Babies born with Clubfoot

Soupy84 · January 2014

So I had my follow-up u/s today from my original a/s on Dec 24th. The tech didnt say anything, but did leave the room to bring the on-call doctor. My heart stopped as soon as the doctor came in, which is exactly what happened in my previous pregnancy when they told me the baby's heart had stopped beating. Thank God, that wasnt the news she delivered. She told me that it looked like my baby's right foot was not positioned correctly and likely would be born with clubfoot.

I very cautiously visited Dr. Google, but started crying when I saw all the images of babies with clubfeet and the casts they were wearing. Are there any other moms here that have or know they will be dealing with a physical deformity? I know it can be corrected, but the thought of my newborn in a cast for weeks or requiring surgery has me in a pretty bad emotional state. Of course DH wasnt able to go with me and wont be home for a few more hours. If anyone has some insight or similar experiences, I would appreciate hearing them and how you coped.

ujocdeelovely · January 2014

I was born with a clubfoot. it wasn't that bad as per my mother. I had to wear a brace for a few months and I was fine after that.

dogsombrero · January 2014

My DH was born with both feet clubbed. He wore tiny casts for about a year but didn't have any surgery. He's just fine now and works in a physical job. I'm curious what the new technology can do considering he's almost 32.

Mskot10 · January 2014

hi. my friend's son, now a year & a half old was born with a club foot. he was casted and she is vocal about it in Facebook. if you'd like to connect with her,I can put you guys in touch.

ecinereb · January 2014

I work with kids with club foot. It can vary so much but can be anything from stretches to braces to cast and surgery. The majority of the time it resolves pretty easily and is NBD.

Not to scare you but sometimes it can be a symptom of a larger syndrome but I'm guessing this would also have been discussed with you if that was the case for you and also usually involves both feet.

Soupy84 · January 2014

I think the thing that is scaring my most right now, is its association with spina bifida. I am praying that the clubfoot is limited to just one foot and our baby wont be born with spina bifida. I will love our child regardless, but I am terrified of the possibilities now. I just dont know how this could have happened. We got incredibly low numbers in our genetic screening, I dont smoke, dont drink, and am healthy (minus being overweight). I hope you ladies all understand that I am only trying to deal with the initial news and trying to prepare for the possibility that there could be a bigger problem. I am in that stage where I feel like I need to assign blame or find a reason why. Stupid hormones are overriding my ability to reason and think clearly.

Thank you for those that have shared their experiences. From what I have read on Dr. Google, it is not painful for the baby. The idea of the brace for a few years sounds very challenging, particularly for a baby and toddler to wear. I am just seeing so many different time frames (based on severity) its hard to try and predict what we will be facing. Does anyone know if the brace is something we would have to pay for?

candrew05 · January 2014

No experience, I just wanted to say I am sorry you got this news. Prayers that he is otherwise healthy and its an easy correction after birth.

alphalyrae · January 2014

One of my cousin's children was born with both feet needing surgery for corrections. Other than needing tubes in his ears (unrelated), there are no other medical issues and the correction for the club-feet wasn't a huge deal. He now plays softball with his big brother.

ykristos · January 2014

Soupy84 said: I think the thing that is scaring my most right now, is its association with spina bifida. I am praying that the clubfoot is limited to just one foot and our baby wont be born with spina bifida. I will love our child regardless, but I am terrified of the possibilities now. I just dont know how this could have happened. We got incredibly low numbers in our genetic screening, I dont smoke, dont drink, and am healthy (minus being overweight). I hope you ladies all understand that I am only trying to deal with the initial news and trying to prepare for the possibility that there could be a bigger problem. I am in that stage where I feel like I need to assign blame or find a reason why. Stupid hormones are overriding my ability to reason and think clearly.

Thank you for those that have shared their experiences. From what I have read on Dr. Google, it is not painful for the baby. The idea of the brace for a few years sounds very challenging, particularly for a baby and toddler to wear. I am just seeing so many different time frames (based on severity) its hard to try and predict what we will be facing. Does anyone know if the brace is something we would have to pay for?

Hey, your feelings are valid and don't feel like you need to justify or explain them. It's scary to hear that anything is wrong, but try not to blame yourself or perseverate on things you could have done differently. You've done/are doing the best you can. Remember that and take care of yourself.

