You know you are a SN mom when

CaptainSerious · June 2014

You recognize a doctor while walking around the children's hospital, and know they are not practicing in the same department you are visiting, but it takes you more than a few moments to place then and remember which doctor they are, what specialty they practice, and which child has seen them. It's almost as offputting as when you realize they recognize you, too.

Add yours....

ToastieSimons · June 2014

Or when you see them in the cafeteria and they can greet you by name even when you haven't seen them recently

realisticdreams · June 2014

You ugly cry and your pediatrician tries to console you walking back from his lunch break because the receptionist just told you he's moving next week. Then he proceeds to talk to you for like 20 mins (i hope no one was waiting!) about your medical mystery child. =((((((

lite-bright · June 2014

When you read the comments on news stories about people who are disabled, discover there are apparently a lot of people who think your child should be euthanized and/or represents an argument in favor of infanticide; ought to be kept away from "normal" kids; and doesn't deserve education, care or therapy unless you can pay for it yourself; and you're in a funk for days because of the raw horror of seeing what people feel free to say about kids with SN.

Sorry. I'm still kind of reeling.

JoJoGee · June 2014

Totally have had that 'doctor recognition' problem.

CaptainSerious · June 2014

realisticdreams said:
You ugly cry and your pediatrician tries to console you walking back from his lunch break because the receptionist just told you he's moving next week. Then he proceeds to talk to you for like 20 mins (i hope no one was waiting!) about your medical mystery child. =((((((

I'm sorry. I could see how that has you reeling. :-(

CaptainSerious · June 2014

lite-bright said:
When you read the comments on news stories about people who are disabled, discover there are apparently a lot of people who think your child should be euthanized and/or represents an argument in favor of infanticide; ought to be kept away from "normal" kids; and doesn't deserve education, care or therapy unless you can pay for it yourself; and you're in a funk for days because of the raw horror of seeing what people feel free to say about kids with SN.

Sorry. I'm still kind of reeling.

I have a theory that only the most miserable people ever comment on news stories, because, no matter the topic, so many of the comments are always filled with the most vile, ignorant hatred. Please don't let that form your opinion of what moist people think about kids with special needs. My policy is that it's much better to avoid reading those comments, because otherwise, I'd react much the way you have, and I often feel that's exactly what those posters what--to get a reaction (and hopefully ah internet fight) out of total strangers for their own amusement, whether they believe what they are posting or not.

((Hugs))

ToastieSimons · June 2014

Usm123 said:

Our UPS man knows when we increased DS2's feedings based on the weight of the boxes. He comments on it. He also tells me when I should order based on his vacation schedule because the fill-in leaves the boxes in the worst spot.

Your UPS man rocks!!!!

bumpuser511563 · June 2014

When all you do is text message your therapists all kinds of questions and concerns.

typeset · June 2014

It seems every other kid at the end of the year celebration is having a good time while your kid is at your feet in the fetal position.

Yes, that happened. Some days I wish I drank alcohol.

typeset · June 2014

You fight the urge to roll your eyes at the BCBA when your kid fails to meet a benchmark because the "typical peer model was abnormally perfect."

CaptainSerious · June 2014

typeset said:
It seems every other kid at the end of the year celebration is having a good time while your kid is at your feet in the fetal position.

Yes, that happened. Some days I wish I drank alcohol.

Oh, I'm so sorry.

typeset · June 2014

CaptainSerious said:

It seems every other kid at the end of the year celebration is having a good time while your kid is at your feet in the fetal position.

Yes, that happened. Some days I wish I drank alcohol.
Oh, I'm so sorry.

About the lack of alcohol?

It was a school singalong. I wanted to bail after they broke out the hand bells for forty kids. He likely would have been better if we weren't there. I just want to throat punch everyone who said he'd outgrow this.

bumpuser511563 · June 2014

typeset said:

It seems every other kid at the end of the year celebration is having a good time while your kid is at your feet in the fetal position.

Yes, that happened. Some days I wish I drank alcohol.

I don't think I am quite over DS's promotion ceremony.

The kids were to sing 4 songs. DS stood there holding his turtle and a liquid timer and did not sing. He wanted to come to me and I convinced him to stand with the class. Then he went to go sit on the teacher's lap.

