January 2014 Moms

Freaking out

Brennon potentially has a urea cycle disorder and has to have further testing. (Based on results from two newborn screening tests.)

I should not have Googled that. And I really shouldn't have wiki-ed it. :(
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Re: Freaking out

  • Sending you positive vibes and praying for a good results.
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  • Yikes! What's the plan? Is breast milk ok for him or will he need to go on special formula?

    We are seeing a pediatric nephrologist for DS in two weeks. He's missing a kidney. (I mean that to say you are not alone in scary surprising medical things with the babies).

  • I don't know what it is, but anytime something is a concern medically it is difficult for us.
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    Baby Chugging born 12.28.13
    induction due to HELLP
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  • Please keep us updated.
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    Baby Chugging born 12.28.13
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  • @sugarland726‌ I don't know yet. The nurse told me that the ped wants to talk to genetics before making any decisions/plans yet. They are going to call me tomorrow.
  • You stop that Googling! Lots of thoughts & prayers for Brennon. :( Do lots of two armed snuggling tonight so you don't have a free hand to "research" with.


    Married: 9.22.12 - DD: 1.7.14 - EDD 2: 10.30.17 - J14 OG
  • @bethughknee‌ I promised my mom and husband that I would not Google anymore. It sounded so benign, I thought it would ease my worries. Yeah, no.
  • peanutmuse- Thinking of you and Brennon. I can understand how scary it is to get that news. My little guy's newborn screener and follow up screener showed a metabolic issue (3-MCC) that is inherited and can result in a build up of acids in the blood stream. We also needed to meet with a geneticist. They were able to answer all our questions though, so that was helpful and they helped us develop an emergency medical practice plan for daycare or if we were needed to take our son to the hospital. It can be so stressful not knowing what's going on and wondering if what you're seeing is normal, etc. If you need anything, please feel free to message me! I'm definitely not a pro in the area of genetics, but I would love to offer you support. Praying for you all!
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  • I agree, it does sound benign. I now wish *I* hadn't wiki'd and he's not even my DS! :( Please keep us updated once you're able to see your Dr. and collect your thoughts.

    In the meantime, I'm going to contact Wikipedia about some of the language used on that page. That's just wrong. :(


    Married: 9.22.12 - DD: 1.7.14 - EDD 2: 10.30.17 - J14 OG
  • So sorry and yes Dr. Google is evil for worried mamas. Sending hugs, thoughts and prayers.
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  • Thank you, @bandbgrams‌. I appreciate your insight.
  • Saying a prayer for you and Brennon.

    BFP #1 10/13/09 EDD 06/20/10 DS Born on 06/26/10
    BFP #2 03/08/11 EDD 11/16/11 DD Born on 11/04/11
    BFP #3 08/29/12 EDD 05/06/13 M/C on 08/30/12
    BFP #4 11/01/12 EDD 07/09/2013 M/C on 12/28/12
    BFP #5 04/30/13 EDD 01/03/14 DS Born on 01/02/14
    BFP #6 01/11/15 EDD 09/22/15 M/C 03/09/15
  • Hoping for the best outcome. Good luck at the doctors, little Brennon.

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  • Sending prayers for you and brennon!
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  • Sending T&P for little Brennon. Try to stay away from Dr. Google. You know you'll only drive yourself nuts!
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  • @peanutmuse - I believe you told me not too long ago to stay off google!! With all of the testing capabilities now I'm confident doctors could find something with each baby to worry us. I hope this will be nothing for you all buy try not to worry until there is something to worry about! That's was my H always says and I believe you said something along that line to me when I was worried about Landon's peepee!
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  • I'm sorry you have to go through this. FX that you get good news from the doctors.
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  • Boo! I am sorry you have to go through this. Hope the doctors have good news. Positive thoughts. 

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  • I don't know anything about that, but I'll be thinking of you and Brennan And mr. Muse. Just remember we screen because we can do something about it, And we capture a lot of false positives in the process. Keep us updated.

    (Off to educate myself)
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    My cat can read EKGs, can your human do that?
    ♥BFP#1 12-23-12, M/C 12-31-12 at 5w4d♥
    ♥BFP#2 05-09-13, EDD 01-15-14. C/S 12-23-13 at 36w5d for complete previa. Healthy baby boy♥
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  • Keeping you and brennon in my thoughts and hoping for the best.
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  • Oh no! I hope tomorrow you learn some information that will help calm your nerves!! I will be praying for you guys!
  • km_mdkm_md member
    Thinking of you and baby Brennon ((hugs)) I hope for the best possible outcome for him


  • Thinking of the muse family for good news at your next appt ... I'm sorry you're going through this.
  • sarahmarie2sarahmarie2 member
    edited March 2014
    You guys will be in my thoughts. Hopefully all will be fine but I'm sending you guys positive vibes .
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  • so sorry to hear.  sending you all positive thoughts and I hope you have answers soon.




  • Thinking of you. I know you must be scared. I hope you get better news than you might be expecting when you talk to the Dr. again. I'll be following you for updates.
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  • Thank you everyone.
  • You and your family are in my thoughts and prayers. I hope Brennon is feeling well and the doctors can give you some answers soon.
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  • Awww, sorry to hear this.  We'll be thinking of you all. Sending positive vibes!
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  • Positive thoughts for the three of you. I'm so sorry you're dealing with this.
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  • Thinking of you.
     
  • Thoughts and prayers to you and your family. Sorry you are going through this.
  • Thinking of you and B!
  • Thoughts and prayers for your family!


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  • Sending thoughts and prayers your and Brennon's way! So sorry you are having to deal with this.
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    Married 3/17/2005
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  • Oh how stressful. Sending thoughts and prayers your way.
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  • Sorry to read this. Thinking if your family

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  • Oh @peanutmuse‌ so so sorry to hear! Poor Brennon and poor you! T&Ps headed your way. Please keep us posted!
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  • Sending good thoughts your way. Hoping for better news soon!
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  • mrspharmdmrspharmd member
    edited March 2014
    Is this the test they did at the hospital? And you're just now finding out the results? I thought since DS is almost 2 months we were in the clear and no news was good news. Guess not :/

    ETA: prayers that it's nothing serious and just a false positive!
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