Here we go again... — The Bump
Special Needs

Here we go again...

edited November 2013 in Special Needs
Well, baby girl's well check this week didn't quite go as well as I had hoped.

For the most part she is doing very well and growing quickly, so that's great!! She was born at 5.9 and is now 7.3!! She is so different from big brother. With his oral and tone issues he never finished a bottle in one sitting. Meanwhile she's gulping them down and wanting more. Lol

Her head at birth (37 weeks) was the same as DS's (39 weeks)!!! And he was an 8lb baby!! So she seems to be doing really well in the head, feeding and growth dept, despite some narrowing at the temples that I'm not sure is completely normal.

However, we received our first referral to a specialist at this visit. It seems as though the murmur that was present at birth, and had resolved, is now back. She has a strong family history of combined pulmonary and aortic stenosis on her birth father's side of the family, so I think the ped is concerned about this. He is sending us to see a ped cardiologist after Thanksgiving.

Please send some prayers/warm thoughts that her testing goes well and that everything is fine.

She now officially holds the family record. I think DS was at least a few months old the first time he was referred to a specialist. :-(
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Re: Here we go again...

  • I am sorry! Hopefully the pedi is just being cautious and nothing is wrong! My DS2 has an enlarged kidney that has mostly resolved. They are growing and changing so fast at this age!


    DS1: 4/15/2011
    Dx: ASD, SPD and receptive and expressive speech delay at 21 months
    BFP #2: CP 5/2012
    DS2: 4/24/2013
    BFP #4: Miscarriage at 5 weeks 7/2014
    BFP #5: 8/8/2014 Due 4/20/2015 
    Its a healthy girl!!!!! 
    Lilypie Pregnancy tickers
    Rachel Sonnier
  • Fingers crossed it's nothing, or that it will correct itself!
    DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

    DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3


    Rachel Sonnier
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  • Sending positive thoughts your way that it's nothing to worry about.
    Rachel Sonnier
  • First of all, congratulations on the birth of your daughter! (I somehow missed that huge tidbit of news). Secondly, I will be sending prayers your way that it's nothing serious. Both my boys have murmurs, and I know they can be nothing serious as often (if not more often) as they can be a warning of something larger. Please keep us posted.

    Rachel Sonnier
  • warm thoughts/prayers coming! good luck.
    WAY 2 Cool 4 School


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    Rachel Sonnier
  • Thank you so much ladies!! I am really hoping it turns out to be nothing. 

    @CaptainSerious, she was born 3 weeks ago tomorrow and she was placed with us 4 days later! 

    @Auntie, her name is Audrey Grace. :-)
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  • I love, love, love the name Audrey. It's my girl name if we ever have another.
    WAY 2 Cool 4 School


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    Rachel Sonnier
  • How wonderful! All the best wishes and congratulations to you! I'm so happy to hear this!

    Rachel Sonnier
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