He went up with the turtle and liquid timer to get his diploma and the teacher asked if he was going to take his turtle with him to kindergarten. The other parents laughed. I am haunted with whether they were laughing because he was cute or they were laughing at him.

That turtle is on his iep as a positive reinforcer and we are going to put it in his backpack for kindergarten. I don't think DH or I laughed.

typeset · June 2014

Sailor Saturn said:

He went up with the turtle and liquid timer to get his diploma and the teacher asked if he was going to take his turtle with him to kindergarten. The other parents laughed. I am haunted with whether they were laughing because he was cute or they were laughing at him.

That turtle is on his iep as a positive reinforcer and we are going to put it in his backpack for kindergarten. I don't think DH or I laughed.

I'm doing a slow burn for you. How dare he or she?

bumpuser511563 · June 2014

typeset said:

Sailor Saturn said:

He went up with the turtle and liquid timer to get his diploma and the teacher asked if he was going to take his turtle with him to kindergarten. The other parents laughed. I am haunted with whether they were laughing because he was cute or they were laughing at him.

That turtle is on his iep as a positive reinforcer and we are going to put it in his backpack for kindergarten. I don't think DH or I laughed.

I'm doing a slow burn for you. How dare he or she?

yeah, I thought of poor Linus from peanuts and how all the other characters would poke fun at him for the blanket he carries. I feel for Linus because DS loves his turtle.

Our behavioral therapist has mentioned this is how bullying starts after I mentioned the ceremony.

light52 · June 2014

Your pediatrician says he is making plans for a dedication ceremony where they name one of the patient rooms after your child because you have been in there so much.

bumpuser511563 · June 2014

you walk into the iep meeting with a 3" binder full of previous iep's, evals, reports and other documents for one school year.

CaptainSerious · June 2014

Sailor Saturn said:
you walk into the iep meeting with a 3" binder full of previous iep's, evals, reports and other documents for one school year.

This is me, and it's only the IEP stuff. I'd need a rolling briefcase if I brought along all the lawsuit stuff, too.

bumpuser511563 · June 2014

CaptainSerious said:

you walk into the iep meeting with a 3" binder full of previous iep's, evals, reports and other documents for one school year.
This is me, and it's only the IEP stuff. I'd need a rolling briefcase if I brought along all the lawsuit stuff, too.

DH says I would need one of those 4 drawer filing cabinets instead of binders. The past 2 years are 1" binders.

funchicken · June 2014

Sailor Saturn said:

typeset said:

It seems every other kid at the end of the year celebration is having a good time while your kid is at your feet in the fetal position.

Yes, that happened. Some days I wish I drank alcohol.

I don't think I am quite over DS's promotion ceremony.

The kids were to sing 4 songs. DS stood there holding his turtle and a liquid timer and did not sing. He wanted to come to me and I convinced him to stand with the class. Then he went to go sit on the teacher's lap.

He went up with the turtle and liquid timer to get his diploma and the teacher asked if he was going to take his turtle with him to kindergarten. The other parents laughed. I am haunted with whether they were laughing because he was cute or they were laughing at him.

That turtle is on his iep as a positive reinforcer and we are going to put it in his backpack for kindergarten. I don't think DH or I laughed.

It was crappy of the teacher to say that, but if it makes you feel any better, there were lots of kindergarteners in DD's class this year who brought toys or other trinkets in their backpacks. They all liked to show them off to each other on the bus ride home.

funchicken · June 2014

I thought of one! When you use the term "social thinking" with the school guidance counselor, and she exclaims, "Where did you learn about social thinking?!"

Seriously? Lady, we've been meeting with specialists and reading about this stuff for over two years now.

kcisthebombdotcom · June 2014

When you don't have to give your child's dob at the pharmacy to pick up her prescription...because all the staff has it memorized.

Unknown · June 2014

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PipSqueak0313 · June 2014

When the EI PT and the PT through med ins give you conflicting advice on SMOs/AFOs and you have to decide which one you're going to follow. In this case, the EI PT sees ds at most 2x per month while the med PT sees him 2x per week so dh and I gave more weight to the med PT's advice.

Zeidy01 · June 2014

When they reserve a sit in the front row incase your child has a meltdown during kinder graduation.

Unknown · June 2014

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typeset · June 2014

When you simultaneously covet and dread playdates.

bumpuser511563 · June 2014

When you have to cut your own ASD child's hair while they are sleeping.

