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March 2015 Moms
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Twins..one with possible Downs

HollyHTx2HollyHTx2 member
in March 2015 Moms
Seeking support and comfort. I just got home from my 12 week fetal translucency test. They think it's two boys. They are fraternal, so in their own sacks. One has a cystic hygroma/ excess spinal fluid and absence of nasal bone. I'm devastated. They're running some bloodwork as a starting point for diagnosis. Will know in a few weeks. Don't know what to think right now. Just feeling utterly devastated.
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Re: Twins..one with possible Downs

  • Anne MommyAnne Mommy member
    No advice here but lots of prayers for you and your family.
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  • Christina80xoxoChristina80xoxo member
    No advice , but lots of T&P
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  • 071115071115 member
    No advice but ((hugs))
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  • jack12tripjack12trip member
    No advice, but just wanted to let you know I'll keep you in my thoughts and prayers.
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  • stepherlystepherly member
    No advice but lots of positive vibes that you get good news from the blood work. ((Hugs))
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  • kella0708kella0708 member
    No advice but I just wanted to say you will be in my thoughts. We are here for you!!
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  • HollyHTx2HollyHTx2 member
    Thanks everyone.. I never imagined myself in this situation, but I guess no one does. I just turned 30 a couple months ago, I really didn't think I was even at risk. I guess it can happen to anyone. I'm holding on to the fact that my son is 2 1/2 and healthy. It's a lot of info to swallow but for now I'm just so heartbroken.
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  • tigerlily2015tigerlily2015 member
    I don't have any advice but wanted to say I'm thinking of you. I hope you get good results from the bloodwork and that the results are back sooner rather than later.
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    BFP #1 on 3/26/14.  M/C on 4/29/14 (Blighted ovum).
    BFP #2 on 7/6/14.  EDD 3/19/15. 
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  • bdazzldbdazzld member
    *hugs* T&P for you.
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    ~~~~For SuzyQ and all our loss moms~~~~

    Met: 02.2007 / Engaged: 11.21.2009 / Married: 07.09.2010
     
    EDD: 03.02.2015 / Scheduled Delivery Date: 02.25.2015



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  • tinypugtinypug member
    First of all, congratulations on your pregnancy. Your baby is still that same baby you've been growing to love, regardless of this diagnosis. The unknown can be scary, but know that you are not alone and there is so much support here for you. I'm wishing you all the best. 
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  • selena61307selena61307 member
    I have nothing to add except support and hugs.
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  • 052806052806 member
    Congrats on the news of twins.  I am sorry that you are faced with so much uncertainty- I hope that your journey is a positive one.
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  • ashleyrh661ashleyrh661 member
    I have no advice. Sending you positive vibes and lots of hugs.
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  • nomnommamanomnommama member
    Big hugs. One of my favorite bloggers is pregnant with twins boys one of whom has downs. I highly recommend reading her story so far.
    www.babyhappypants.com
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  • YorkieLove4YorkieLove4 member
    T&Ps!!! So sorry you have to go through this but hope your blood tests come back good. Best of luck.
    3 MCs
    1 Rainbow Baby: Born 4/4/15
    BFP: 4/23/17  EDD 1/5/18
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  • tmh122tmh122 member
    Sending prayers ! Stay positive ♡
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  • thursdaythursday member
    Praying for you and your babies. Hopefully everything comes back good
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  • neko621neko621 member
    No advice, just hugs. I'll be thinking of you and your twins.
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  • aylaroman15aylaroman15 member
    I have no advice but i'm praying for you and your LOs. I know it may be hard to stay positive right now with this incertainty but i'm wishing you the best. (((hugs))) and prayers 
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  • ruemorganruemorgan member
    Thinking of you. Good luck with your boys <3
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  • jnowosielskijnowosielski member
    Ts&Ps&hugs!
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    But it's OK. Because:

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  • ttc11786ttc11786 member
    I am so sorry you are going through this! I hope everything turns out ok!
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  • MrsZkoMrsZko member
    This must be a lot to digest and comprehend...I can only echo some of what the other ladies have said in regards to down syndrome children, and in fact adults as well. My uncle has down syndrome, and he's the most loving, happy and funny man we know. He is so loved and leads a very full life. He just turned 50 over labor day :). I hope you are able to get definitive answers, and find peace in whatever the outcome is.... Sending much love and support!
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  • rm2013rm2013 member
    T&Ps your way. I know this must be so hard to go through.
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  • copperrosecopperrose member
    I am sure this is very difficult news to process. One resource that may be helpful now or later down the line is each state has a parent training information center that is run by parents of children with disabilities. They should be able to put you in touch with other parents who may have experienced something similar and can help you work through some of the unknowns. I also think there is a board for children with disabilities where I am sure you can also find other parents who have gone through a diagnosis of Down syndrome. Good luck and you are in my thoughts.

