I'm so incredibly sorry you & YH are going through this. Positive vibes and thoughts headed your way. I hope the news is good, and you guys can go home soon.
I'm so sorry It sounds like the hospital did a really bad job of letting you know what's going on, I can't imagine how difficult that all must have been to process. I hope you get good news soon.
Sending you and Baby Levi lots of thoughts and prayers!!
Nickie
Proud Cloth Diapering, Babywearing Mommy to Desmond (5.30.2011)
and Evangeline (2.26.2014)
Loving wife, best friend and teammate to Babywearing Daddy, Kelly (7.27.2000)
So happy to hear that your family is back together now! And continued T & P that the next echo(s) come back clear. Hugs and hopes for a better day today!
I just saw this and lots of T&Ps to you guys. In the last couple of weeks I have learned so much about hearts and met many amazing heart families. The majority in our unit did not know before birth. I could not imagine the terror that would create. I hope his aorta stays as is and he continues to improve. If you need to chat with anyone I am always available!
Continuing to send lots of T&ps for you guys. Glad for some peace of mind I'm sure. I hope that everything continues on the way that the drs think it will!
Keeping you guys in my heart and praying for continued good news. I'm so glad you were able to snuggle your little guy last night. It must have been so indescribable. You'll be in my prayers and please continue to keep us updated.
I have been MIA for weeks and just saw this. I am so sorry you are going through this stress. Sending T&P'S that his aorta stays where it's at. So glad you were reunited!
@sebullows I finally got a chance to search your story. I am so happy you have gotten positive news and you and your family are home! My lil guy with the heart murmur went for his echo this morning. The tech said that his hole is not down low where they typically see them and they always close, it's higher up but those close on their own "most" of the time as well. Still waiting to hear from doc on next steps. All very scary when it comes to their lil hearts.
@sebullows I finally got a chance to search your story. I am so happy you have gotten positive news and you and your family are home! My lil guy with the heart murmur went for his echo this morning. The tech said that his hole is not down low where they typically see them and they always close, it's higher up but those close on their own "most" of the time as well. Still waiting to hear from doc on next steps. All very scary when it comes to their lil hearts.
DH and I have been praying for y'all. Levi has/had 3 holes too, but they weren't concerned about them anymore, I hope your LOs close on their own. As soon as I read your story my heart broke for you so I'm so glad you got some promising news. I'm mobile so idk how to private message, but if you need to talk I don't mind sharing my email
Re: Prayer request *update* PIP, another update, last update- we are home :)
Proud Cloth Diapering, Babywearing Mommy to Desmond (5.30.2011) and Evangeline (2.26.2014)
Loving wife, best friend and teammate to Babywearing Daddy, Kelly (7.27.2000)
Volunteer Babywearing Educator at Babywearing International of South Central Pennsylvania