Today I shared my story on the Promise Walk Facebook page. I'm volunteering and coordnating the walk this year and each week we are sharing what brought us to the walk. As I posted Addison's birth story and my expierence my hands were shaking. I've been very open about what happened but this seemed so big to me. I shared on the walk page and then shared on my personal page. I'm hoping to bring awareness about PreE and shed some light on the taboo topic of stillbrith and baby loss. I share this with you not to be an AW (you know I'm always good for that when the time is right) but to hopefully encourage someof you to be brave. Talk about your babies and your pain. You do not have to be silent because they are not here with you. People will listen. Even when you think they don't, some will hear you.
Here is my story-My name is Shelly and I’m another volunteer helping with this year’s Promise Walk. Here is my story: I was 26 weeks pregnant and went to sleep with a bad headache on Wednesday, January 2nd. I started vomiting and thought I had caught the flu from my nephews. Everyone I knew was sick with it, so I wasn't worried. Pregnant people get the flu too. I don't remember anything after that night until they woke me in the ICU, Friday morning. I had Eclampsia and started having seizures in my sleep early Thursday morning. I was unresponsive. At only 25 years-old, I had four seizures and a stroke. They did a quick ultrasound and could not find our babies heartbeat. My husband said they were only confirming what he already knew, our daughter Addison was gone. They told him they had to shift their focus to saving me.
My blood pressure was 256/70 and doctors couldn't get it lowered. The doctors decided to put me into a medically induced coma to help stop the swelling of my brain and to try and lower my blood pressure. They didn't successfully wake me until Friday morning when I was in labor and it was time to push. They had tried several times to wake me up but I'm told I wasn't peacefully waking up. I would thrash and struggle and try to pull the intubation tubes from my throat. When they finally woke me I was tied to the bed, unable to move my arms and having contractions. The first thing I heard when I woke was that I was in the hospital and my baby had died. I was so sedated and drugged all I could say was, "that's sad”. It was like I had heard it was going to rain all day. I didn't comprehend at all. My doctor was speaking to me like a child. "It hurts because you are in labor." "If you push the pain will stop." Looking back I realize I had no idea what was actually happening. Addison Rose was delivered almost immediately after I was woken. She was only 1lbs 2oz 11 3/4 inches long born January 4th, at 9:48 in the morning. She wasn't due until April 9th. She has blonde hair like her daddy as a baby and big feet like me. The doctor said she was perfect. He cried as he told my family I was ok and she had been delivered.
My husband Matt made the decision not to have an autopsy done to see when Addison had passed. If he chose that route I would have had no memory of my little girl at all. No photos or treasured mementos. She would have been taken away from us immediately. She was able to stay with us in our room until I was released from the hospital. Because of this we do not know exactly when she died.
My whole family was camped out at the hospital and came in to see me after Addie was weighed and dressed. They all kept telling me how happy they were I was alive. At that point I was no longer medically in danger. My blood pressure was high but under control. I had no idea what they, and I had been through. I was in a fog. I remember thinking how dramatic everyone was being. They would say things like, “it's so good to hear you laugh” and “we're so happy to see your eyes”. I was in and out of consciousness for two days after being taken out of the coma. I have photos of me dressing Addison and wrapping her in a tiny blanket and gown provided by a group called Minutes of Gold. I only remember small pieces from the day she was delivered. Less than 2 minute clips from that day. I don't even remember holding her until my 3rd or 4th day in the hospital.
After Addie was delivered I was moved up to Labor and Delivery. A small wreath with a little white dove was placed on my door signifying I had lost my baby. A warning to those who entered my room.
I wasn’t immediately released from the hospital because I was having terrible headaches. Once I was able to get around, an MRI was done on my brain. They wanted to see the damage the seizures and stroke had done. Major swelling of my brain, a failed epidural and several lumbar punctures all resulted in crippling headaches. While recovering I was unable to sit up for long periods of time. The amount of fluid taken from my brain was also a culprit of the horrible headaches. I had to stay flat for most of my remaining time in the hospital. I laid there with my daughter at my feet in her infant bed unable to even understand what was happening. It hadn’t sunk in and wouldn’t for several days. I had a rough road to recovery once I was home.
We buried Addison in a local cemetery and had a small service for her. She is in the infant section next to Matt's cousin who died of SIDS 17 years ago. As of now everything is physically back to normal. My MRI I had to compare with the one I had while in the hospital showed the swelling is completely gone. Miraculously, I have made a full recovery. My doctors are all stumped at how I made it out with so little physical damage. They chalk it up to being young, strong, and in good health. When I was first in the ICU they were telling Matt they may have to cut into my skull to allow room for my brain to help ease the swelling, I could have been paralyzed from the stroke, lost parts of my memory, or much worse.
