Special Needs

Help talking to a mom of Autistic Son

I need some guidance, my SIL has a 14yr autistic son, we were at a family get together and a cousin who just recently had her baby a month ago was also attending. She was wearing her baby and when people asked to hold her baby she in a nice way said she would prefer for the baby's safety to just wear her. Everyone including myself completely understood as SIL son is very unpredictable and we have had issues with him and little children as he would pick them up and drop them or just bump into them unknowing of course but knock them over and they would get hurt. He is a lot bigger and when he gets excited he has started pushing people. So SIL asked me (34wks preg) if I had planned on wearing my baby when her son was around, I said to her well to be honest yes I do plan on it. She got so upset with me and everyone and started yelling that we dont like her son and how hurtful it is for her to hear that people dont want to be around him. Which is not what we said we are only thinking of the safety of the little kids who are afraid of him, but my question is now what do I say to her to assure her that its not that we do not want to be around her son but just want to protect ours??
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Re: Help talking to a mom of Autistic Son

  • Chances are you'll wear your LO more than just when her son is around, right? It's pretty common to wear squishes when lots of people might put their paws on them (gatherings, grocery store, park, etc). I'd probably just have said that rather than specifically saying youd do it around her kid. Granted she kind of set you up by specifically asking...

    The reminders that your child is different are difficult, sometimes really difficult. Chances are she was having a rough day/week and that was just the final straw.

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  • And as usual, Auntie nailed it

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  • He is not high functioning, he attends a special school but prior he was in a public self contained classroom. He is non verbal and kind of in his own little world, but again he is a 14yr old big strong boy. no one would hand him a child but he has snuck and grabbed them only to drop them on the floor hence why some of us are a little fearful. He physically pushes people he has punched a teenage cousin because she would not let him play with her hair. for the most part when we are there he just runs around making noises and laughing to himself. But this is not the kind of child you could even put the baby down in a pack and play to nap. I just dont know what to do I somewhat understand her frustrations but I just want her to understand that its not that we hate or dislike him we just want to keep our kids safe.
  • Mr&MrsMTA said:
    He is not high functioning, he attends a special school but prior he was in a public self contained classroom. He is non verbal and kind of in his own little world, but again he is a 14yr old big strong boy. no one would hand him a child but he has snuck and grabbed them only to drop them on the floor hence why some of us are a little fearful. He physically pushes people he has punched a teenage cousin because she would not let him play with her hair. for the most part when we are there he just runs around making noises and laughing to himself. But this is not the kind of child you could even put the baby down in a pack and play to nap. I just dont know what to do I somewhat understand her frustrations but I just want her to understand that its not that we hate or dislike him we just want to keep our kids safe.
    Auntie's advice is excellent, and I agree with @CCinLove.  I think you need to gain a better understanding of ASD and find a way to explain it to the other children in the family that doesn't sound so ostracizing.  

    And I would try to exercise some diplomacy here.  I have a three month old, and I don't leave her unsupervised around other children no matter how well-behaved.  No need to single your nephew out especially in front of his mom.  If you're just seeing them for a few hours at family gatherings it doesn't seem like it would be too difficult to have an adult supervise when the kids are playing together.  My DH, BIL, SIL and I often take turns watching the LOs at family functions.

    I feel like maybe if you want to open a dialogue with her you should apologize and ask for book recs or resources to help you understand him better.  I can't imagine what this mom goes through every day--it sounds really hard.
  • I agree with the previous post there are other family issues regarding him. This is a very large family 16+ kids alone just in small gatherings and yes this is very over stimulating for him but he is always included just for the shear fact that we usually only have parties at MIL or SIL house because he is afraid of everyone else's dogs. And yes he is the elephant in the room but not by our choice his mom does not feel we can handle him so we dont and when he was younger we all tried to help but we were told otherwise. I can say that even if I was not pregnant I would not be able to stop him from doing anything I have no clue how to handle him when he has tantrums or how to even engage him because to be frank he's not really there if you know what I mean. the only thing we were asked to do when he was younger was to babysit him which none of us did because we dont know how. To be honest we all gave up. I am not going to bash the mom on here on how she chooses to raise him or lack there of because that is none of my business that is her child. I just dont want her to feel that we dislike him we just collectively choose not to get involved because we are told to in a way.

