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craniosynostosis and quick intro...

mommyginabmommyginab member
in Special Needs
Well, I posted this on M14, b/c that's where I'm usually at, but I thought I'd check in here as well. I don't post often, usually lurk.
Yesterday DS4 was diagnosed with sagittal craniosynostosis, its uncommon, but I was wondering if anyone had any similar experiences? We have already set up a surgery date 6 weeks from now, and I'm going to have anxiety attacks up until (and after, I'm sure) then.

Oh, and DS4 is 7 months old.
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Re: craniosynostosis and quick intro...

  • Junebug060609Junebug060609 member
    No personal experience, but after reading your post on MARCH14 (I have a May14 baby so the M14 reference took me a sec, lol). Anyways, after reading that I think I know someone who has a son who had that. I think he also had surgery around your sons age. Her son is now over a year old and is doing well.

    BFP#2 2.5.11 (EDD 10.15.11) DS born 9.28.11

    BFP#4 8.27.13 (EDD 5.6.14) DD born 4.23.14

     

    Lilypie - (2llN)

    Lilypie - (2L9u)

     

      My Recipe Blog
    ~All AL'ers welcome~

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  • funchickenfunchicken member
    Welcome to the board!
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  • mommyginabmommyginab member
    Thanks everybody. Sorry I just checked back after a couple of days. Its uncommon, and I'm sure hell be okay. I go back and forth about this. Just nervous!
    @KatyBriggs‌ , yes if they will, then that would be great! Its hard to find someone whose been through the same thing. Thanks a lot!
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