Twins..one with possible Downs

JenniCollins · September 2014

I too found out one of my twins has markers for Downs at my NT scan. We have a soft marker so we are just waiting to see how the anatomy scan goes. It is a really scary feeling. Lots of hugs and positive vibes coming your way.

cafecreme · September 2014

I'm sorry your in limbo right now. I highly suggest reading Nella's Story. Very moving.

I also stumbled upon this yesterday, and thought this might help too:

https://www.youtube.com/watch?v=cZ_i3yioHlo

labgrand2012 · September 2014

I am sorry you are in limbo right now, my thoughts are with you!

akleng · September 2014

No advice, but thinking of you. ((hugs))

HollyHTx2 · September 2014

Jenni Collins Let me know how it turns out, wishing the best for you. I feel like they are probably correct in my case, because baby b had absent nasal bone, cystic hygroma and extra wide area of fluid on the spinal area.

We won't know the blood test results for two more weeks..which is going to feel like a year.

thursday · September 2014

I have mentioned this before but I was told my daughter had two markers for downs and she was thankfully born without downs and is as healthy as can be. I pray for healthy babies for you as well.

mandi195 · September 2014

Big hugs to you!

adirain · September 2014

Hoping you find peace and comfort in knowing how luck you are. I have a friend that has a child with Downs and she would not change the world. She loves her beyond her own expectations. I know it will take a bit to sink in but you have a good support group and plenty of resources to help you out if need it. Never be afraid to ask.

crunchymamaof2 · September 2014

adirain said:

Hoping you find peace and comfort in knowing how luck you are. I have a friend that has a child with Downs and she would not change the world. She loves her beyond her own expectations. I know it will take a bit to sink in but you have a good support group and plenty of resources to help you out if need it. Never be afraid to ask.

How lucky she is? What is she lucky for? To possibly have a child with Down's syndrome?

Am I misunderstanding something? I hope I am.

JessParmesan79 · September 2014

Sending hugs and lots of love your way. Thinking of you and your boys.

lawsonellis · September 2014

I'm in the same boat- have 3 weeks until I find out if my LO has downs but I'm high risk apparently.

It IS devastating but this is a great support board and were all here to talk if you want.

T&P and hugs to you!!!

crunchymamaof2 · September 2014

EmpireRecords24 said:

adirain said:

Hoping you find peace and comfort in knowing how luck you are. I have a friend that has a child with Downs and she would not change the world. She loves her beyond her own expectations. I know it will take a bit to sink in but you have a good support group and plenty of resources to help you out if need it. Never be afraid to ask.

Ay yi yi. I'm not normally one to jump on someone for a post, but this falls perfectly under "What not to say" and I get the impression that you don't realize that, so wanted to make sure it's clear. Would you like to trade places with her? Are you so jealous of her "luck" that you'd prefer to trade your fetus for hers? No? Weird... then please don't tell someone how to feel. Ever. Emotions are our own. If she feels sadness, that's ok. If she feels joy, that's ok. If she feels like laughing hysterically and then eating pickles and cream cheese, that's ok. You have no idea what's going on inside her. Don't be hurtful and tell her that she's feeling the "wrong" feelings and definitely never, ever, ever use the word "lucky." And loving beyond all expectations? That's just a part of being a parent to any child.
So here's what you do, @adirain. Take a send to address a post to the OP. Say something like, "OP, I'm so sorry for my thoughtless remark. I was trying to show support, but wasn't sure how, and it ended up coming off insensitively. I truly didn't intend that. I just wanted to let you know that you'll be in my thoughts and I'm wishing nothing but the best. Take care of yourself!"

Amen.

pregarella · September 2014

I am sorry you are going through this, sending prayers.

vargasgurl · September 2014

Sending you thoughts and prayers!

HollyHTx2 · September 2014

Thanks everyone. I'm a little more at peace with it now that it's not so "new." I'm still grieving and probably will be in this phase a while. I should add that I also have a 2.5 yr old son who is amazing. Having him in my life is helping me get through this. I'm really hoping that the other twin doesn't have DS as well bc they thought the twins may have been identical and split earlier on making them identical but in their own sacks like fraternal twins- which is totally crazy. Time will tell..

SBmomma · October 2014

I am also carrying twins with one of them at risk for Downs. 50% chance is what our doc told us. Definitely shocking at first, but now we have accepted whatever destiny has in store for us. Kelle Hampton has a blog with a very touching story of her daughter being born with Downs. I personally was inspired by it. I feel for you & hope you can keep your head up. Please keep us updated!

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