     I also do not feel like I owe her an apology for being honest even though it was hurtful to her. If someone said me your daughter is being loud and rude when she is I do not feel this person owes me an apology I would try to correct my daughters behavior. 
  • What I meant by him not really being there, is that he is completely non verbal other then making noises. He makes no eye contact my best way to describe him is like a deaf, blind, mute. Its almost like you share a space, but he has no clue you are even there. You cant interact with him its like trying to speak English to someone who only speak Chinese you cant even get him to pay attention for 1 second. 
    As far as babysitting and saying no because I dont know how to watch him is not an excuse. He is very physical even when he was little and he is also a runner he has escaped from the house numerous times. He like to go into the basement and disconnect the sub pump for whatever reason he bashes holes in the wall and takes knives out of the draw to cut open the walls. So no I do not feel like I can handle him so I am not going to watch him and I do not feel like it is an excuse. I wish I did have more time to get to know him but I do have 2 other children of my own and a full time job its not that easy to make a commitment of time to spend with him. 

    I dont know now I feel like this is a rambling conversation I just wanted some help in soothing this over so she wasn't hurt but knew that yes your son is very unpredictable and I need to make sure my kids are safe and feel safe while visiting family.
  • Mr&MrsMTA said:
    I also do not feel like I owe her an apology for being honest even though it was hurtful to her. If someone said me your daughter is being loud and rude when she is I do not feel this person owes me an apology I would try to correct my daughters behavior. 

    So many thoughts. But just "wow". .... Cause it's so easy to "correct" my autistic child. STFU
    Rylee - 3.28.08
    Malakai - 8.3.09
    Ezra - 12.1.11 ASD
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  • This just makes me so sad for this boy. With family like this...I just won't go there. I do thank you OP for making me incredibly grateful for my supportive and caring family. Just imagine that this is your child...which it very well could be. Still think you have a supportive family?
  • This post makes me extremely grateful for the love and acceptance our families and friends show DD.

    OP- Bless your heart you need to revisit your empathy training. 
    there was absolutely no reason to specify that you will baby wear to protect your baby from your nephew. All you needed to say was "I am looking forward to baby wearing so I'm sure I'll do it a lot. I've heard so many good things about it." 

    Being 'honest' is not an excuse for being mean and rude. You could've been honest that you plan to baby wear without making it about your nephew but rather it's just one of many parenting choices you plan to make.

    I feel so badly for your nephew and SIL. Your nephew IS in there and no one in his extended family is willing to make the effort to try and connect with him on his terms.
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  • Ok I think this is going in the wrong direction.
    1. this is my 3rd child not my first and it is a girl.
    2. we as a family have all tried to learn and get to know him, we are told otherwise by his mom (his dad is only around to babysit him 1 wkend a month)
    3. I say my SIL son, because this is a SIL by marriage, and in our fam that is how we refer to it.
    4. I have empathy however, he is not parented by a typical parent of a child with special needs (child services has been called on SIL a few times).
    5. He is violent and the behaviors are never corrected, I DO understand that it is difficult to teach an autistic child, but to allow him to just do whatever he wants to anyone is not right either.
    6. I do not feel I owe her an apology, I have seen this child physically hurt more then 1 person and his mother does absolutely nothing. So pointing out to her that I feel the need to protect my child, I would hope push her to understand that her child needs help and that you cannot just allow him to hurt people and do nothing about it. I am sorry that as a family when we see nothing being done we choose to protect our children I really do not see what is hard to understand about that.