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  • homegrown2homegrown2 member
    T&Ps. I know it must be tough to process.
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  • DragonflyDreamingDragonflyDreaming member
    I have no advice, but so many big *hugs* and T&Ps for you!!
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  • lisap0924lisap0924 member
    im sorry to hear this. I have no advice but my BIL has downs, and I work with special needs kids. feel free to message me

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    Married the love of my life: 5-17-14

    BFP:6-27-14

    EDD:3-11-15

    Step Mom to Z: 4-11-06

    IT'S A BOY!!!!!!








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  • Strawberry9Strawberry9 member
    No advice but thinking of you
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  • SkrittensSkrittens member
    Congrats on 2 boys and hugs. No experience or advice, but I am sorry that you have to deal with this worry and uncertainty.
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  • Joon+Joon+ member
    So sorry for the uncertainty you're facing right now. I agree with PPs - a child with Down's can bring joy to your life in a completely unique way. My mom taught special ed and I am an education assistant. Some of those students have left a lifelong impact on me. I know it's a shock, but I'm sure you can face whatever comes with the support of your loved ones and the help of resources like the ones listed above. Be strong and have faith in yourself... Wishing all the best to you and your babies.

    Married the most patient man on the planet:  May 16, 2009
    Me:  30; DH:  30
    BFP:  June 25, 2014; EDD:  March 9/10, 2015
    4 fur babies:  2 dogs & 2 cats

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  • hydrangeabluehydrangeablue member
    Hugs and love to you and your little ones.


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  • WhitfryWhitfry member
    Thoughts and prayers to you!

    Please keep in mind that the NT scans turn up a LOT of false positives, so get those additional tests done so you will know for sure what you're working with.

    I also work with kiddos who have downs. As pp has said, they're typically sweet and loving and a ton of fun. But yes, being a parent to a special needs kiddo is challenging. You will have to grow and mature in ways you couldn't imagine. Your world will expand and change dramatically. A special needs kid isn't a death knoll.

    Fingers crossed everything goes well for you!
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  • LesliWLesliW member
    I'm so sorry you are going through this. No advice just hugs and know we are all here for you.

    Me (40) DH (45); Started dating 2-24-12, Married 5-13-13

    BFP 3-16-13..EDD 11-17-13.. MMC 4-16-13 Confirmed/D&C 4-23-13...
    BFP #4 6-22-14 EDD 3-6-15 FX for our LO

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  • HollyHTx2HollyHTx2 member
    I can't explain it but I felt something was not right with the pregnancy from the beginning. I guess this just confirms it. Not sure where we're headed from here, but thank you all for reaching out. It helps to not feel so alone.
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  • chucktgirlchucktgirl member
    All I can offer is virtual hugs. I can't imagine what you're going through right now, but am fearful of getting similar news when my test results come in. I wish you peace and strength to handle your new situation.

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    My BLOG: www.ivfbabyquest.wordpress.com -Update - old blog.

