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Infertility
jen102279
member
BFP#1 07/01/2004 ~ EDD 03/10/2005 ~ D&C 8/1/2004 @ 5w5d
Intro --multiple losses and pregnancy mentioned
jen102279
member
in Infertility
Hi Ladies, I've been part of the bump family since 2010. I started out in the Sept 2011 birth club and then the pregnant after loss board. But I believe this is where I belong now, if not please let me know!
Here's my story: Patrick and I were married in 2010 and we wanted to have a family right away. I had been on the pill previously, so I just stopped taking it and we stopped preventing, but not actually trying. We soon found out we were pregnant, we were over the moon excited. I did everything I was supposed to. Made smoothies full of vitamins, until I couldn’t handle the texture with my MS, stayed away from lunch meat and yummy cheeses, and of course stayed away from wine and sushi
We couldn’t wait to find out what we were having as we walked into our 20 week u/s appt. Unfortunately, that was and remains one of the worst days of our lives. We found out our baby was sick. How sick? They didn’t know exactly, they hadn’t seen a baby like this before with all the genetic anomalies together. They tried their best to prepare us for the unknown future, and one doctor didn’t really think the baby was going to survive the pregnancy at all. Our baby boy Dylan was born that August by an emergency C-section. He was 6# 13oz and had a full head of hair. He was taken away immediately because he was struggling to breathe. They had to give him doses of surfactant to help his little lungs (thanks March of Dimes) and they had to put him on a vent and incubate him since he couldn’t breathe on his own. My little warrior had 8 surgical procedures, and countless blood draws. He smiled all the time and flirted with all the nurses.
We had 2 months with our sweet boy before we had to say goodbye. I cherish every second I had with him, including when he was in my belly.
Because the doctors couldn’t tell us why Dylan was sick, they also couldn’t tell us if it would happen again. To be safe, they said there was a 25% chance that it would happen again (a recessive trait-since both my husband and I don’t have any of the anomalies). After many discussions and many prayers, we decided to try again. We got pregnant again and anxiously awaited our first appt. I was considered high risk now, so they met with us earlier than they would’ve previously. At our 12 week u/s, they said they saw some similarities to Dylan, but wouldn’t be certain for another week or two. I hung onto the hope that this baby only had one of those anomalies, the cleft lip that they saw that day, and that we wouldn’t be reliving that same nightmare.
We couldn’t wait to find out what we were having as we walked into our 20 week u/s appt. Unfortunately, that was and remains one of the worst days of our lives. We found out our baby was sick. How sick? They didn’t know exactly, they hadn’t seen a baby like this before with all the genetic anomalies together. They tried their best to prepare us for the unknown future, and one doctor didn’t really think the baby was going to survive the pregnancy at all. Our baby boy Dylan was born that August by an emergency C-section. He was 6# 13oz and had a full head of hair. He was taken away immediately because he was struggling to breathe. They had to give him doses of surfactant to help his little lungs (thanks March of Dimes) and they had to put him on a vent and incubate him since he couldn’t breathe on his own. My little warrior had 8 surgical procedures, and countless blood draws. He smiled all the time and flirted with all the nurses.
We had 2 months with our sweet boy before we had to say goodbye. I cherish every second I had with him, including when he was in my belly.
Because the doctors couldn’t tell us why Dylan was sick, they also couldn’t tell us if it would happen again. To be safe, they said there was a 25% chance that it would happen again (a recessive trait-since both my husband and I don’t have any of the anomalies). After many discussions and many prayers, we decided to try again. We got pregnant again and anxiously awaited our first appt. I was considered high risk now, so they met with us earlier than they would’ve previously. At our 12 week u/s, they said they saw some similarities to Dylan, but wouldn’t be certain for another week or two. I hung onto the hope that this baby only had one of those anomalies, the cleft lip that they saw that day, and that we wouldn’t be reliving that same nightmare.
Unfortunately that was not the case. Noah was also sick and now because I had already had 1 c-section, the doctors were concerned for my health. We knew that we didn’t want to put Noah through everything that Dylan had endured, so we choose not to have heroic measures taken when he was born. The doctors induced me early to prevent any complications for my health (which I still feel guilty about) and our little Noah was born at 1# 13 oz. We were surrounded with our families, and Noah felt nothing other than the love hugging him in that room. Noah lived for just under two hours.