  • Mr&MrsMTA said:
    Ok I think this is going in the wrong direction.
    1. this is my 3rd child not my first and it is a girl.
    2. we as a family have all tried to learn and get to know him, we are told otherwise by his mom (his dad is only around to babysit him 1 wkend a month)
    3. I say my SIL son, because this is a SIL by marriage, and in our fam that is how we refer to it.
    4. I have empathy however, he is not parented by a typical parent of a child with special needs (child services has been called on SIL a few times).
    5. He is violent and the behaviors are never corrected, I DO understand that it is difficult to teach an autistic child, but to allow him to just do whatever he wants to anyone is not right either.
    6. I do not feel I owe her an apology, I have seen this child physically hurt more then 1 person and his mother does absolutely nothing. So pointing out to her that I feel the need to protect my child, I would hope push her to understand that her child needs help and that you cannot just allow him to hurt people and do nothing about it. I am sorry that as a family when we see nothing being done we choose to protect our children I really do not see what is hard to understand about that.

    This actually makes it worse. 
    Clearly SIL is struggling and instead of being understanding and supportive and trying to help her and nephew/her son y'all are ostracizing them.
    I can not imagine the absolutely exhaustion and work that would be parenting a severe SN's child on my own with 1 weekend of respite a month. 
    No wonder she doesn't correct him she is probably so worn down at this point that she just can't do it anymore. 

    And what's wrong with what you said is it was the least empathetic, kind, loving way to handle her question and the situation.
    If you are truly concerned do some reading and research and offer to actually help by staying with him so she can just breath for an hour, get info on therapies  (ABA for example could help address some of his behavioral issues but is crazy expensive) and offer to help her figure out how to pay for them because they are insanely expensive. 

    You took a cheap shot at her and her son and you should be an adult and own it and apologize.  

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  • Mr&MrsMTA said:
    Ok I think this is going in the wrong direction.
    1. this is my 3rd child not my first and it is a girl.
    2. we as a family have all tried to learn and get to know him, we are told otherwise by his mom (his dad is only around to babysit him 1 wkend a month)
    3. I say my SIL son, because this is a SIL by marriage, and in our fam that is how we refer to it.
    4. I have empathy however, he is not parented by a typical parent of a child with special needs (child services has been called on SIL a few times).
    5. He is violent and the behaviors are never corrected, I DO understand that it is difficult to teach an autistic child, but to allow him to just do whatever he wants to anyone is not right either.
    6. I do not feel I owe her an apology, I have seen this child physically hurt more then 1 person and his mother does absolutely nothing. So pointing out to her that I feel the need to protect my child, I would hope push her to understand that her child needs help and that you cannot just allow him to hurt people and do nothing about it. I am sorry that as a family when we see nothing being done we choose to protect our children I really do not see what is hard to understand about that.

    What is a typical parent of special needs?  

    And as to #6 YOU watched him hurt someone and did absolutely nothing.  So obviously he is 100% your SIL's problem and you've washed your hands of him.  Nice.

    I'm sorry that you don't feel that hurting someones feelings isn't apology worthy.  I never brought apologizing for saying you want to protect your children.  I said to apologize for HURTING her, for the way you said it.

    And you don't have empathy.  Instead of BLAMING her for his problems, perhaps you should place youself in her shoes and think of how tiring, exhausting and difficult her life is.  It's not just about calling insurance, or driving him to and from therapy.  It's about giving up your dreams for your child, for your future, for you what you thought you were going to have.  It's about dealing with all the issues 24/7.  You don't get to turn them off when you need a break.  You don't get to choose to have a bad day, to spend a day in your pajamas watching movies in bed when you're beat.  You don't get to call out sick.  Also, he's 14.  She's now in the process (in my state at least) of discussing what happens when he turns 18.  She's now dealing with the reality that her son will not be living independently. He will not be going away to college.  And without a supportive father she's not going to be getting a break any time soon.  no empty nest, no college packing.  

    And you DON'T understand how difficult it is to teach A CHILD WITH AUTISM.  It's like groundhog day.  It doesn't matter how many times you say No, or be gentle, or use time outs or good behaviour charts, or positive parenting.  It doesn't change anything because of lot of time impulsivity rules out any type of logical thinking.

    And I still have no idea why you would refer to him as your SIL's son???? Is it not your brother's son?  If my biological sibling is ANY part a child's parent the s/he would be my niece or nephew.\

    And I would like to think that if a SIL had a child of her own prior to marriage that I would treat him no differently than any other nieces or nephews I have that are blood related.