    PAIF/SAIF Welcome!
    Me: 42, Hubby: 35, TTC since Jan 2010. Dx: DOR due to advanced maternal age. Also: Hypothyroidism (100mcg Levothyroxin). Positive for MTHFR (hetero-C677T), Factor V Leiden, and Fragile X (on DH side). Taking pre-natal vitamins    .
    First natural PG 9/27/11; mc: 1/20/12
    First RE visit: 8/8/12, Saline Sonogram: 8/28/12, IVF injection class: 10/11/12, add FaBB Tab for FVL, +Vitamin D.
    IVF #1: 10/17/12 Baseline: FSH- 9.4, E2- 24, LH- 3.7, Prog- 0.3 The u/s showed 6 follicles in my right  & 9 in my left. Rx: 150 Bravelle & 150 Menopur SQ nightly. 10/21/12: Add Ganirelix SQ every morning.
    ER 10/28/12: 13 Retreived. 7 Mature. 6 Fertilized. 5 Made it to PGS. ET 11/2/12: CANCELED. All 5 came back from PGS as having "severe abnormalities."
    IVF #2: 1/7/13 Baseline: FSH- 8.8, 4 follicles in my right & 6 in my left. Rx: 150 Bravelle & 150 Menopur SQ nightly. 1/11/13: Add Ganirelix SQ every morning. hCG Trigger 1/16/13
    ER 1/18/13: 9 Retrieved. 5 Mature. 5 Fertilized. 2 Made it to PGS. ET 1/23/13: CANCELED. All embryos (he even sent the ones not growing) came back from PGS as having "multiple severe abnormalities."
    IVF #3:     NEW RE! 3/1/13 Baseline: FSH- 9.6, E2- 61, Prog- 0.94, 3 follicles in my right & 4 in my left. Rx: 150 Bravelle& 150 Menopur SQ in PM. 3/7/13: Add Ganirelix SQ in AM. hCG Trigger 3/9/13 SQ.
    ER 3/11/13: 6R, 2M, 2F. Day 3: one 8 cell, grade 0.  Five day ET 3/16/13: one early blast, grade Fair. 3/24/13 AF came a day before beta. BFN
    IVF #4:     (Added acupuncture to this cycle.) 3/25/13 WTF & Baseline: FSH-11.8, E2- 56, Prog- 0.84 3/26/13 Start stims. 3/30/13 u/s: 5 follicles in my right & 4 in my left. Rx: 225 Bravelle& 225 Menopur SQ in PM. 3/31/13 Add Ganirelix SQ in AM.hCG Trigger 4/3/13 SQ.
    ER 4/5/13: 5R, 3M, 3F naturally. Day 3: two 8 cell, grade 0, one 8 cell, grade 2 (Scale 0-best to 3-worst). Five day ET 4/10/13: two blastocysts (the 3rd stopped growing.) Beta 4/18/13: 2.5 BFFN. RE recommends we stop trying and focus on living childless, due to the extremely poor quality of my eggs.
    ***Decided to stop trying and live CFNBC. I couldn't adjust. So, six months later...
    IVF #5: Changed RE. Going to one of the big name clinics now. OWDU: 10/29/13. Update: HORRIBLE experience. Disgusted and distraught at their complete unprofessionalism and how much money and precious time they cost us. Sickening. Have now changed RE again. New Patient appt. 1/30/14.
    BFP! Out of nowhere, I got KU the old fashioned way! POAS 1/26/14 - Positive! FDLM 12/30/13. Beta #1 16dpo= 373. Beta #2 18dpo= 801. EDD 10/6/14
    2/4/14 1st U/S revealed a 5wk2day sac but no fetal pole. Started 200mgs of progesterone suppositories daily
    2/11/14 2nd U/S revealed a perfect 6wk1day "diamond ring" embryo with a beating heart! 138bpm! Add 1mg folic acid and 40mg Lovenox
    2/25/14 3rd U/S: perfect 8w1d embryo, 178bpm. 3/6 start spotting. 3/11 10w1d U/S shows no heartbeat. Scheduling D&C. The Stork has forsaken me again.
    IVF #5.2: New in-state RE. Supplement priming for 1.5 cycles prior to start of cycle, including DHEA 50mg (stopped 5/15), CoQ10 200mg 2x/day, L-Arginine- 1000mg 2x/day (stopped 6/5 due to cold sore!), myo-inositol- 2g 2x/day, melatonin- 3mg, and Neevo (prenatal for MTHFR).
    5/16/14 Day 2 bw cycle prior: FSH- 12.22, E2- 38.37, Prog- 1.35, LH- 9.46. 6/2/14 Day 19 bw: Prog- 23
    6/12/14 Baseline: E2- 122.7, Prog- 0.4. 5 follicles in left, 4 follicles in right. Start stims: 375IU Follistim & 150IU Menopur. 6/19 Increase Follistim to 425IU, Menopur still 150IU. 6/18 add Ganirelix. 6/23 Ovidrel trigger SQ. 6/25 ER: 8R, 8M, 5F naturally. Start Medrol & Doxy. 6/26 Start Endometrin. 7/2 Start Lovenox.
    7/8/14 Beta= 137.4 BFP!!! (My first from IVF!) E2- 1109, Prog- >60. Stop CoQ10, myo-inositol, and melatonin. 7/9 2nd Beta= 281.4. TSH- 2.70. Increasing Synthroid to 100mcg daily. 7/24 6w3d u/s measured 6w3d, hb: 121bmp! 8/5 8w1d u/s measured 8w3d, hb: 164bpm! Graduated from RE to OB. Now I just need to find an OB!
    EDD 3/18/15!

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  • molassamolassa member
    Keeping you in my thoughts and prayers.
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  • OliverLove73OliverLove73 member
    No advice here but you'll be in my thoughts and prayers.
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  • cesquercesquer member
    Wishing you peace and clarity. And sending you hugs. Xo
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