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Need advice from anyone with an LO with gi problems

luvbostonluvboston member
edited May 2014 in Success after IF
My LO has struggled with reflux since she was born she is on two meds a day. She also gets horrible rashes. She has reducing substance and blood in her stool. The doctor thinks its either a food allergy or Isomaltase deficiency.

We took her off gluten and the blood went away and the rashes.

She wants to scope her. Would you allow it or get a second opinion first?
Update: we are getting a second opinion in two weeks and seeing the allergist Monday.
6 m/c
Anovulatory cycles, increased Synthroid Diagnosed Sep 2010
Natural cycle Dec 2010 BFP M/C 6 1/2 Weeks, D&E Jan 2011
1 Clomid/Ovidrel BFN May 2011
Natural cycle Aug 2011 BFP M/C 4 Weeks
1 IUI Sept 2011 BFP M/c 7 weeks
Provera Dec 2011 BFP M/C 3 Weeks
DQ ALPHA HLA MATCH, High NK Cells Diagnosed Dec 2011
IVF March 2012 BFP m/c 4weeks 5 days (IL, Prednisone)
IVF#2w/DS July 2012 MEGA FAILURE BFN (IL, Dexamethasone)
Diagnosed No real HLA Match, DQ Beta Triad, High TNF, Low NK Cells
Oct 2012 Natural Cycle m/c 4wks (Lovenox, Prednisone) 
Went to Beer Center- high tnf, low lad, implantation failure
Nov/Dec 2012 LIT Treatment
Dec 12 Humira
Jan 2013 BFP
Humira,LIT,Prednisone, Lovenox, IVIG, Baby Aspirin
Miracle Born August 2013 Premature

Yours doesn't have to be a sad story


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Lilypie - (ugiy)


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Re: Need advice from anyone with an LO with gi problems

  • imoveritimoverit member
    I dont have any experience but maybe get a 2nd opinion before scoping. Thats what Id do anyway. Sorry you have to deal with this.
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  • byrne15byrne15 member

    ds#2 had similar symptoms.  We actually never had a scope, but did go to a specialist.  I ended up not BFing anymore since my diet was too variable.  He went on Neocate (amino acid based formula).  Within days his poops were better and he seemed much more content.  His reflux also dramatically reduce.  He ended up going off reflux meds around 9 months old. 

    He is almost 21 months old now and is doing amazing.  We have even trialed some dairy items with success.

    Good luck!

    ~after 34 cycles we finally got our 2nd little bundle of joy~
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