Now that some time has passed I am able to reflect on what happened and how very lucky I am. I have to remind myself that I have been blessed and things could have been even worse. Although I am physically back to normal, and no longer at risk for seizures, my husband has trouble sleeping at night. I feel him reach and check for my heartbeat, and to see that I am breathing normally. His experience varies so much from mine. I was unconscious for the scary parts of all this. Matt, although surrounded by family, had to endure this alone and without his partner in life. He knew our baby was gone and that he would have to tell me what happened to her. He spent days wondering if I was going to have long term damage. At that time I was unable to share in his pain or help him to make important decisions regarding my health and safety. Or what would happen with our daughter.
The symptoms of preeclampsia are often missed because they are so common in pregnancy. Things like swelling, high blood pressure and sometimes headaches. Women usually develop Preeclampsia much later in pregnancy and can be quickly treated with a C-Section. It’s in extreme cases where the mother and/or baby do not survive. I did not have any of the traditional warning signs. The minimal symptoms I did have were only there a few hours before I had my first seizure. One of my nurses told me Eclampsia means "to strike like lightning". That perfectly describes what happened. We had almost no warning and no reason to suspect this would happen. I was drawn to the Promise Walk the month Addison was originally due. I found it in April and was excited to raise money for such a great cause. I am so hopeful with the right research I’ll never have to worry about Eclampsia interfering with another pregnancy of mine or anyone else’s again.
((hugs)) and love. Be brave!
Re: Today I'm being brave (Updated in comments)
Thank you for sharing your story. You are doing a wonderful thing, helping with the Promise Walk and educating others on Eclampsia.
DX Endometriosis 2/2002 (lost left tube due to a cyst), PCOS 6/2010
BFP - 10/18/2012, EDD - 6/26/2013, Baby Girl lost at 22 weeks (T21), D&E 2/15/2013
BFP - 4/23/2014, EDD - 1/2/2015 Twin Boys lost at 12 weeks, M/C 6/25/2014
My chart here All ALers welcome!
BFP 9/24/13 EDD 6/8/14 no HB at 1st U/S Stopped growing at 7 weeks D&C 11/01/13
The day the Bump died - Jasper is wise
IUI#4 1/23/13 on 75iu x9 Follistim = BFP then chem preg m/c (Feb 2013)
IUI#5 BFN (April 2013)
S/PAIFW , S/PALW
My Blog
8/12-Suprise BFP- Sweet Bunny Born Sleeping 11/21/12 (19 weeks)
-5/7/13- MMC (8 Weeks)
11/6/13- BO discovered at 7 weeks- natural MC 11/25/13
8/14- Surpise IF dx...low AMH (.24)- moving on to IVF
IVF #1- 11/14- 6R5M4F=2 perfect frosties
12/19/14- FET of 2 embabies = BFP!!! One Little Bean EDD: 9/3/15
Everyone Welcome.
BFP #2: EDD 9/3/13~~Slow HB at 1st U/S~~MMC -Loss on 2/13/13
TTC Since 04/01/13
BFP #1 04/28/13 Its twins! EDD 01/08/2014 MMC confirmed 06/27/13 D&C 07/17/13
BFP#2 05/19/14 EDD 01/30/2015 Please be our rainbow!
My Ovulation Chart
*~*~* All AL Welcome*~*~*
Best of luck with your walk and fundraising goals. Sending you so many ((hugs)).
EDD 5/2/14, NMC 9/11/13
EDD 10/15/14, CP 2/8/14
IF Diagnosis: PCOS, MFI
Current Cycle: 5 mg Femara/1000mg Metformin + TI = BFP, EDD 4/23/15 Please be our RAINBOW
**ALL AL/IF Welcome**
My Chart
TTC since March 2012
BFP #1 1/29/13, EDD 10/9/13
BFP #3 8/11/14 EDD 4/22/14
09/2007: Ectopic with rupture - lost right tube | 09/2012: Ectopic - saved the left tube
08/05/2013: BFP not ectopic | EDD: 4/22/2014 | 09/15/2013: Miscarried at home
Burned the bench 01/20/15 - Medicated Cycle with Clomid and HCG trigger shot on 02/08/2015
++++ BFP 2/17/18 ++++ EDD 10/26/2015
BFP #1, 3/12, EDD 11/9/12, MMC 3/27/12, D&C 4/10/12
BFP #2: 11/16/12, EDD 7/25/13, MMC 12/5/12, D&C 12/6/12, Complete molar pregnancy confirmed 2/9/13, benched for 6 months until August 2013
IUI #1, 8/16/13 Femara + Menopur, 3 mature follicles, BFN
IUI #3, 10/8/13 Femara + Menopur, six mature follicles, BFN
BFP #3, 12/9/2013, while on treatment break, EDD: 8/22/2014 Please stick and grow, LO!
