UpdateT&P's would be appreciated partial cranial fusion and more

reils500 · July 2014

Thoughts & prayers to you & your LO. I'm sorry you're going through this. My friend's son had a fused suture, her Pediatrician missed it originally (doctor thought baby just had a flat spot). He had the surgery at 5 months & did great, 1 night in the hospital. I was shocked by how quickly he recovered! Because of where the fusion was he had a significant flat spot on his forehead, so he had to wear a helmet for several months to reshape.
He is now 2 years old & you would never guess he went through that.

cakebatter27 · July 2014

Oh no! I don't know anything about those surgeries but I'll say a prayer. How stressful. I'm sorry you are dealing with that.

Katieryan13 · July 2014

I will be thinking of you and your family during this time.

TurtleMonsters · July 2014

Thinking of you. You're smart to just wait until the specialists see your LO, and not focus on scenarios. (IDK why my font is messed)

Mamaduncan · July 2014

INmommy871278 said:
Dd had her 2 week appointment yesterday with the pedi and I asked about the ridge she has at her frontal suture. The pedi said it feels like she has a partial fusion and is sending us to a specialists to have it checked further. Worst case scenario she has to have surgery around 6 months to have her skull cracked open to allow room for her brain to grow. In addition to that she has lost over a pound since birth so we are supplementing with formula and going in for a weight check tomorrow to see if she is gaining weight or still loosing. She also didn't pass her hearing test at the hospital after several attempts, so we see a specialists for that in September. I'm a emotional mess right now with all this going on. DH wanted to talk about it last night, but I told him I didn't want to discuss anything until after we see the specialists. The doctors and nurses keep reassuring me that babies fail the initial hearing test all the time and pass once they see the specialists. The pedi also tried to reassure me that the cranial fusions, but she didn't sound has convincing as she did with the hearing.

During college I worked at a daycare in the infant room and one of the little ones in there had a cranial fusion that resulted in surgery being done, so I have seen how the baby handles that. I keep thing of that little one and how much pain they were in leading up to the surgery and start bawling all over again. Any good thoughts and prayers would be greatly appreciated. I will update once we see the specialists on Friday.

Thoughts and prayers to you!!!

huggabunch · July 2014

So sorry you are going thru this. Try to stay positive. Sending positive vibes and prayers your way.

bchildrn · July 2014

T&ps for u! Sounds like you are in good hands with your doctors. Hang in there, hopefully you'll have answers soon.

rach1285 · July 2014

Thoughts and prayers headed your way! Even though it's easier said than done, try to keep your "what ifs" at bay until you meet with the specialists and have solid facts.