I just cut bangs on DS for now. DH said it looked crappy but I don't care! DS can see!

MirandaHobbes · June 2014

typeset said:

When you simultaneously covet and dread playdates.

So much of this. To make it better/worse, DS has been bugging me to call so-and-so's Mom and set up a playdate, despite my constant reminders that he had a meltdown at the last playdate and really didn't appear to be enjoying himself.

Princess_Lily · June 2014

...when you plan your day around your child's emotional needs.

...when you communicate with the therapist by just a look, if it's a good day or bad day.

...when you get a haircut for thr first time in a kids salon, and run down "the list" of do's and dont's. Then, at the end, you allow your child to strip down to just shorts (no shirt or shoes) so he could shake out small hairs...and while you feel stearing...you give no f*cks!

Zeidy01 · June 2014

Sailor Saturn said:
When you have to cut your own ASD child's hair while they are sleeping.

I just cut bangs on DS for now. DH said it looked crappy but I don't care! DS can see!

I cut my kids toe nails while he sleeps. Lol the things we do.

mommyof4boys · June 2014

When the state knows you on a first name basis from the amount of complaints, mediations/due process forms, and calls you make AND remember the dx of your child and the issue going on between you and the district.

When you know more than your pcp on your child.

When you file your third due process of the year for the SAME FREAKING KID.

greyt00 · June 2014

When you're very happy that one of your children will eat a cupcake.... and anything with good calories and protein (heh, not cupcakes). Because the other one barely eats anything.

When you feel like you're not getting everything owed to you by your health insurance company, but what you're getting is better than nothing, and you're afraid of losing what you have so you don't say anything.

When you long for things to go back the way they were, even though at the time you thought it was bad, because what's happening now is worse.

When you feel very guilty for hoping that one of your children won't have issues so he or she can take care of the one who does after you're gone.

marchbaby · June 2014

typeset said:

CaptainSerious said:

It seems every other kid at the end of the year celebration is having a good time while your kid is at your feet in the fetal position.

Yes, that happened. Some days I wish I drank alcohol.
Oh, I'm so sorry.

About the lack of alcohol?

It was a school singalong. I wanted to bail after they broke out the hand bells for forty kids. He likely would have been better if we weren't there. I just want to throat punch everyone who said he'd outgrow this.

Ugh, been there! They had poetry day at my son school and while I didn't expect it to go great, it was even more heartbreaking then I thought it would be. First, my son was curled up in a ball and it was so sad to see him so upset. Then I had to sit through all the other kids jump up there and sing and dance and recite poetry, which only made my sons issues seem even worse. I fought tears the entire time, and while carrying him/dragging him out of the classroom after I lost the fight and cried the whole way out of the school. For a few weeks after the event other parents would come up to me and tell me how bad they felt for my son and me and I'd start crying all over again. In hindsight I wish I had just kept him home that day, but sometimes he surprises us with what he can handle so I wanted to give him the opportunity to try...

typeset · June 2014

The baby stops making eye contact while being held by everyone and you break the Internet Googling because there's nothing else you can do.

Assembly_Reqd · June 2014

When you are fanagling the schedules of two different specialists so that your child can have both procedures done while using one operating room and one encounter with the anesthesiologist..

CaptainSerious · June 2014

Assembly_Reqd said:

When you are fanagling the schedules of two different specialists so that your child can have both procedures done while using one operating room and one encounter with the anesthesiologist..

Br> I was contemplating something similar today, but not about surgery (MRIs). >I also managed three specialists for my two sons at two different hospital locations today.

CaptainSerious · June 2014

Thanks, Auntie.

logistically, it went smoother than we ever could have anticipated, but it was a LONG day. We were in doctor's offices/hospital campuses from 11:00 a.m. To 7:30 p.m.

Medically, the boys are doing okay. Other than finding out that J is recommended to have eye surgery, things went about how we expected or slightly better. We were there for an NF follow-up, ophthalmology (which covers NF-related things and regular eye stuff), and for the finally session and results of M's neuropsychological evaluation. On the bright side, J doesn't need glasses and M's profile may be so heavily affected by his language difficulties that he may actually be less cognitively impaired than we feared. We are hoping the next few years will help us parse it all out.

CaptainSerious · June 2014

Duplicate, sorry.

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