DS failed his OAE hearing evaluation today. We know he is hearing the loud stuff, because when they put us in the room, he would look for those noises. As the sounds got quieter, he stopped noticing. The audiologist said his tympanic movement (IDK the technical term) was within normal range, but a little on the shallow side. No fluid, no obstructions. He is six months. They've set up another appointment for him to go for an ABR evaluation, which from what I understand, is more accurate. They want him to sleep the whole time, but he's not much of a napper. How long do these tests usually take? Does anyone have any tricks to keep them asleep? I know they say keep them awake for most of the night but I'm worried that if he's overtired he won't go down. I'm hoping he'll crash in the car on the drive down, but I don't know if he's going to last long after the motion stops. I know they can sedate him for it if they have to, but I'm hoping beyond hope to avoid another sedation if I can. Especially since we may have to go through it again next month for some GI stuff. I hate putting him through that.
My other question is if anyone has a bag they keep packed in case they have to go to the hospital quickly. In his six months, he's been to the ER four times, and admitted twice. We have an upcoming admit to the hospital's epilepsy unit for observation and EEG monitoring. I'm really considering leaving a bag packed in the back of the car in case we have to roll out of here on short notice since the hospital is over an hour away. When he's admitted I stay with him. Sometimes DD has to come along for a few hours until someone can take her to her grandmother or DH leaves. What are some things that would be a good idea to consider? I was considering (at my MIL's suggesting) scanning all his medical records onto a flash drive to take with to cut down on having to haul the 2" binder we are getting ready to "outgrow" but not sure if that's necessarily wise either.
Isabelle born via emergency c-section after her heart stopped 04.29.10
asthma, astigmatism, amblyopia, allergies, tongue and maxillary ties
Noah born via RCS 12.09.13
14q11.2 duplication, receptive language and adaptive behavior delays
multiple health concerns under evaluation
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