Because of Noah (being our second child with the same genetic defect), our genetics team was able to fight our insurance company and get them to pay for the genetic sequencing that they had wanted to perform after we lost Dylan. We couldn’t afford the $32,000 price tag for a “we might be able to find the cause” So many people asked us “oh can’t they test for that?” This wasn’t a commonly known disorder… to simplify, think of a huge downtown library, with rows and rows of stacks of books. Now I tell you to find the word that’s missing. That’s all I tell you. I don’t tell you the row, the stack, the book, or the page. They sent out our DNA and the boys and in this past October, the results came back. And they found it. They found the needle in the haystack.
So here we are now. We have the info, we know the what. Now we have to decide where to go. If anyone has any tips or a question list they went off when picking an IVF clinic, please share! I’m all ears!! The cost is tough as well, but the thought of us having a healthy biological baby makes living on ramin noodles or mac and cheese worth it.
Because of Noah (being our second child with the same genetic defect), our genetics team was able to fight our insurance company and get them to pay for the genetic sequencing that they had wanted to perform after we lost Dylan. We couldn’t afford the $32,000 price tag for a “we might be able to find the cause” So many people asked us “oh can’t they test for that?” This wasn’t a commonly known disorder… to simplify, think of a huge downtown library, with rows and rows of stacks of books. Now I tell you to find the word that’s missing. That’s all I tell you. I don’t tell you the row, the stack, the book, or the page. They sent out our DNA and the boys and in this past October, the results came back. And they found it. They found the needle in the haystack.
So here we are now. We have the info, we know the what. Now we have to decide where to go. If anyone has any tips or a question list they went off when picking an IVF clinic, please share! I’m all ears!! The cost is tough as well, but the thought of us having a healthy biological baby makes living on ramin noodles or mac and cheese worth it.
Thanks for taking the time to read this and i hope to get to know you guys and be another shoulder of support as we go through this journey together.
****Signature warning Losses Mentioned****
BFP#1 07/01/2004 ~ EDD 03/10/2005 ~ D&C 8/1/2004 @ 5w5d
BFP#2 12/27/10 ~ EDD 9/06/2011 ~ DS born 08/14/11 via c-section, passed away 10/17/11
BFP#3 09/07/12 ~ EDD 5/09/2013 ~ DS born 01/30/13 survived for 2 hrs
08/06/14 Waiting for 1st IVF cycle to begin
IVF#1: started stims 9/15; trigger 9/24; ET 9/26-5R 5M, 5F. 3 biopsied for PGD
This discussion has been closed.
Re: Intro --multiple losses and pregnancy mentioned
BFP#1 07/01/2004 ~ EDD 03/10/2005 ~ D&C 8/1/2004 @ 5w5d
Waited a long time, tried a lot of stuff, science made me a mom.
***Losses mentioned.*** TTC #1 since May 2012. Me: 37, OH: 41. Ectopic August 2012 => tubal damage.
Best of luck.
DX: Unexplained
BETA #1 59 BETA #2 148 BETA #3 283 BETA #4 2,783! US at 6w2d shows 1 bean measuring right on track! HR 121. US at 8w3d measuring on track HR 177. Released form my RE. EDD 12/28
BFP#1 07/01/2004 ~ EDD 03/10/2005 ~ D&C 8/1/2004 @ 5w5d
Me: 30, DH: 32
My hx: uterus/hormones normal Dx: low AMH 0.5 = poor ovarian reserve
hubby hx: low sperm count, poor motility, started on clomid, retest in May showed no improvement, will be on clomid another 3 months, another retest scheduled for August
Started IVF #1: ~BFP Mentioned~
BFP#1 07/01/2004 ~ EDD 03/10/2005 ~ D&C 8/1/2004 @ 5w5d
TTC#1 since April 2011
IVF#1 July 2012 5R, 3 made it to blast, sET c/p
FET#1 Aug 2012 2 blasts transferred BFN
IVF#2 Oct 2012
16R/6M/6F/2-8 cell grade 1 transfer
Beta 1-237.9, Beta 2-566, Beta 3-8657
US 6w3d shows one baby w/ HB 115
US 7w1d no more heartbeat/ D&C 11/30/12 normal karyotype
IVF#3 Mar 2013
6R/4M/4F 1 compacting and 2-8 cell transfer
ectopic pg MTX given 3 month break from TTC
IVF#4 Sept 2013--BFN
http://i61.tinypic.com/34zll06IVF#5-7 Apr 2014, Jun 2014 and Aug 2014 banking embryos for CCS testing. Praying for normals!
IUI#4 1/23/13 on 75iu x9 Follistim = BFP then chem preg m/c (Feb 2013)
IUI#5 BFN (April 2013)
S/PAIFW , S/PALW
My Blog
BFP#1 07/01/2004 ~ EDD 03/10/2005 ~ D&C 8/1/2004 @ 5w5d