I am so sorry to hear about your struggles with baby Liv. My dear friends had a baby with HLHS. He had surgery 5 days after birth and lived 63 heroic days. Thoughts and prayers are with you.
T&P your way. I am familiar with HLHS and I know it's a lot to deal with. I just want you to know if you do choose to pursue surgeries I'm sure the hospital would put you up there and find a place nearby for your family. I also understand you may choose to bring her home and respect that decision and am not trying to move you from it, just stating another option if you are feeling trapped and without a choice.
I am thinking of you, Baby Liv, and your family. Prayers going up.
Natural M/C 1.10 MMC 1.13 CP 12.13 This is for all the caterpillars that never became butterflies. And for all the butterflies that never felt the wind in their wings. And for all the hearts that had hopes and dreams of a wondrous flight together.
aww im so sorry to hear this. many prayers for you and your family. May God be with you and I can only imagine how hard of a decision that is to make. You are an amazingly strong woman for being able to handle all of this and breathe from day to day. I don't know that I'd be able to stay as strong as you seem to be
Lurking: I just wanted to tell you I am praying for you and your family. I read your other post and I am truly amazed by your strength. Good luck and I hope your time with her is peaceful and wonderful.
My heart goes out to you, baby Liv and the rest of your family. You are an amazing woman and I 100% believe that God gives his toughest battles to his toughest soldiers. Many, many thoughts and prayers with you.
Re: Update on HLHS/cleft/etc baby
S14 September Siggy - Show to binge-watch when the baby comes
Lindsay & Nicholas
12/21/11
Gemma
born August 31, 2014
This is for all the caterpillars that never became butterflies. And for all the butterflies that never felt the wind in their wings. And for all the hearts that had hopes and dreams of a wondrous flight together.
BFP #2! Travis is getting a sibling!
EDD: 1/24/2017
I'll be praying for you and your sweet baby girl.