July 2013 Moms

Lucas Update (Monday)

gutsymamagutsymama member
edited March 2014 in July 2013 Moms
PICC is placed and he did great. We are now free to go, just waiting until he finishes napping and takes a bottle and we'll be headed home.

The line is in his arm just above his elbow, which I'm not thrilled about because I'm predicting the dressing may be harder to keep on there. But it might turn out to be easier than his chest in a lot of ways, and hopefully it won't stay too long.

He's lost a whole pound since Thursday. They expected him to lose weight at first once he came off the fluids, but I'm already having a lot of anxiety about it - I just want this to stick! He's been handling overnight tube feeds like a champ, though, so we should be able to get him a lot of extra calories that way.

So now we wait and see.
FKA mimi4347: diaper rash magician and unofficial expert on excrement
photo fdcd1f14-730b-4ea3-9fd5-37c8a5575512_zps6b3ccb11.jpgphoto a71807cf-a0c7-4c71-807b-bc4577b61b83_zps4eece2a6.jpg
This kid may not have a lot of bowel, but he has plenty of guts! 
DS born at 34 weeks with (surprise!) gastroschisis turned short bowel syndrome.
131 days in the NICU, 7 trips to the OR, G-button, daily TPN....
We are impatiently awaiting the day we can say goodbye to his girlfriend Ivy for good.
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Re: Lucas Update (Monday)

  • KTZ17KTZ17 member
    Yay for going home! I hope he starts gaining again soon. Fingers crossed!

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  • Awww, so glad you guys are going home! Gain, Lucas, gain!
  • Glad you are headed home! FX he starts putting that weight back on!
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  • MRadsMRads member
    Yay for going home.

    I hope he starts gaining!
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    Baby boy 7.10.13
  • Yay for going home!
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    because it didn't fucking snow enough for me to build my own
  • Awesome :) Good luck.
  • Yay! So excited for y'all. Hope you got a few tub baths in in-between lines. I have found that PICC dressings stick almost as well as Broviac ones, sometimes better. They are also quite a bit thinner lines, so hopefully no more murder scenes in the middle of the night! FX for good weight gain and tolerating feeds.
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  • Home sweet home :)
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  • Yay for going home. FX.

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    D 2.20.2011 & Z 7.16.2013

  • Hooray for going home! FX!
  • Yay for tube feeds ;)
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  • Thinking of you guys and hoping you have a smooth night tonight. So impressed by you Mimi!! Thanks as always for the update.
    K & M married 10.8.2011 *** BFP 7.17.2012, EDD 3.21.2013, Miscarriage at 6 wks 3 days *** BFP #2 11.7.2012, beautiful Tess born 7.11.2013
  • Yay! How are the poops going? I hope you are able to enjoy this amazing weather this week with him.


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    I lost my angels 07/2010, 04/2017, 10/2017

    Meimsx no more
  • Yay for home! Love a good Lucas update!
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  • Yay Lucas! I hope he has an awesome week and starts putting the weight back on soon. I also feel like a Lucas stalker. Your updates are always my favorite threads!
  • Yay for going home!
  • @JTA2426‌ In Luke's opinion we got in way too many baths :) Any advice for keeping a dressing on a tiny wiggly inner elbow? There's just no way it's going to stay - the edge is already coming up.

    @Meimsx poops are trending in the right direction, but he also didn't eat from 4am-3pm, so we'll see.
    FKA mimi4347: diaper rash magician and unofficial expert on excrement
    photo fdcd1f14-730b-4ea3-9fd5-37c8a5575512_zps6b3ccb11.jpgphoto a71807cf-a0c7-4c71-807b-bc4577b61b83_zps4eece2a6.jpg
    This kid may not have a lot of bowel, but he has plenty of guts! 
    DS born at 34 weeks with (surprise!) gastroschisis turned short bowel syndrome.
    131 days in the NICU, 7 trips to the OR, G-button, daily TPN....
    We are impatiently awaiting the day we can say goodbye to his girlfriend Ivy for good.
  • Yay for going home! Hope things continue to go smoothly!
  • fabkfabk member
    That is great! I hope things continue to go this way!! Yay for going home!
  • Yay! So exciting, and I'll bet you guys do great!!
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  • Yay for home!!

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  • FX that things go better!!!


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  • Woo hoo!! Thinking of you guys.
    Mom to three girls and pregnant with #4!
    L: 7/12/13
    C: 5/11/15
    E: 3/7/17
    Due 11/10/18
  • Skin prep and extra tegaderm is all I've got for you. Good luck with that!
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  • Yay for going home!
  • Yay! I hope the enteral feeds go well so he can avoid hooking back up with Ivy. 4am to 3pm is a long time without food...was that for placing the picc or was he not interested in eating? Has he been doing better since the meds have kicked in?
    @lwrightenator It was for placing the picc - they had him NPO after 4am in case they could work him in early and then didn't get him in until noon :(( He did have some very diluted apple juice around 1 when he woke up, but then he fell back asleep for another 2 hours so he had a long stretch without a real bottle. But then he was starving! 
    FKA mimi4347: diaper rash magician and unofficial expert on excrement
    photo fdcd1f14-730b-4ea3-9fd5-37c8a5575512_zps6b3ccb11.jpgphoto a71807cf-a0c7-4c71-807b-bc4577b61b83_zps4eece2a6.jpg
    This kid may not have a lot of bowel, but he has plenty of guts! 
    DS born at 34 weeks with (surprise!) gastroschisis turned short bowel syndrome.
    131 days in the NICU, 7 trips to the OR, G-button, daily TPN....
    We are impatiently awaiting the day we can say goodbye to his girlfriend Ivy for good.
  • Fingers crossed! Hope things continue going well.
    Trying for #2 since November 2015

    DS #1 - 7/25/13

  • I am so happy he gets to home.
  • So glad you're going home....hope the picc works out in the arm for you guys...

    Karen - 36      DH - 39

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  • Good news :) I hope things go well!
  • Let's go Lucas! Hope you guys get to stay away from the hospital with this nice weather rolling through. Best of luck with the wiggling! FX that the Tegaderm sticks the way it's supposed to.

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  • Hooray! So happy for Lucas!
  • Awesome! We squeezed in a little walk after work and it was so nice :) Glad you got some sunshine and hope you have a great night.
  • spb27spb27 member
    Great news!
  • DH took the kids for a walk while I was at work and then we went to the park when I got home. It was fantastic today. Can it stay this way forever?


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    I lost my angels 07/2010, 04/2017, 10/2017

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  • Every day I look for a Lucas update!! I am so thrilled for you, I am sure he will regain that pound sooner than you think. Send us PIP of his arrival home <3
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  • Thanks for the update! Grow, Lucas, grow!


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  • YAY for going HOME!!! I hope he gains weight and you can avoid further tubes!  Go get em Lucas!!

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  • Fingers and toes crossed!  Good luck Lucas!



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