Lost baby girl to turners now expecting!!

rissy8398 · October 2014

Hello,
Im new to all this. My husband and I lost our little girl in July 2014 and it was the most horrible thing I've ever been through. It was our honeymoon baby. Now we are pregnant again and I can't stop worrying about this pregnancy. I worry I'll miscarry, I worry this baby will have another genetic condition. It's a none stop fear and it's killing me on the inside. Has anyone else gone through this? The doctors say our loss was a a rare situation and to have our baby be sick again is a 1% chance. I want to enjoy this pregnancy but I'm having the hardest time.. Also I am in theraphy so that is starting to help a little. HELP!!! - Sad mom to be:(

foodie12rn · October 2014

I'm so sorry for your loss. I can't
Imagine losing a child. May I ask how she passed? We are happy you're here and fx for a healthy rainbow baby.

rissy8398 · October 2014

We found out at 12 weeks she had turner sysndrom. They said she would either pass inside of me soon, or pass when I gave birth to her or if she did survive (1-5%) chance that she would have a very hard life.. She wouldn't be able to have children of her own, webbed neck, short statue, learning disabilities. I work in a hospital and I've see a coupe girls come in with turner syndrom and it just broke my heart. We thought long and hard and I couldn't bare giving birth to a dead baby and burying her. We were told that I'm healthy and that I would be able to have children again so we decided to have surgery to remove our little princess.. I'm crying as I write this because I miss her sooo much.

ReadyforBaby2 · October 2014

So sorry for your loss!! Praying for have a happy and healthy 9 months.

rissy8398 · October 2014

Thank You!!!:)

dojo1 · October 2014

That's incredibly heartbreaking, I'm so sorry to hear of your loss and your very difficult decision.

I can only say that your feelings are all valid and it's ok to be scared and it's ok to not enjoy your pregnancy (lots of women don't enjoy pregnancy for reasons that are much less heart wrenching than yours).

At the end of the day, if you're able to bring home a little baby, it won't matter if you enjoyed the pregnancy or not. The important thing is that you try to not feel guilty about whatever emotions you have with this pregnancy, because they're all ok.

tiffbot1985 · October 2014

So sorry for your loss, good luck for a H&H 9 months!

JenRN1115 · October 2014

I'm so sorry for your loss! Hugs!

suzysurparis · October 2014

Welcome and I'm so sorry for your loss. There are quite a few other ladies in this month who have suffered losses and are going through some of the same emotions. Additionally, if you haven't seen it yet there's a board called pregnancy after loss (PgAL) that deals with a lot of the issues that arise (fear, guilt, anxiety). I recommend checking them out as they have a lot of very good advice and techniques for coping with the situation. I'm wishing you a healthy 9 months.

Apollo11235 · October 2014

I'm so sorry for your loss. Welcome, and congratulations on your new pregnancy. I wish you a very healthy one.

CrazyCupcake52 · October 2014

Welcome and congrats. I am so sorry for the loss of your daughter. I couldn't imagine having to make that decision and I pray that this pregnancy will bring you more joy.

Definitely check out the PgAL board!

Shutterbug&17 · October 2014

Welcome & congrats! I'm so sorry for your loss. Wishing you a H&H 9 months!

saralu82 · October 2014

Welcome. We lost our first son when he was 7 months to SIDS and had the same fears when I was pregnant with DS2 just a month after he passed away. It's hard to calm your mind and ease your heart because for you the worst has already happened. I must say that I feel God did give me a sense of peace during my pregnancy that DS2 would be fine and now he is a rambunctious 2 (almost 3) year old. I still feel the nerves with this pregnancy but not as much. Be easy and kind to yourself and allow yourself to enjoy the new precious life inside you!-> something I wish I did more! And if you ever need to just talk please feel free to pm me. Congratulations on your pregnancy!

dojo1 · October 2014

@saralu82 - I'm so sorry to hear your story, but glad you had such a positive experience the second time around.

rissy8398 · October 2014

I'm beyond overwhelmed by all of your responses. I'd like to thank all the women who comment on my post, I appreciate all the kind words and thoughts, it actually put a huge smile on my face today:)

mrshinesokc · October 2014

Gosh I am sorry you had to and are still enduring that kind of loss and pain. I have had multiple mc's. For me, pregnancy is a stressful time. It's okay that you are feeling uneasy. I encourage you to check out the Pregnant After a Loss board. I have found a lot of women who can relate to how I feel. Prayers for healing in your heart and fx for a h&h pregnancy!