    And I still think it's wrong to protect your children AND TO TELL HER at the expense of her feelings and her feelings about her son.  Nobody has said you don't have a right to protect your children you just didn't like the advice you got along with it.
    To my boys:  I will love you for you Not for what you have done or what you will become I will love you for you I will give you the love The love that you never knew
  • I can't word anything better than auntie already has here, but I really just wanted to come in and use a bump cliche that i actually feel sorry for your children. You suck, op.
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  • I bet it's son from a previous marriage.



    And... Just wow. You, my dear, have NO IDEA what it's like. What it's like to have people stare you down and judge you because your kid is having a meltdown. Once we get there we just have to ride it out. The looks are terrible cause they just get you, right in the heart. My poor sweet overstimmed boy is melting down, and you're staring? That'll help. And that's just an hour of my day. One.hour.

    So... You take your - "btw this is my third and it's a girl, sooo" and get the eff off this board.
    Rylee - 3.28.08
    Malakai - 8.3.09
    Ezra - 12.1.11 ASD
  • His dad is around only once a month because he is a drunk
    SIL is usually too high on pain meds to parent
    This is not my brothers child and why does this even matter whos child it is, I find it strange that you would focus on that??
    This child has not been in any kind of therapy ever, because SIL has been convinced that he will snap out of it one day...well he is 14 and has not snapped out of anything.
    We as a family have all offered, tried, listened,became a shoulder to cry on when needed BUT when you are told he does not need help he will snap out of it, what more can you do we cannot force her to realize he needs help.
    And no I do not know what her daily struggles are like BUT it is struggling to watch someone who does nothing to help him. she lives with another family member who also gives us updates thats how we stay in touch because we are told not to help him.

    So this is exactly what I did not want to say on here, but it seems like the focus was on other things. This is a parent that needs to realize that her son needs help you cannot always sugar coat things when that clearly has not worked in the past.
  • Princess_LilyPrincess_Lily member
    edited June 2014
    DHs sister (my SIL) has a son from a relationship when she was younger. The father has never been in this sons life. Her son (the child who has no blood relation to me) is MY NEPHEW. The child in your story is your nephew.

    Who does your SIL live with? Your brother or sister, and are they in a relationship? Yes...married? Yes? Than the boy is your nephew. Gosh, whoever she lives with is an asshat too!


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  • So let me get this straight....

    You all feel strongly that I owe her an apology for being honest...correct. Because none of you have ever been told something truthful maybe even brutally honest before. You all live in a world of candy and sunshine right?

    Some of you have even said that a little white lie is what I should have said instead of tell her how I feel and maybe having the opportunity to discuss why I am concerned. But no I should have made up some sugar coated BS to make her feel better about herself.

    It seems to me that mothers of special needs kids feel they are they only ones in life struggling with life issues and that everyone should just bend over to accommodate you and your child's needs yes because you are the only ones out there in the world that has it rough in life.

    Also it seems that because you all are the only ones out there roughing it, we should all just lie straight to your face so that you can continue to believe everything is grand, right. this is what I am hearing.

    The fact that you choose to focus on how I address him is odd, why do you care what does it have of any concern with the direct question I asked. Nothing
    Why do you care who she is married to or how she is even related, this again had nothing to do with the question I asked.

    In my last post, I was not BSing is it really hard to actually believe that some parents just cannot handle/parent a special needs child. Just because you gave birth to a special needs child does not automatically mentally prepared or make you able to deal with all that comes with parenting one.

    Why do you even give a crap what family member she lives with, what does that have anything to do with the question I asked, again your focusing on unnecessary information.
  • Mr&MrsMTA said:
    It seems to me that mothers of special needs kids feel they are they only ones in life struggling with life issues and that everyone should just bend over to accommodate you and your child's needs yes because you are the only ones out there in the world that has it rough in life.

    Also it seems that because you all are the only ones out there roughing it, we should all just lie straight to your face so that you can continue to believe everything is grand, right. this is what I am hearing.
    You should go. 
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