August 2012 Moms

Baby does have heart problem

We went back to the children's hospital for another fetal echo today, and our baby was diagnosed with heart defects. It is likely Tetralogy of Fallot (Amaite, I would definitely like to write/speak to you about your experience). A lot can happen between now and the end of the pregnancy (none of which I can influence with my behavior, I'm told), so the severity is unknown, but baby will likely need open heart surgery by 6 months. Now that we've had two babies with major heart issues, it's definitely genetic. I am so grateful for my healthy daughter right now and hoping that we end up with the best case scenario with this baby (a boy) and that he can have a full repair and is able to lead a normal life. Thanks again ladies for your support.
BFP #1 9/2010 (lost our baby at 21 weeks) BFP #2 8/2011 (ectopic pregnancy) BFP #3 10/2011 (chemical pregnancy) BFP #4 12/2011 (Abigail born 8/15/12) BFP #5 5/2013 (Griffin born 1/23/14 with heart defects, now repaired!)

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Re: Baby does have heart problem

  • I am so sorry for this news. I hope that it is the least severe option when you meet him.
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  • I'm hoping for the best for your little guy. There are such incredible things that can happen thanks to modern medicine. Best wishes.
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  • ((hugs)) I'm so sorry about the results.  I know it must be scary but I know babyboy will thrive and grow and live a normal life down the road, albeit a few early hiccups.... Thought and Prayers for your little ones.  
    SMOOCHES FOR ALL!!!
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  • I am so sorry to hear. :( Sending T&P your way, I can't even imagine what you must be going through. 
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  • What a horrible world we live in. I am so sorry you're facing this. I sincerely hope and pray for the best case scenereo for your little man. Creepy Internet hugs for you. We are always here if you need us.
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    Then and now. How did my boy get so big? 

  • I am so sorry to hear this, L. As LD mentioned, modern medicine can do incredible things, which I have seen with my son. It's still very scary though. I will be thinking of you and your family, and will try to figure out how to pm you my email address. If I can help in any way, please don't hesitate to let me know.
  • Huge hugs to you, L. I'm sorry you're going through this. I will hope and pray for the very best case scenario for your baby boy. 
  • Oh no, I am so sorry.  How heartbreaking.  I'll be thinking and praying for you as you approach the birth of your son.

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  • I'm sorry.  Hoping for a positive outcome!
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  • So sorry to hear that. I can't imagine. An ex boyfriend of mine just had a baby girl with tof. She just had open heart surgery and she is doing great! It's definitely been hard for them but they are getting through and baby is thriving. Everything will be ok... Just believe that it will. Thoughts and prayers. And HUGS!

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  • I realize that every case is unique but Shaun White was born with tof and look where he is now! 27 years old with two gold medals.

    I didn't know he had that defect, I think it's cool that he has thrived in his sport.
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  • I'm so sorry, L. Will be thinking of you.
  • I am so sorry.  I have been checking back to see a status on your LO.  T&P!
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  • Praying and hoping for the best for your little guy! Don't hesitate to let us know how we can help, we're here for you!
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  • I am so sorry you received this news! Big hugs!
  • Oh my gosh. Big hugs and I'll be hoping for the best outcome for him and all of you.
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  • I realize that every case is unique but Shaun White was born with tof and look where he is now! 27 years old with two gold medals. I didn't know he had that defect, I think it's cool that he has thrived in his sport.

    Yes, I did know this. He actually lives in our town, too. Hopefully it's on the low end of severity like his was. Thank you so much for your support, ladies. It really means a lot to us.
    BFP #1 9/2010 (lost our baby at 21 weeks) BFP #2 8/2011 (ectopic pregnancy) BFP #3 10/2011 (chemical pregnancy) BFP #4 12/2011 (Abigail born 8/15/12) BFP #5 5/2013 (Griffin born 1/23/14 with heart defects, now repaired!)

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  • So sorry that you guys are going through this.  Hugs to you!!

    ___________________________________________________________________________

    Trying for #1 since May 2010   l   DX ~ Unexplained Infertility June 2011

    IUI #1&2 = BFN; IUI #3 = BFP, m/c @ 6 weeks

    November '11 ~ IVF#1 ~ ER 11/18 (29R, 17F) ~ 5dt of one beautiful blast on 11/23 = BFP!!

    Beta #1 9dp5dt = 116, P4 = 28 ~ Beta #2 13dp5dt = 700 ~ Beta #3 20dp5dt = 9500, P4 = 26

    1st u/s 12/27 - hb of 156!! EDD 8.10.12 :)   **TEAM GREEN!**

    Sweet baby boy born 8.18.12

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    Trying for #2

    FET #1 - October '13 - c/p   l   FET #2 - December '13 - cancelled :(   l   FET #2.2 - 1.30.14 - BFN

    ~ More testing - hysteroscopy, endometrial biopsy & more b/w - all normal / negative~

    Surprise BFP while waiting on FET #3 ~ beta #1 500; beta #2 1600; first u/s 4/3 - measuring 5w5d, no hb yet!; 2nd u/s 4/10 - hb 132, measuring 6w6d - EDD 11.29.14 :)    **TEAM GREEN!**

    Beautiful baby girl born 11.24.14

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  • I'm so sorry. I hope for the best for your sweet boy!
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  • I am so sorry! T&P!!
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  • I'm very sorry about your son's heart issues. Not to make light of an infant undergoing cardiac surgery but thank goodness for 21st century technology and medicine where he was diagnosed prenatally and can be treated right after birth. Sending T and P to you and your family.
    TTC since 3-08 IVF # 1 Dec 2011 BFP DD born at 31 weeks 6-24-12

    FET #1 Dec 2013 BFN

    FET # 2 Feb 2014 BFN

    No more frosties

    IVF #2. September 2014

    PGD yielded 2 perfect 5d blasts

    SET November 9, 2014
    Nov 23, 2014. Another BFN

    Not sure where to go from here.

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  • so sorry to hear this- sending positive energy your way.
  • I'm so sorry you and your sweet family have to deal with such a stressful situation. We all know you'll handle it like rock stars when the time comes, but it sucks that you have to deal with this at all. Big hugs, we're here for you when you need us.

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    AUGUST 2012 UNICORN



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  • I'm so sorry to hear this!  I will be thinking of you and your sweet baby boy!

     

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    Baby #2!

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  • I am so sorry to hear this news. Huge hugs to you and T&P your way!
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  • So sorry to hear this.. I can't even imagine how hard it must be. It's good that you found out now though so you can prepare and they can take action right away. I'll be praying for your little one and your family!
    blighted ovum 5w3d 10/11
    Aidan Russell 8/7/12
    missed m/c 8w6d 11/1/13
    Shane Ryan 8/25/14
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  • I'm sorry that you guys have to deal with such a scary situation. T&P's to you and your sweet baby.
    victoria5month samantha5
  • I am so sorry.  Sending you lots of prayers and virtual hugs. 


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  • Big hugs and well wishes for your family.
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