Additional Dx: hypothyroidism, TgAb positive & anti-TPO positive, POR/DOR (2/2013), and suspected endometriosis
******All AL always welcome******
My Ovulation Chart Fruit
* * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * *
TTC #1 since June 2012
Current Status: IVF with ICSI and PGS
Genetic, RPL, SA and Fertility testing = Normal/Good HSG = All Clear
BFP #1 12.30.2012 || Blighted Ovum 02.05.2013 || D&C 02.11.2013
BFP #2 09.10.2013 || c/p 09.12.2013
BFP #3 12.1.2013 || mm/c 01.15.14 || D&C 01.21.14 chromosome abnormality
May 2014: Residual HCG and retained tissue found
05.13.2014: Hysteroscopy D&C to find and remove retained tissue
June 2014: Tissue sample results indicate a partial molar pregnancy
May - Aug 2014: TTA for monitoring and testing
08.21.2014: Hysteroscopy to remove minor scar tissue - the result of 3 D&Cs
Sept/Oct: IUI #1 Femara + Bravelle + Ovidrel = BFN
Oct/Nov: IUI #2 Femara + Ovidrel = BFN
Nov/Dec: IUI #3 Femara + Bravelle + Ovidrel = BFN
My Ovulation Chart || *~*~All AL Welcome~*~* || DIY Blog
1 miracle Earth baby and 5 Angel babies
~All welcome~
I struggle to be open about our history of infertility, our current battle of secondary infertility, and our two losses. Anyway, you're right, none of these topics should be taboo and they DO need more awareness.
(Huge Hugs) and thank you for being such a wonderful and compassionate support on this board
Me: 27 DH: 33
Conceived DS after 4 years of MFI
TTC # 2 (not trying,not preventing ever)
May 2013 - August 2013 Timed Intercourse = BFN
September 2013 Timed Intercourse, Weekly Acupuncture, Herbs=BFN
October 2013 Timed Intercourse, Weekly Acupuncture, Herbs, and "warming foods" = BFP
Beta #1 19, Beta #2 18 Progesterone 4.6 Miscarried 11/9/13
November 2013 - Benched, waiting for first post-loss AF.
No longer benched per New RE/OB!
Jan. 15 2014 - BFP. HCG 3900 - Ectopic
Jan. 16 2014 Left tube removed and D&C
March 2, 2014 First AF
4 Losses (2003, 2008, Apr 2012, & Oct 2012)
All RPL and IF testing with multiple REs = normal
5 IUIs = BFN
All AL are welcome

BFP#1 9/9/12 -- EDD 5/14/13 -- MMC 10/10/12 Miso 10/19/12
BFP #2 9/17/13 -- EDD 5/25/14-- CP confirmed 9/21/13
BFP #3 2/1/14 -- EDD 10/5/14 -- NMC 2/10/14
Dx: low progesterone & mild hypothyroidism
My Chart
~*~All AL Welcome~*~
MAY '15 DEC. SIGGY CHALLENGE- FAV. CHRISTMAS MOVIE
Dating- 3/1/1999 ~ Married- 10/10/2004
DD#1- Sweet Pea ~ Born on her Due Date 3/1/2007
DD#2- Pumpkin ~ Due 9/29/2010 Arrived 10/1/2010
~ BFP: 6/12/2013 EDD: 2/21/2014 NT Scan: 8/5/2013 (11w3d) MMC D&C: 8/8/2013 ~
~BFP: 3/15/2014 EDD: 11/24/2014 CP 4 weeks 4 days ~
~BFP: 7/2/2014 EDD: 3/15/2015 CP 4 weeks ~
~BFP: 8/31/2014 EDD: 5/10/2015
*All are Welcome*
DX: Septate Uterus. Septum resection 6/4/13
Missed M/C natural cycle 10/2013
DX PCOS 3/2014
2 cycles Clomid 50 mg + Ovidrel + TI
1 cycle Clomid 50 mg + TI - no response stair-stepped to Clomid 75 mg + Ovidrel + TI
1 cycle Clomid 50 mg + Ovidrel + IUI
1 cycle Letrozole 7.5 mg + 150 mg Follistim + Ovidrel + TI
1 cycle Letrozole 7.5 mg + 150 mg Folistim + Ovidrel + IUI
1 cycle Letrozole 7.5 mg + 150 mg Follistim - no response, repeated Letrozole 7.5 mg + 150 mg Follistim + Ovidrel + IUI = success! 12/2014
Beta 1 - 15 dpiui, 324, Beta 2 - 17 dpiui 750. Twins!!
My Blog: pcosandpizza.blogspot.com
dream 1 CAME TRUE 2.13.2010
<dream 2> 12.2011
2.10.12 : 4 weeks
6.17.12 : 10 weeks
10.10.12 : 4 weeks, 6 days
12.13.12 : 9 weeks, 1 day
4.6.13 : 4 weeks, 4 days
10.27.13 : 5 weeks, 6 days
4.2.14 (IVF #1) : 4 weeks, 1 day
6.19.14 : IVF #2 Negative
</dream 2>
resolve.org
lyrics
***All always welcome!!***