October 2013 Moms

update: A miracle heart.....T&P's today please

Flutterby00Flutterby00 member
edited May 2014 in October 2013 Moms

Hey guise.  My mom has been waiting for a heart transplant for the past 4 years.  Because of her rare antibodies in her blood (due to not being given the Rhogan shot after the birth of my little brother), its been a long and tough wait, being told that truly it would take a miracle to find a heart with the same antibodies.  100 days ago my mom and dad moved down to LA from Portland in a motorhome so my mom could be admitted at Cedars Sinai, where they have the most rare blood type organ transplants in the US.  Over the course of the last few months, she saw many of her fellow transplant-waiting neighbors go off quickly to get their hearts, and  was beginning to feel really depressed.  100 days in a room that she couldn't leave because of her very complicated IV system that goes to her heart.  Just two days ago my mom was threatening to forget it and leave and live out her days spending time with her grandson instead of wasting away in the hospital. 

And then.....last night we got the news.  Her heart is here.  A perfect antibody match.  A true miracle heart. 

The donor's organs are being cross matched for recipients right now.  They don't want to waste any organs.  They think they will be harvesting this afternoon, and that my mom will go in for surgery at around 3pm MST.  On her 100th day in the hospital. 

We could use all the good juju out there, and would appreciate your thoughts and prayers.  Pray that the heart is good, because they can still visually reject the heart at the last minute.  Pray that the doctors do a great job, and that my mom's body accepts the new organ.  And please pray for the family of the donor.  We don't know anything about them, or if he has family, but the thought of a life being lost to save my mom is heavy to me and I hope that if he does have a family, that they have peace and comfort. 

Thank you!

And some pictures (I had previously posted) of when Max and I visited my mom in the hospital a month ago.  Sorry they are sideways not sure what's up w/ that.
Update: the heart arrived around 8:30PM last night, and they were in surgery until about 3:30 this AM. My dad is waiting to see here now. Apparently it went really well and she has a new heart! So excited!!! Praying her body receives the heart well and she can get out of the hospital soon and on with recovering and living life. It will be amazing for her! Thank you for your thoughts and prayers!!

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Re: update: A miracle heart.....T&P's today please

  • I've got tears in my eyes! T&P's to you and your family and especially to your mom, her doctor's and that all goes well. Keep us updated!
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  • Bunches of ts&ps to everyone!
  • CatieGCatieG member
    Goodness. Thoughts and prayers.
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  • I remember your story from a previous post.  I am SO happy to hear the wonderful news.  I am sorry to the person who lost their life, but please don't have a heavy heart.  Everything happens for a reason and this man might have lost his life for another reason you will never know, but the timing was to help your mom.  God has a plan.

    I will keep your mom and your family in my prayers.  I hope she has a successful surgery and that all goes smoothly.  Please keep us posted.  Lots of thoughts, prayers, hugs and support to you.
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  • Thoughts n prayers your way
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  • Good vibes your way!
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  • Keep us updated!!!  Happy to hear that a match has been found =)  My Uncle was on the kidney list for a year and it was so great when he got his...and that was almost 10 years ago =)
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  • Keep us updated!!!  Happy to hear that a match has been found =)  My Uncle was on the kidney list for a year and it was so great when he got his...and that was almost 10 years ago =)
    I love stories like this.  So exciting and amazing!!

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  • Amazing!!!!!!! Ts and Ps!!!!!
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  • Omg I'm crying for you! Such amazing news! Those pictures are so special...thinking of your family!
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  • I remember reading your post about your visit to see your mom with your son and as soon as I saw the title of the thread I was hoping it was about her and that she was receiving a heart! T&Ps that everything goes smoothly and she gets to enjoy more time with her grandkids very soon!
  • T&Ps heading to your mom, and everyone else involved.

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  • Awesome news! Fx for everything to go smoothly. Very nice of you to think of the donor's family. It's families like yours and hearing positive stories that made me choose to be a donor and convince my husband to become a donor.
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  • Lee81Lee81 member
    Wow, that is amazing. Thoughts, prayers, and all the good vibes to your mom, your family, and the family of the donor. Please keep us posted. And what wonderful pictures of your mom and your lo!
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  • Now that I can see my screen through my tears….I am totally thinking of you and your family.  I hope everything everything with surgery works out perfectly and she's back home asap.
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  • So amazing!! I am so incredibly happy for your family & especially your Mom. God Bless!! The biggest T&P's headed her way.

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    You guys are so awesome!!  Thank you thank you thank you. 


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  • edited May 2014
    So many happy tears!! T&ps with your mom while she goes through surgery!

  • AjoydAjoyd member
    This is so wonderful! Many t&ps to your mom, keep us posted!


    Married my love 8-25-12 TTC #1 September 2012. BFP 2-2-13. DS born 10-16-13.
    TTC #2 in December 2014. BFP 12-31-14. Expecting a September baby!
  • That is such incredible news! T&P'S for your family.
    TTC since August 2011
    DX: Unexplained Infertility
    IUI #1: Clomid 50mg + Ovidrel + IUI: 11/3/12 - BFN
    IUI #2: Clomid 50mg + Ovidrel + IUI: 12/5/12 - BFN
    IUI #3: Clomid 100mg (CD 3-7) + 75 iu Bravelle (CD 9 & 11) + Ovidrel (CD 13) + IUI: 1/10/13 - BFP! EDD 10/3/13
    **P/SAIF welcome!**
  • Great news! T&Ps that all goes great!

     

     

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  • So happy to hear! Good luck with everything and keep us posted!
  • Great news!!!! I wish her all the best!!!
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  • jennlinjennlin member
    i have cried so much reading your story. i'm so happy for your mom!


  • Omg, yay!  T's&P's for a quick, successful surgery and then a healthy recovery!
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  • lefnc82lefnc82 member
    That's wonderful news! I hope surgery and recovery go smoothly and that she's playing with her her grand baby soon! All good Ts&Ps headed your way!
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  • This brought tears to my eyes! Many many thoughts and prayers to your mom and the donor's family!
  • Oh my goodness!!! I will be thinking of all of you and sending so many prayers! Keep us updated, please!



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  • Jalee85Jalee85 member
    T & Ps for you. What an amazing miracle.
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  • Many tears, thoughts AND prayers for your mom!
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  • Sending tons of good juju and praying everything goes smooth and perfect!
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  • That picture with the babe on your mom's shoulder made me cry it's so sweet. All the good vibes are heading towards your family :)

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  • alylove11alylove11 member
    edited May 2014
    T&P! Keep us updated!

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  • Tearing up and praying for y'all! Good luck!  =)


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  • bionicbbionicb member
    Hang in there. Ts&Ps to your family and the donors.

    I have been there, stay strong. Good luck to your mom.
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  • Good luck!! Hope everything goes well!!
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  • KerCo51KerCo51 member
    Happy to hear the good news!  T&Ps for you all!

    BFP: 1.19.2013 - EDD: 10.2.2013 - It's a girl! 9.25.13: Welcome Addison!

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  • That's so wonderful for your family! Many prayers for a healthy heart and an uneventful surgery!
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  • Ycu2013Ycu2013 member
    Your story touched my heart and made me cry!! I will be praying my heart out for your Mom, you, your family and the donors family. Keep us updated. Good luck with everything! T's & P's.
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  • Prayers for your mom! What a journey she has been on.
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