S&SS · October 2014

im sorry for your loss. Wishing you a happy and healthy 9 months

babydom2015 · October 2014

Hello I feel the same sadness that you do, I know what you mean. I am the carrier of a genetic disorder. I have a daughter who was born healthy, I knre nothing about being a carrier at the time. My son who is disabled, when I was pregnant with him is when I found out through genetic testing and amnio. While I love my son beyond words it is difficult to have a child with a disability. Now we had a surprise pregancy (Son is 9yrs old). I am so excited about being pregnant but have this deep sadness knowing I have to have either a CVS or amnio and if we get bad news do we terminate? I just want to be happy about my pregancy, it's suppose to be a joyous time but it's hard not to dwell on something especially when my odds are 50/50. I don't know the answers I just can say I know how you feel.

willowprincess · October 2014

I'm so sorry for your loss. I can't imagine. A good friend of mine lost her little girl to turners last year as well. She is now almost 30 weeks with another little girl who will be named after her big sister.

I pray that you have a long, easy road ahead of you with this pregnancy.

I know it's got to be hard not to worry about every thing. I like @chrain 's advice to tell yourself "today I am pregnant and I love my baby."

rissy8398 · October 2014

Had our first ultra sound this morning. Our little peanut is doing well with a good heartbeat. A little smaller than what I'm suppose to be at but the doctor said that's normal for 8 weeks as the baby is scrunched up and hard to read. I'm beyond excited and hope that this will be a heathy and happy first baby!!!!

BookishMomma · October 2014

I also lost my last pregnancy (a girl) to Turner's. I hope and pray that we will get our take-home babies this time around.

rissy8398 · October 2014

I hope to:)

Trampslikeus · October 2014

Welcome, and so so sorry for the heartbreaking ordeal you've been through. It's hard enough not to be wracked with worry with no history, I can't even imagine what it would be like for you. If you're in to it, meditation can be really helpful to kind of own and control your fears.

Here's to hoping this will be a very different experience for you!!

lilboudjie · October 2014

I am so sorry to hear about the loss of your daughter. I am can't begin to imagine the pain that you both have suffered and are still suffering. Try your very best to worry as little as possible. Stress is the worst thing for our bodies. Wake up every morning... look in the mirror at your belly (or growing belly) and confidently say "I am preggo with a healthy baby"...and with every ounce of your ability, make it a great day. Eat your very best, add in a little soft exercise and avoid google...

I am sending you positive vibes and healthy wishes! Mind over matter!

HUGS!

[Deleted User] · October 2014

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rissy8398 · October 2014

The doctor called and changed my due date. I guess I'm off by a week so I'm actually 7W1D instead of 8W1D. She said everything looks good which was music to my ears and a relief.

momtobeobrien · October 2014

My younger sister experienced all of this with her oldest. She found out that her baby girl suffered from turners and was told all the same things. They decided to leave it in the hands of god and see what would happen. She carried her the full term and gave birth to a healthy (as healthy as can be with a Turners baby) baby girl.
She did, however, have a very very stressful pregnancy. She is now a beautiful 4 year old who gets so mad that she is so much smaller than everyone but she is starting her hormone treatments in a few weeks.
We have a few family members with Downs and my niece with Turners so its making me a little stressed out with my first (7W3D), but I am praying for a beautiful healthy baby and I pray the same for you.

rissy8398 · December 2014

Update: at 13 weeks 4 days our baby is growing like crazy. We had our first trimester screening and we are happy to announce our little peanut is completely healthy with no genetic abnormalities!!! We are over the moon. I'm finally able to enjoy this pregnancy and not be worried every minute about the well being of our baby!! We miss our little princess everyday as her due date would be soon. Hope everyone is having a good holiday and enjoying there bundles of joy to be!!!❤️

rissy8398 · December 2014

Thanks ladies. ❤️

leenziepops · December 2014

Your story is heartbreaking. I'm so sorry for your loss of your beautiful honeymoon baby. I'm so happy to hear that you are pregnant again, and your LO looks beautiful and healthy in that u/s photo. Welcome and all the best of health to you.

Katerina&Baby · December 2014

Congratulations on your excellent news!! I'm so happy for you and DH!
(Edit because autocorrect hates me)

Bednarova · December 2014

great news! congratulations!

rissy8398 · December 2014

Thanks Casey. I'm also sorry for your loss. I happy all is well and keep me posted on how your doing:)

erbear84 · December 2014

Great news! Congratulations!

ReadyforBaby2 · December 2014

Praise the Lord! Thank you for coming to update. I'm so happy for your healthy baby! I'll continue to pray for comfort as you miss your angel baby.

rissy8398 · January 2015

Happy and healthy Baby at 19W5 days!!! I fixed it!!!

leenziepops · January 2015

Congratulations! Very happy for you but are you due in June?

mmo2112 · January 2015

I'm guessing she meant 19w5d?

OP, congrats on a healthy (and very cute) little one!

staciecoffey · January 2015

Congrats on a healthy little peanut! So sorry for your loss. You've come to the right place for love and support

blastocarrier30 · January 2015

Congrats! I'm so glad about your healthy LO

darvo · January 2015

How bitter-sweet. I'm so sorry for your loss, nothing could compare. But I'm so stoked for your rainbow baby! Wishing you all the happiness in the world!

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