It seems like something that insurance would cover, but I would follow up with your doctor and proceed with insurance when you need to (probably after the baby is born). Are you going to be getting more information from your provider/when is your next appt? I'm sure it will be relieving to get a more definitive 'prognosis' from someone who is familiar with your specific case over google.

Big internet hugs.

SNOakes · January 2014

I have no experience with this, but it sounds like many ladies here had or have seen positive outcomes. I hope this is your case. Hugs to you.

hatrats · January 2014

Spina bifida would almost certainly be seen in the a/s (and they would have told you about it). We had a higher risk since our nephew has it, so we were sure to ask about it. The doctor said they would have definitely seen it and everything looked good.

CamrynnsMommy · January 2014

I have a cousin born with club feet, he did not require surgery, just braces. He is perfectly fine now.

Sorry you're dealing with this.

Eta: I do not intend to sound unsympathetic when I said "he is perfectly fine now." I totally understand your worry, just trying to be positive and reassuring.

busterbeagle · January 2014

I'm sorry you are dealing with this. T&Ps that you get reassurance that everything else is fine soon. I know it's hard not to blame yourself but you didn't do anything to bring this on. I hope that you can get support from other moms who have gone through this and everything goes as well as possible for your LO.

Soupy84 · January 2014

CamrynnsMommy said:

I have a cousin born with club feet, he did not require surgery, just braces. He is perfectly fine now. Sorry you're dealing with this. Eta: I do not intend to sound unsympathetic when I said "he is perfectly fine now." I totally understand your worry, just trying to be positive and reassuring.

CamrynnsMommy - I would not have taken what you said as unsympathetic. At this point, its very reassuring to hear all the stories and experiences have one major thing in common - that the individual is fully functioning and has no impediments after undergoing treatment.

Thank you ladies for your thoughts & prayers and speaking about your experiences. After a lot of shed tears, I finally called my sister who is a kinesiologist. While my mind was racing over the what-ifs and my heart was breaking over the struggles to come, she put on her professional pants and laid everything out for me. She is going to do some digging and talk to a few specialists in her field to answer a few more questions. I dont know how & when it happened, but my kid sister isnt a kid anymore (proud big sister moment here /grin). I should be prepared and confident enough to speak to my OB next week. While I respect the u/s tech and on-call doctor, I think I am going to request another u/s and further testing (if there is some more they can do).

momthatlifts · January 2014

I was born with clubfoot and it fixed itself on its own. Sorry you are dealing with this. Try to stay positive

Snikle512 · January 2014

No advice just wanted to offer hugs and support from afar!!!

MeredithElese · January 2014

I just started working with a baby with clubbed feet. He gets casted every week (for about 6months) and they slowly try to reposition them. He is not making quick enough progress and they are going to of a procedure on his tendons to loosen them some. The important part with kiddos going through this process is being diligent in stretches when it's done. It's work on the front side, depending on the severity, but can be repairable. Good luck!

ecinereb · January 2014

Soupy84 said:

I think the thing that is scaring my most right now, is its association with spina bifida. I am praying that the clubfoot is limited to just one foot and our baby wont be born with spina bifida. I will love our child regardless, but I am terrified of the possibilities now. I just dont know how this could have happened. We got incredibly low numbers in our genetic screening, I dont smoke, dont drink, and am healthy (minus being overweight). I hope you ladies all understand that I am only trying to deal with the initial news and trying to prepare for the possibility that there could be a bigger problem. I am in that stage where I feel like I need to assign blame or find a reason why. Stupid hormones are overriding my ability to reason and think clearly.

Thank you for those that have shared their experiences. From what I have read on Dr. Google, it is not painful for the baby. The idea of the brace for a few years sounds very challenging, particularly for a baby and toddler to wear. I am just seeing so many different time frames (based on severity) its hard to try and predict what we will be facing. Does anyone know if the brace is something we would have to pay for?

I really apologize if my comments were insensitive and worried you. Like I said I'm sure if it were a symptom of something bigger that would have shown up on your scan and they would discuss with you. I hope the OB is able to give you some re-assurance! Please PM if you have any more questions and want another 'professional' opinion. (I'm a peds physical therapist).

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