Parenting after a Loss

Date set for Roo's Nerological Apt.

I am scared, even though it's just a consultation just the fact I'm going down this road just has me on Pins.

We are going to Boston's children's hospital on 2/27.

The Pedi wants me to start the process with a Nerologist here in NH on Monday..

My heart is breaking for my little Roo...

Re: Date set for Roo's Nerological Apt.

  • ((Hugs))

    I am sure this must be scary and I would feel the same way, but this is just a step towards figuring out what is going on.  I am sorry I can't recall the specifics of what is sending you to the neurologist's office, but knowledge will help you make the best choices for her.  Not knowing is often the hardest, since we tend to imagine the worst.

     

    You will be in amazing hands at Children's.  Have you been there before?  A had his hernia surgery there last July and we could not have asked for better care for him (or us as his parents). 

    You will both be in my thoughts.

     

    Image and video hosting by TinyPic View Full Size Image
    BFP#1 11/12/11 ~ No heartbeat 12/12/11 ~ D&C 12/19/11
    BFP#2 3/25/12 ~ Heartbeat 141 4/16/12 ~ No heartbeat 4/25/12 ~ D&C 04/30/12 
    BFP#3 7/16/12 ~ EDD 3/26/13 ~ It's a BOY ~ DOB 2/26/13






  • Loading the player...
  • No never have been, but I hear it's a good hospital to go to.

    Roo has just stopped all emotions. She has not cried in over a month, and thats not right for a 11 month old. She won't smile, or laugh. She will acknowledge her name and crawl for food. But she won't cry when hurt or angry. She sits in her crib for hours with not a peep, a mothers dream yes.. but not right.

  • No never have been, but I hear it's a good hospital to go to.

    Roo has just stopped all emotions. She has not cried in over a month, and thats not right for a 11 month old. She won't smile, or laugh. She will acknowledge her name and crawl for food. But she won't cry when hurt or angry. She sits in her crib for hours with not a peep, a mothers dream yes.. but not right.

    Thanks for refreshing my memory.  I can definitely understand why you're concerned.  Hopefully, you will begin to get some answers soon. 

    And I am sure that you have support in your non-online life, but we are also here if/when you need support.  Keep us posted on how it goes with your appointment on Monday.  There is so much more doctors know- and can do- now that it really is amazing.


     

    Image and video hosting by TinyPic View Full Size Image
    BFP#1 11/12/11 ~ No heartbeat 12/12/11 ~ D&C 12/19/11
    BFP#2 3/25/12 ~ Heartbeat 141 4/16/12 ~ No heartbeat 4/25/12 ~ D&C 04/30/12 
    BFP#3 7/16/12 ~ EDD 3/26/13 ~ It's a BOY ~ DOB 2/26/13






  • Oh, hon, you all will be in my prayers, especially little Roo. Please know like @Mmm79 said, we are all here for you any way we can be to support you. Big (((HUGS)))
    PAL JULY SIGGY CHALLENGE: CAKE WRECKS
    image
    You Made me a mommy... 

    Ticker id: ARvP

           imageimageimageimageimage
     Lilypie - (KAFM)

  • I'll be thinking of you all.  ((hugs))
    Image and video hosting by TinyPic
    Baby Birthday Ticker TickerBaby Birthday Ticker Ticker


    Baby Birthday Ticker Ticker
  • Sending many T&Ps your way. Boston Children's is awesome. I hope you are able to find some answers there.

    Lilypie Angel and Memorial tickersLilypie - (B9PH)

     

    Lilypie - (0YVF)
     TTC since 11/2009; Lap/HSG/Hysteroscopy: 5/2011 (endometriosis - removed; endocervical polyp - removed; high pressure in bilateral tubes - cleared)

    BFP #1: 8/4/11; DS1 born sleeping on 11/16/11 at 19w1d

    BFP # 2: 5/7/12, EDD 1/10/13, DS2 born 1/4/13

    BFP # 3: 11/8/13, EDD 7/17/14, mmc 10wks

    BFP # 4: 5/16/14, EDD 1/15/15, praying for our 2nd rainbow baby 

  • I'll be sending T&Ps your way. Hopefully you get a great doctor and all goes well.
    TTC January 2010
    BFP #1 10-11-10 ectopic discovered 10-22-10, 10-23-10 methotrexate & emergency surgery, lost right tube BFP #2 12-1-10 Found to be tissue dropped from salingectomy or missed heterotopic pregnancy from BFP #1 BFP #3 1-30-11 DS arrived on due date 10-10-11 BFP #4 Surprise 9-3-12 EDD 5-9-13 DS2 arrived 5-5-13 BFP #5 5-14-14 Emergency D&C 6-16-14 9 weeks
  • T&Ps for you!  I hope you get some answers.  
  • Junebug060609Junebug060609 member
    edited January 2014
    Just wanted to send you some love. Having to go to specialists is so scary. Its hard knowing something is wrong and not knowing what...and its hard going to those appts and worrying what you may be told. So many T&Ps that your appts go great.

    Has she continued to have seizures? Hoping not.

    BFP#2 2.5.11 (EDD 10.15.11) DS born 9.28.11

    BFP#4 8.27.13 (EDD 5.6.14) DD born 4.23.14

     

    Lilypie - (2llN)

    Lilypie - (2L9u)

     

      My Recipe Blog
    ~All AL'ers welcome~

  • Hugs we were just at children's for a neuro consult because LO is way to strong for a baby ESP a preemie. And they thought she was having seizures in the er. The np we saw was so lovely and spent an hour with us and then she brought in the doctor out of everyone at children's they were by far the nicest so far.
    Also in the same office is the learning disabilities center so all your basis are covered. Good luck it's not gonna be easy but you are in good hands!

    Also pm me if you want my mother is an advocate and has basically lived at children's she might have some answers if you need them.
    6 m/c
    Anovulatory cycles, increased Synthroid Diagnosed Sep 2010
    Natural cycle Dec 2010 BFP M/C 6 1/2 Weeks, D&E Jan 2011
    1 Clomid/Ovidrel BFN May 2011
    Natural cycle Aug 2011 BFP M/C 4 Weeks
    1 IUI Sept 2011 BFP M/c 7 weeks
    Provera Dec 2011 BFP M/C 3 Weeks
    DQ ALPHA HLA MATCH, High NK Cells Diagnosed Dec 2011
    IVF March 2012 BFP m/c 4weeks 5 days (IL, Prednisone)
    IVF#2w/DS July 2012 MEGA FAILURE BFN (IL, Dexamethasone)
    Diagnosed No real HLA Match, DQ Beta Triad, High TNF, Low NK Cells
    Oct 2012 Natural Cycle m/c 4wks (Lovenox, Prednisone) 
    Went to Beer Center- high tnf, low lad, implantation failure
    Nov/Dec 2012 LIT Treatment
    Dec 12 Humira
    Jan 2013 BFP
    Humira,LIT,Prednisone, Lovenox, IVIG, Baby Aspirin
    Miracle Born August 2013 Premature

    Yours doesn't have to be a sad story



    image
    image


    Lilypie - (ugiy)


This discussion has been closed.
Choose Another Board
Search Boards
"
"