Did anyone see this?
https://www.scarymommy.com/i-thought-we-had-more-time/ Thoughts?
On a personal note, I feel like we're getting closer to having "the talk" with DS. We had appointments last week with devel pedi and neuro and X commented for the first time that when we go to those doctors, it's always for him and not for his brother. He also just re-started PT (18 months after "graduating" from it). He's still been getting EI and OT so he's now had 2.5 years of therapists playing with him and never really asks about it. As his PT left after the initial eval, he said, "I think Ms. Liz is a physical therapist." I had no idea he knew that term (for one thing, we usually just say "PT"!). I said that's right and asked him what a physical therapist does and he said, "helps people," but I think he's likely on the verge of asking why these therapists make him do everything but Brother can kind of come and go as he pleases. (His current therapies are all in-home.)
When he was around 3.5, he and his twin both did start making comments about the one twin running "better," and being able to do certain things that X couldn't. His PT said the best response at that age was just to say, "It takes practice," but at 5.5 I know I need to develop more of an explanation for that. Any suggestions for explaining gross motor delays (hypotonia and loose joints), anxiety and social delays (not-quite-ASD, for lack of a better description) to an affected 5y/o and his typically developing twin? Would you get into underlying causes at all at this point (e.g. low tone) or keep it to a simple "some of us need extra help learning how to do certain things" and also talk about the things he's good at?
Re: Having "the talk" with your child
It really is just her normal for the most part. Her sister has SOME medical issues so its not like she only goes to the doctor once a year either, so that may help a bit. But, basically, i'm always honest with her. Our current issue is that she isn't telling me how much pain she's in unless it's unbearable, and her reasoning is, "she's been telling me for a year and I haven't be able to help her yet so what's the point." Yep. Ouch.