I am scared, even though it's just a consultation just the fact I'm going down this road just has me on Pins.
We are going to Boston's children's hospital on 2/27.
The Pedi wants me to start the process with a Nerologist here in NH on Monday..
My heart is breaking for my little Roo...
Re: Date set for Roo's Nerological Apt.
((Hugs))
I am sure this must be scary and I would feel the same way, but this is just a step towards figuring out what is going on. I am sorry I can't recall the specifics of what is sending you to the neurologist's office, but knowledge will help you make the best choices for her. Not knowing is often the hardest, since we tend to imagine the worst.
You will be in amazing hands at Children's. Have you been there before? A had his hernia surgery there last July and we could not have asked for better care for him (or us as his parents).
You will both be in my thoughts.
BFP#1 11/12/11 ~ No heartbeat 12/12/11 ~ D&C 12/19/11
BFP#2 3/25/12 ~ Heartbeat 141 4/16/12 ~ No heartbeat 4/25/12 ~ D&C 04/30/12
BFP#3 7/16/12 ~ EDD 3/26/13 ~ It's a BOY ~ DOB 2/26/13
No never have been, but I hear it's a good hospital to go to.
Roo has just stopped all emotions. She has not cried in over a month, and thats not right for a 11 month old. She won't smile, or laugh. She will acknowledge her name and crawl for food. But she won't cry when hurt or angry. She sits in her crib for hours with not a peep, a mothers dream yes.. but not right.
Thanks for refreshing my memory. I can definitely understand why you're concerned. Hopefully, you will begin to get some answers soon.
And I am sure that you have support in your non-online life, but we are also here if/when you need support. Keep us posted on how it goes with your appointment on Monday. There is so much more doctors know- and can do- now that it really is amazing.
BFP#1 11/12/11 ~ No heartbeat 12/12/11 ~ D&C 12/19/11
BFP#2 3/25/12 ~ Heartbeat 141 4/16/12 ~ No heartbeat 4/25/12 ~ D&C 04/30/12
BFP#3 7/16/12 ~ EDD 3/26/13 ~ It's a BOY ~ DOB 2/26/13
TTC since 11/2009; Lap/HSG/Hysteroscopy: 5/2011 (endometriosis - removed; endocervical polyp - removed; high pressure in bilateral tubes - cleared)
BFP #1: 8/4/11; DS1 born sleeping on 11/16/11 at 19w1d
BFP # 2: 5/7/12, EDD 1/10/13, DS2 born 1/4/13
BFP # 3: 11/8/13, EDD 7/17/14, mmc 10wks
BFP # 4: 5/16/14, EDD 1/15/15, praying for our 2nd rainbow baby
Has she continued to have seizures? Hoping not.
BFP#2 2.5.11 (EDD 10.15.11) DS born 9.28.11
BFP#4 8.27.13 (EDD 5.6.14) DD born 4.23.14
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~All AL'ers welcome~
Also in the same office is the learning disabilities center so all your basis are covered. Good luck it's not gonna be easy but you are in good hands!
Also pm me if you want my mother is an advocate and has basically lived at children's she might have some answers if you need them.
Anovulatory cycles, increased Synthroid Diagnosed Sep 2010
1 Clomid/Ovidrel BFN May 2011
Natural cycle Aug 2011 BFP M/C 4 Weeks
1 IUI Sept 2011 BFP M/c 7 weeks
Provera Dec 2011 BFP M/C 3 Weeks
IVF March 2012 BFP m/c 4weeks 5 days (IL, Prednisone)
IVF#2w/DS July 2012 MEGA FAILURE BFN (IL, Dexamethasone)
Diagnosed No real HLA Match, DQ Beta Triad, High TNF, Low NK Cells
Oct 2012 Natural Cycle m/c 4wks (Lovenox, Prednisone)
Went to Beer Center- high tnf, low lad, implantation failure
Jan 2013 BFP
Humira,LIT,Prednisone, Lovenox, IVIG, Baby Aspirin
Miracle Born August 2013 Premature
Yours doesn't have to be a sad story