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Thoughts

taryn30taryn30 member
in Special Needs
I have my initial meeting with CST this week for my almost 3 year old. He had torticollis as a baby which we received therapy for. He was late on all milestones and was having major feeding issues. Early intervention began. He also has major flat feet. We took him to A physiatrist per the PTs recommendation. He diagnosed him with moderate to severe low muscle tone and gave prescriptions for both speech and PT. he also gave him a prescription for sure steps, ankle support braces. Please keep in mond that earky intervention basically graduated him from program. then i find out all of this! i have all my reports. Can you give any advice for me before this meeting? Thanks!
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Re: Thoughts

  • Jenny952Jenny952 member

    Are you talking about a cranial sacral therapist?  I assume that's what you mean?  I take my DD to one and I love it!  She has spina bifida and hydrocephalus with a shunt and I have nothing but amazing things to say.  DD's been going since she was about 8 weeks old and our therapist has been able to correct things that could have turned into big problems if let untreated.  For example, she's helped DD with her over-active gag reflex, which made her have trouble nursing for a while.  She's also given me really good pointers about things, like getting her to point with her pointer finger instead of her middle finger. 

    Our therapist's practice is about 60% torticollis and plagiocephaly.  We had to fill out a lot of information about her before our first appointment (though there wasn't much since she was so young).  I would make sure to tell your therapist what issues your DS is having, and all of the issues.  Our therapist is very holistic, and CST is more holistic/homeopathic and deals with the total body.  I hope you're able to see some progress with your DS!  

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  • macchiattomacchiatto member
    image-auntie-:

    In my world CST is child study team? Is that correct?

    I'm a little confused; why a physiatrist is writing scripts for speech services? Typically they do more habilitive medicine and leave the developmental pieces like speech delays to developmental peds or in the case of a child with hypotonia a neurologist. 

    Sorry I'm eavesdropping and this is off-topic (also not sure what CST stands for) but do most kids with hypotonia see a neurologist?

    fraternal twin boys born january 2009
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  • macchiattomacchiatto member
    Got it. Thanks!
    fraternal twin boys born january 2009
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  • taryn30taryn30 member
    Yes CST is child study team.

    I haven't yet seen a developmental pediatrician. Perhaps that should be my next step. Thanks ladies!
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  • macchiattomacchiatto member

    imagetaryn30:
    Yes CST is child study team. I haven't yet seen a developmental pediatrician. Perhaps that should be my next step. Thanks ladies!

    It's probably a good idea. I asked our pediatrician about it at my son's 3 year visit and she gave us a referral to one. It has been helpful. (Around here it can take a while to get in to one; 6-18 months. For my son it was 6. Not sure if it's like that everywhere!)

    fraternal twin boys born january 2009
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