

    BFP #2: February 17, 2014; EDD October 30, 2014; M/C March 15, 2014

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  • taahirataahira member
    Sending you lots of positive thoughts.
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  • MushibambooMushibamboo member
    Tyrion said:

    Fingers crossed and positive thoughts it's a small defect! I've worked with a lot of infants with Spina bifida and most do extremely well after closure.

    I wish the best for your family!

    This has been my experience as well. Wishing you all the best and the best possible care!
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  • angelfish628angelfish628 member
    Keeping you in my thoughts and prayers.
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  • bride2bnVAbride2bnVA member
    (((hugs))) lots of positive vibes being sent your way!

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  • catlover790catlover790 member
    Sending you lots of good thoughts. I hope you are able to find a great doctor. Thinking of you!
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  • starshollowstarshollow member
    Sending good thoughts.

    A woman I know from my last BMB has a twin with SB. She is 2.5 years old and doing really great. Check out her blog where she talks a lot about raising a child with SB: https://erniebufflo.com
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  • EmmaSFEmmaSF member
    Thinking of you!! *Internet hug*
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  • Babykells3Babykells3 member
    Sending T&P to you and your family.
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  • Cali2090Cali2090 member
    Thoughts and prayers to you! My cousin has spina bifida, and was told as a toddler she would never walk. Today she walks WITHOUT the use of her canes and with a barely there limp. Hoping your little ones diagnoses is very minor and if it isn't, that he/she overcomes the odds!
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  • marigold32marigold32 member
    I sent you a PM
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  • JJBodenJJBoden member
    Prayers <3
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  • VeggieFanVeggieFan member
    T&P for you and your family!
                                                                     
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  • AmandysergioAmandysergio member
    Hang in there mama. Sending T&P and hugs your way!

    Amanda (24) DH (27)
    TTC#1: 2/2009 with PCOS - BFP 2/2013
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  • jlb902jlb902 member
    Thoughts and prayers for you.

    *** BFPs and Loss Mentioned ***


    TTC since 08/2012

    BFP 12/28/12-- EDD 9/19/13-- M/C (d&c) on 1/31/13

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    ET on 7/31/14 -- 1 transferred (4aa); 4 frosties!!!

    BFP 8/5/14-- EDD 4/18/15

    Beta #1 (14dpo):  223, Beta #2 (17dpo): 898

    First u/s -- 8/28/14= 1 beautiful baby with a hb of 131

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  • suzieh81suzieh81 member
    My niece has Spinabifida as in now 9 years old. She is such a joy and blessing in all our lives. Hers is low in the spine as well. Good luck to you!
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  • jborgiajborgia member
    Praying for you as you go through these next steps.
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  • Michi1382Michi1382 member
    You're in our thoughts and prayers for the best outcome!
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  • shelbell1028shelbell1028 member
    Thoughts are with you.

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    Always in my heart: BFP 9/6/12 - M/C 9/25/12
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  • missabmissab member
    Thoughts and prayers are with you!

    Me: 34 DH: 36

    Married since 11/11/11
    BFP#1 10/5/13 MC 11/11/13 @9wks 3d
    BFP#2 7/20/14 EDD 4/4/15


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  • ewilson74ewilson74 member
    Thoughts and prayers for you and your LO.
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  • pblgepblge member
    I'm sorry you're dealing with this difficult news. As PP have said, it's great that you're seeking intervention from such a talented team this early. Sending t&p to you and your family.
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  • MagalinaHMagalinaH member
    Thinking of you and sending positive thoughts!
    Dating 3.14.04
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  • SMFBSMFB member
    Praying for the very best outcome.
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  • JaneShopsJaneShops member
    T&P, great to hear you're a proactive mama. Stay strong
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